Re: Re:Flu shot plus Culture questions

[Guest guest]

Hi Meg,

Yes that first diagnosis of psedomonas auerogosa (spelling???) is a bit

disconcerting. Anyway, most of the list just calls it " P.A. " You're right,

the literature says that they all get it sooner or later. The problem is

that once they get it, the bacteria can never be completely eliminated, just

kept under control. Thus the Tobi (the inhaled version of Tobramycin),

which is an antibiotic, as you thought. It is important to control it, as

this is one of those bacteria that can do major damage to the lungs, if left

unchecked. Originally Tobramycin was given via IV. But they found that

inhaling it directly into the lungs did an even better job of controlling

it. So that is the current standard of care. It is done for 28days on and

28 days off, indefinitely. The only down to it that I can see is that it is

incredibly expensive; about $2000 per month!!! Hopefully you have insurance

that will pay for this. The time it takes is also a pain, at least in my

house, where the 10 year old can barely sit still long enough for the

treatments.

Good Luck!

(mother of , 10 wcf, and , the toddler terrorist)

Re:Flu shot plus Culture questions

> From: MMolls@...

>

> I know I'm sorry for not participating that much lately but I've had a bad

> case of the BLUES lately don't really know why. has just been

diagnosed

> with diabetes and High blood pressure. So that put some more added stress

on

> me I'm fighting to get weight off him and onto Maureen so now I have to

> prepare everything 2 ways.

> Maureen went to Pulm last week and we did a throat culture. She had been

> coughing a little and very runny and stuffy in the nose. Well, we grew

> something in the culture Pseudo..... So now they want to try Tobi by

> Nebulizer. Now I am lost in some of what is going on. I know the Pseudo

(am

> I right? I know it is a longer word but I don't remember it) I know that

it

> is nothing really outside the norm but it is the first time. So be

patient

> with me as we are " Virgins " to this. Now Tobi is an antibiotic? And can

> only be taken through the Nebulizer? HELP!!

>

> As for the Flu shot Maureen got that last week 24 hours later I picked her

up

> from school with 102 fever go figure!! Buzz here in NY is Already have

> cases of it and get the shot early they may not be around come mid Nov.

Worse

> strain than last year.

>

> Also around me here in good old upstate NY we are lucky enough to have a

> wonderful strain of Whooping cough going around that the Vaccine and

immunity

> from having it before will not help you this is a STRONG sucker and HIGHLY

> contagious and as some of us may already know (I for one as Maureen had

this

> at 10 months old) This illness last 3 full months That's right 90 FULL

days

> of Pure Joy!!!

> PRAY For Us!!!

> With her resistance down already Who knows what could happen

>

> Sorry so long!!!!

>

> Meg

> Mom of Maureen 9yowcf

>

> > This is a secular list.

>

> The opinions and information exchanged on this list should in no way be

construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING

ANY MEDICATIONS OR TREATMENTS.

>

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>

[Guest guest]

Thank you for your response Things are coming down meds and Nebulizer on the

way will be here tomorrow. Like yours my 9yrold doesn't like to sit still

She hates doing the flutter.

Once they get on Tobi is there any going back to Aurthomisin (sp)?

Or is it normally Tobi after this? How long should I look to have her

recultured?

Meg

Mom of

Moe 9yowcf & Katy 4yowocf

[Guest guest]

Hi Meg,

's doctor recultures her every few months, and whenever she is

symptomatic. As far as other antibiotics, yes gets those, in

addition to the TOBI, if she is symptomatic. Hope things go well.

Sent: Wednesday, October 13, 1999 5:01 PM

Subject: Re: Re:Flu shot plus Culture questions

> From: MMolls@...

>

>

> Thank you for your response Things are coming down meds and Nebulizer on

the

> way will be here tomorrow. Like yours my 9yrold doesn't like to sit still

> She hates doing the flutter.

> Once they get on Tobi is there any going back to Aurthomisin (sp)?

> Or is it normally Tobi after this? How long should I look to have her

> recultured?

> Meg

> Mom of

> Moe 9yowcf & Katy 4yowocf

>

> > This is a secular list.

>

> The opinions and information exchanged on this list should in no way be

construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING

ANY MEDICATIONS OR TREATMENTS.

>

> ----------------------------------------

>

> If you know someone who would find cfparents useful, have them follow this

link: http://www.onelist.com/subscribe/cfparents

>

> ----------------------------------------

>

> Come chat at our webpage! http://members.tripod.com/cfparents/

>

> ----------------------------------------

>

>

>