Guest guest Posted January 23, 2000 Report Share Posted January 23, 2000 Hi everyone. I've just joined the list and spent some time scanning through the recent archives. The info has been useful but I find the experiences of other RSS parents to be the most enlightening. My 11mo son Jasper was just diagnosed with RSS a week ago and until the week before xmas when we saw a pdendo, I had never heard of RSS. He was born full term at 18.5 " and 4lbs 10oz. He grew very well until about 5.5mos at which point he seemed to stall at 15.5lb and 25.5 " . He is now 16.5lb and 27 " . I nursed exclusively until 6mos and this is still his strongly preferred source of nourishment though he recently has started to eat more jar food and cheerios. We will probably go to a second geneticist (is there a list of relevant abbreviations somewhere so I don't have to spell everything out?) to confirm the diagnosis and since we are in the NY area, we might consider seeing Dr. Harbison. In addition to IUGR, Jasper has cafe au lait spots and size asymmetry in his legs. The only other obvious RSS characteristic is a small chin. He is an extremely active and happy baby which might have made it easier to stall investigating why his growth slowed down so abruptly. Is this common in RSS children? I would appreciate any advice on how we should proceed with " treating " Jasper. thanks, Quote Link to comment Share on other sites More sharing options...
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