Re: eating fats

[Guest guest]

hi kim,

thanks for the invaluable info. i will google it and compile

questions for my Gi next week.

this whole mess with this type of discomfort (kind of varied in

severity over the years) really started while i was on 6mp. this is

when the RUQ started- about 5 years ago- it got so bad that i stopped

the 6mp against my GI's protests because bloods always came back

normal and he said it was " nothing " . i stopped the 6mp and the pain

went to just being a discomfort that significantly reduced- i also had

ultrasounds and scans during that time and everything was normal. at

some point i also had really bad vomiting " sprees " as i call them

which lead me to have a endoscopy and that was clean. no explination

as to why i have this " just a manifestation of the CD " maybe a

narrowing from the time i had the obstruction where ascending and

transcolon meet (which is close to where i always have this discomfort

anyway)

i dont really eat spicy or foods to high in fiber. maybe i am wrong?

i find that i can only eat lets say the outer part of pineapple as

opposed to the part closest to core as that will make it act up.

i dont eat to many fruits and veggies in general.

my staples are; (i make a yogurt smoothie every day)

bananas (brown spots)

strawberries

oranges (juice, or i eat it and mostly suck out the juice and throw

the rest out)

pineapple (what i explained above)

apples (peeled and seeded)

lemon

veggies: i try to eat 1 veg every day but it can be problematic.

spinach - which can be problematic and give me D at times

zucchini

squash

carrots

onion, garlic

tomato

parsley

asparagus

cucumber

bell pepper

i eat some olives, cashew butter (which can make RUQ flare)

i eat fish, seafood, meats, eggs (fatty meat is a serious no no)

yogurt, dccc, a little cheese, just made dripped yogurt.

i sweeten things with honey. i found a brand from my local farmers

market that doesn't make me sick.

i also love using vanilla extract.

fresh herbs- and dry herbs.

black pepper doesn't seem to bother me at all.

i get almond flour treats from scd bakery- but i have to limit that as

the almond flour makes me feel heavy.

extra virgin olive oil, macadamia nut oil, butter.

very small amount. would like to learn a method of cooking that

doesnt call for so much oil.

i would like to try coconut oil this week.

i used to eat avacados a lot but that can also be problematic.

i am planning on trying mango and making mango sorbet this week.

(that is if i can find some lovely mangos which i doubt- since it isnt

the season)

thats about it..

what is high in fiber from what i typed above?

and i will pay more attention!

jodi

>

> Hi Jodi

>

> I also have problems with supplements and medications; many trigger

my Sphincter of Oddi dysfunction and also a variety of other symptoms

coming from my upper GI.

>

> Have you noticed an increase in the RUQ pain after you've eaten

something spicy? Or high in fiber? Do you get migraines often? Then

you might have Sphincter of Oddi dysfunction (SOD) like I do. Fat,

fiber and spices all trigger SOD flares; and women who suffer frequent

migraines compose 95% of SOD patients. It's somewhat difficult to

find a gastroenterologist who knows about this, and/or is willing to

order the tests (there are only two available).

>

> An ERCP is the usual method for checking out the bile ducts, and the

upper end of the duodenum. But there are risks associated with an

ERCP, like pancreatitis, so you want to make sure you have a good

gastroenterologist at the controls. My doctor discovered the bile

duct blockage (that hadn't shown up on any of the scans) only during

the ERCP, because it wasn't a stone or sludge. My common bile duct

just wasn't emptying and a " pool " (my doctor's words) had formed. I

ended up getting a sphincterotomy too. Now I am prone to bile duct

problems, since I have Sphincter of Oddi dysfunction.

>

> The other tests I'd had that looked at my upper GI were:

ultrasounds, Xrays, CT scans, Hida scan (twice), Hida with CCK (once),

GES (Gastric emptying study; twice), and of course the usual EGD (or

endoscopy). Finally, after I saw three gastroenterologists, I found

my current one who ordered an MRCP and a Debray scan (a variant of a

Hida scan), which identified the SOD.

>

> Food choices plays a large role in my RUQ pain and nausea levels. I

eat low-fat, low-fiber and bland SCD. Supplements and medications

also cause a variety of problems, so I have to be careful. I've also

been diagnosed as being very deficient in B12, so give myself shots

regularly. I have felt a big improvement in my energy levels (and

coordination and balance) since I began giving myself regular B12 shots.

>

> I'd keep a food and supplement journal for a while, and look for a

pattern in the RUQ pain and the foods or supplements you had just

before the pain kicks in.

>

> But, even knowing what my disorders are, and being very careful with

my foods, I still suffer symptoms after every meal. It's just the way

my digestion works now. I work hard to keep the symptoms as minimal

as possible, and most days do OK. Thanks to SCD. But it also took me

2 years on SCD before I reached stability with my upper GI and immune

symptoms. These days I can put more of my energy into coping with my

neurological disintegration than my cranky digestive system. Again,

thanks to SCD.

>

> Kim M.

> SCD 4+ years