Re: Hi to all of you

[Guest guest]

Sounds to me like, despite anger as all of us have, you're doing

quite well in taking control of your life, making your decisions, and

living to the maximum you can.

>

> Hi everyone, I seem to have over 1000 e-mails in my box. Thank you

all for your notes. I have not read all correspondence , but will

figure out how to cut the volume a bit. About me, I am 79 years old

and have been diagnosed with PF after many years of not knowing what

was going on, I guess I am relieved to have any kind of diagnosis,

and of course because of my advanced age my Dr. does not want to put

me through the steroids/viagra/and whatever else the cockeyed medical

world has thought up. I really am sort of angry, that does not do a

lot of good. I have 9 children/we have a sad history of autoimmune

disease, 2 sons with advanced MS and one grandson just diagnosed, 1

daughter with crippling RA, my mother and sister had something on

that order, I have found some things I think help, I am on oxygen24/7

and I take NAC as per my dr. not a prescription/seems to help the

fatigue. so i do stay in my pj's some days. I retired from the Law

Enforcement center/was a communications

> officer/matron/jailer, so I know lots of those words I would like

to use. I argue with drs, they are NOT going to have the last word, I

AM. we live in Northern Iowa, and my husband, like a lot of others

doesn't have a clue, I have to ignore the way the wash turns out and

the kitchen. Really hard to still have your brain and know what you

would be doing if your body would let you, sorry to ramble and I will

stay in touch. I take some other things from the alt. med.

place.liquid oxy and a lung tonic with cordyceps, looks like swamp

water. Later, Gen

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

[Guest guest]

Welcome Gen, sorry you had to join us under these circumstances.

Iowa thats not far from MN/WI where I live unless your on the other

side of Iowa. I am glad you found the group though because this

place and people are wonderful and you will fit right on in! So

welcome!

Sandie

Suffering Succotash, 2007 WI - 37

>

> Hi everyone, I seem to have over 1000 e-mails in my box. Thank you

all for your notes. I have not read all correspondence , but will

figure out how to cut the volume a bit. About me, I am 79 years old

and have been diagnosed with PF after many years of not knowing what

was going on, I guess I am relieved to have any kind of diagnosis,

and of course because of my advanced age my Dr. does not want to put

me through the steroids/viagra/and whatever else the cockeyed medical

world has thought up. I really am sort of angry, that does not do a

lot of good. I have 9 children/we have a sad history of autoimmune

disease, 2 sons with advanced MS and one grandson just diagnosed, 1

daughter with crippling RA, my mother and sister had something on

that order, I have found some things I think help, I am on oxygen24/7

and I take NAC as per my dr. not a prescription/seems to help the

fatigue. so i do stay in my pj's some days. I retired from the Law

Enforcement center/was a communications

> officer/matron/jailer, so I know lots of those words I would like

to use. I argue with drs, they are NOT going to have the last word, I

AM. we live in Northern Iowa, and my husband, like a lot of others

doesn't have a clue, I have to ignore the way the wash turns out and

the kitchen. Really hard to still have your brain and know what you

would be doing if your body would let you, sorry to ramble and I will

stay in touch. I take some other things from the alt. med.

place.liquid oxy and a lung tonic with cordyceps, looks like swamp

water. Later, Gen

>

> ---------------------------------

> Never miss a thing. Make Yahoo your homepage.

>