Re: 's New House & Judy's Prayer Request

[Guest guest]

Judy, You are amazing! I can't believe all that you have been through and how strong your drive is to keep positive. So glad you got to see your grandkids-always the best medicine. I wish I knew anything about anti-rejection drugs- but I am praying for you each day. It seems like everyone else who gets a transplant forgets about all of us who are waiting. It has been so kind of you in the midst of everything to keep us so informed. God bless you Judy- Sarcoid/PF 3/2006 California 's New House & Judy's Prayer Request

, Don't overdo on your new house like I did. Tomorrow will be

8 months since I moved here and I still am not really settled or

organized. Of course Moving here in May, then a lung transplant in

Aug and then lung collapse in Nov. has effected my accomplishments.

Right now the prayer request I have is that I can get enough rest and

relaxation between now and Jan. 22 when I go back for another checkup

at the transplant center. My spiro breathing test was not as good on

the 8th as it had been the previous time in Dec. so he has scheduled

another bronchoscope and biopsy for the 22nd unless my breathing is

better. My oximeter says my oxygen level is high enough but I do

have the SOB feelings; however, I think they are due to my fatigue

and my stress from the shakiness which I have aquired since they did

those 10 days of IV steroids in Nov and then last week increased my

Prograf (anti rejection med) from 3 mg to 5 mg twice a day. I meant

to get to bed by 10 tonight but was feeling too shaky and stressed so

decided to request prayer & just this typing has relaxed me. I still

haven't done my Christmas cards, but hope to do them this week. They

will be Happy New Year Cards and thank yous. I also plan on writing

a card to the daughter of the donor of my left lung as I received a

card from her when I got out of the hospital on Nov. 30th.

Jeff, my oldest son volunteered to go get my 2 grandkids from

Lafayette and brought them over here New Years weekend so I was able

to give them their birthday and Christmas gifts (since I had been

depressed when their dad let me know Christmas morning that they were

not coming over for Christmas because of the 3 hour one way drive)

and enjoy their visit. Then this weekend their dad and mom brought

them over and Jeff treated us all to a dinner at a Brazilian

restaurant on Sat. night & Sun. morning I had my daughter-in- law and

my son help me cook brunch as they were planning to go home early

since 's 17 year old daughters were dog sitting for them and

wanted to get home early enough to get ready for school the next day

plus both & Loren get up very early to go to work. He has an

hour drive to his construction site where they are installing those

wind mills that generate electricity & had to be at Mc's

at 4 a.m. to open then to Macy's around 9 where she works full time.

She gets out of Mc's early enough to go home, eat breakfast and

take the kids down their country lane to wait for their school bus.

and Loren had been using Nicotine gum and trying to quit

smoking around the time I had my transplant, but had gone back to

smoking. Now they claim they haven't somked this year yet and are

back on the gum.

I haven't been on the computer much because of shaky hands and still

having vision problems but would love it if someone would right me at

email to my home email (cbayjpwcinci (DOT) rr.com) & give me a short run

down of how people are doing. I tried to call Kerry today but no

reply. Also I am wondering how the fellow (Greg or who had a

transplant this year) is doing and what is going on with Leanne,

Joyce and Peggy.

I attempted to sign up to another site that is people who have had

transplants since no-one on this site has answered any of my

questions about transplant med side effects. But I haven't done a

post on it yet either. Right now they have increased my Prograf from

3mg twice a day to 5 mg twice a day and it is the Grisslley Bear of

the rejection meds. I just hope it is working. I have to take 2

Xanax (anti anxiety drug that I call my anti bitch med) every 6 hours

now that the Prograf has been increased and Xanax is an addictive

med, which I am not happy aboout but you have to do what you have to

do to survive. Tomorrow I am being evaluated at CountrySide YMCA by

a Middletown Regional Hospital Physical Therapist to get signed up

for physical therapy to strengthen my muscles which have become

extremely weak since the lung collapse and all those IVs they gave

me. I also intend to join the Y since my lung doc said it was o.k.

for me to go into a pool. I hope to at least get into a water

exercise class at least once a week as I think it would not only help

strengthen my muscles but would be relaxing.

Love and Aloha to all,

Judy - IPF 11/06 - Left Lung Transplant 8/07 - Lung Collapse 11/07

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Judy keep up the good attitude and the amazing strength! I am sorry

no one has answered your questions on the anti-rejection meds

hopefully somebody will. Awesome you got to see your grandkids and

spend some time with them. That was nice of your sn to offer to go

get them!

Hang in there and you are in my thoughts and prayers!

Sandie

>

> , Don't overdo on your new house like I did. Tomorrow will

be

> 8 months since I moved here and I still am not really settled or

> organized. Of course Moving here in May, then a lung transplant in

> Aug and then lung collapse in Nov. has effected my accomplishments.

>

> Right now the prayer request I have is that I can get enough rest

and

> relaxation between now and Jan. 22 when I go back for another

checkup

> at the transplant center. My spiro breathing test was not as good

on

> the 8th as it had been the previous time in Dec. so he has

scheduled

> another bronchoscope and biopsy for the 22nd unless my breathing is

> better. My oximeter says my oxygen level is high enough but I do

> have the SOB feelings; however, I think they are due to my fatigue

> and my stress from the shakiness which I have aquired since they

did

> those 10 days of IV steroids in Nov and then last week increased my

> Prograf (anti rejection med) from 3 mg to 5 mg twice a day. I

meant

> to get to bed by 10 tonight but was feeling too shaky and stressed

so

> decided to request prayer & just this typing has relaxed me. I

still

> haven't done my Christmas cards, but hope to do them this week.

They

> will be Happy New Year Cards and thank yous. I also plan on

writing

> a card to the daughter of the donor of my left lung as I received a

> card from her when I got out of the hospital on Nov. 30th.

>

> Jeff, my oldest son volunteered to go get my 2 grandkids from

> Lafayette and brought them over here New Years weekend so I was

able

> to give them their birthday and Christmas gifts (since I had been

> depressed when their dad let me know Christmas morning that they

were

> not coming over for Christmas because of the 3 hour one way drive)

> and enjoy their visit. Then this weekend their dad and mom brought

> them over and Jeff treated us all to a dinner at a Brazilian

> restaurant on Sat. night & Sun. morning I had my daughter-in-law

and

> my son help me cook brunch as they were planning to go home early

> since 's 17 year old daughters were dog sitting for them and

> wanted to get home early enough to get ready for school the next

day

> plus both & Loren get up very early to go to work. He has an

> hour drive to his construction site where they are installing those

> wind mills that generate electricity & had to be at

Mc's

> at 4 a.m. to open then to Macy's around 9 where she works full

time.

> She gets out of Mc's early enough to go home, eat breakfast

and

> take the kids down their country lane to wait for their school

bus.

> and Loren had been using Nicotine gum and trying to quit

> smoking around the time I had my transplant, but had gone back to

> smoking. Now they claim they haven't somked this year yet and are

> back on the gum.

>

> I haven't been on the computer much because of shaky hands and

still

> having vision problems but would love it if someone would right me

at

> email to my home email (cbayjpw@...) & give me a short run

> down of how people are doing. I tried to call Kerry today but no

> reply. Also I am wondering how the fellow (Greg or who had a

> transplant this year) is doing and what is going on with Leanne,

> Joyce and Peggy.

>

> I attempted to sign up to another site that is people who have had

> transplants since no-one on this site has answered any of my

> questions about transplant med side effects. But I haven't done a

> post on it yet either. Right now they have increased my Prograf

from

> 3mg twice a day to 5 mg twice a day and it is the Grisslley Bear of

> the rejection meds. I just hope it is working. I have to take 2

> Xanax (anti anxiety drug that I call my anti bitch med) every 6

hours

> now that the Prograf has been increased and Xanax is an addictive

> med, which I am not happy aboout but you have to do what you have

to

> do to survive. Tomorrow I am being evaluated at CountrySide YMCA

by

> a Middletown Regional Hospital Physical Therapist to get signed up

> for physical therapy to strengthen my muscles which have become

> extremely weak since the lung collapse and all those IVs they gave

> me. I also intend to join the Y since my lung doc said it was o.k.

> for me to go into a pool. I hope to at least get into a water

> exercise class at least once a week as I think it would not only

help

> strengthen my muscles but would be relaxing.

>

> Love and Aloha to all,

> Judy - IPF 11/06 - Left Lung Transplant 8/07 - Lung Collapse 11/07

>

[Guest guest]

Judy, Joyce and Leanne, I didn't go to bed until 3 AM or so. and I want y'all to know I was praying when I did. God is watching and comforting us at all times we just need to listen and feel His presents. He is SOOO real. I Love y'll so dearly.Keep talking to him Leanne He is listening. Love and Prayers, Peggy  ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up." , Don't overdo on your new house like I did. Tomorrow will be 8 months since I moved here and I still am not really settled or organized. Of course Moving here in May, then a lung transplant in Aug and then lung collapse in Nov. has effected my accomplishments.Right now the prayer request I have is that I can get enough rest and relaxation between now and Jan. 22 when I go back for another checkup at the transplant center. My spiro breathing test was not as good on the 8th as it had been the previous time in Dec. so he has scheduled another bronchoscope and biopsy for the 22nd unless my breathing is better. My oximeter says my oxygen level is high enough but I do have the SOB feelings; however, I think they are due to my fatigue and my stress from the shakiness which I have aquired since they did those 10 days of IV steroids in Nov and then last week increased my Prograf (anti rejection med) from 3 mg to 5 mg twice a day. I meant to get to bed by 10 tonight but was feeling too shaky and stressed so decided to request prayer & just this typing has relaxed me. I still haven't done my Christmas cards, but hope to do them this week. They will be Happy New Year Cards and thank yous. I also plan on writing a card to the daughter of the donor of my left lung as I received a card from her when I got out of the hospital on Nov. 30th.Jeff, my oldest son volunteered to go get my 2 grandkids from Lafayette and brought them over here New Years weekend so I was able to give them their birthday and Christmas gifts (since I had been depressed when their dad let me know Christmas morning that they were not coming over for Christmas because of the 3 hour one way drive) and enjoy their visit. Then this weekend their dad and mom brought them over and Jeff treated us all to a dinner at a Brazilian restaurant on Sat. night & Sun. morning I had my daughter-in-law and my son help me cook brunch as they were planning to go home early since 's 17 year old daughters were dog sitting for them and wanted to get home early enough to get ready for school the next day plus both & Loren get up very early to go to work. He has an hour drive to his construction site where they are installing those wind mills that generate electricity & had to be at Mc's at 4 a.m. to open then to Macy's around 9 where she works full time. She gets out of Mc's early enough to go home, eat breakfast and take the kids down their country lane to wait for their school bus.  and Loren had been using Nicotine gum and trying to quit smoking around the time I had my transplant, but had gone back to smoking. Now they claim they haven't somked this year yet and are back on the gum.I haven't been on the computer much because of shaky hands and still having vision problems but would love it if someone would right me at email to my home email (cbayjpwcinci (DOT) rr.com) & give me a short run down of how people are doing. I tried to call Kerry today but no reply. Also I am wondering how the fellow (Greg or who had a transplant this year) is doing and what is going on with Leanne, Joyce and Peggy.I attempted to sign up to another site that is people who have had transplants since no-one on this site has answered any of my questions about transplant med side effects. But I haven't done a post on it yet either. Right now they have increased my Prograf from 3mg twice a day to 5 mg twice a day and it is the Grisslley Bear of the rejection meds. I just hope it is working. I have to take 2 Xanax (anti anxiety drug that I call my anti bitch med) every 6 hours now that the Prograf has been increased and Xanax is an addictive med, which I am not happy aboout but you have to do what you have to do to survive. Tomorrow I am being evaluated at CountrySide YMCA by a Middletown Regional Hospital Physical Therapist to get signed up for physical therapy to strengthen my muscles which have become extremely weak since the lung collapse and all those IVs they gave me. I also intend to join the Y since my lung doc said it was o.k. for me to go into a pool. I hope to at least get into a water exercise class at least once a week as I think it would not only help strengthen my muscles but would be relaxing.Love and Aloha to all,Judy - IPF 11/06 - Left Lung Transplant 8/07 - Lung Collapse 11/07

[Guest guest]

Judy you are so positive and such an inspiration. Wow I cant imagine

paying that much in postage I guess I would do the same thing then

and buy something there! Take care of yourself!

Sandie

> >

> > , Don't overdo on your new house like I did. Tomorrow will be

> > 8 months since I moved here and I still am not really settled or

> > organized. Of course Moving here in May, then a lung transplant in

> > Aug and then lung collapse in Nov. has effected my

accomplishments.

> >

> > Right now the prayer request I have is that I can get enough rest

> and

> > relaxation between now and Jan. 22 when I go back for another

> checkup

> > at the transplant center. My spiro breathing test was not as good

on

> > the 8th as it had been the previous time in Dec. so he has

scheduled

> > another bronchoscope and biopsy for the 22nd unless my breathing

is

> > better. My oximeter says my oxygen level is high enough but I do

> > have the SOB feelings; however, I think they are due to my fatigue

> > and my stress from the shakiness which I have aquired since they

did

> > those 10 days of IV steroids in Nov and then last week increased

my

> > Prograf (anti rejection med) from 3 mg to 5 mg twice a day. I

meant

> > to get to bed by 10 tonight but was feeling too shaky and

stressed

> so

> > decided to request prayer & just this typing has relaxed me. I

still

> > haven't done my Christmas cards, but hope to do them this week.

They

> > will be Happy New Year Cards and thank yous. I also plan on

writing

> > a card to the daughter of the donor of my left lung as I received

a

> > card from her when I got out of the hospital on Nov. 30th.

> >

> > Jeff, my oldest son volunteered to go get my 2 grandkids from

> > Lafayette and brought them over here New Years weekend so I was

able

> > to give them their birthday and Christmas gifts (since I had been

> > depressed when their dad let me know Christmas morning that they

> were

> > not coming over for Christmas because of the 3 hour one way drive)

> > and enjoy their visit. Then this weekend their dad and mom brought

> > them over and Jeff treated us all to a dinner at a Brazilian

> > restaurant on Sat. night & Sun. morning I had my daughter-in-law

and

> > my son help me cook brunch as they were planning to go home early

> > since 's 17 year old daughters were dog sitting for them and

> > wanted to get home early enough to get ready for school the next

day

> > plus both & Loren get up very early to go to work. He has an

> > hour drive to his construction site where they are installing

those

> > wind mills that generate electricity & had to be at

Mc's

> > at 4 a.m. to open then to Macy's around 9 where she works full

time.

> > She gets out of Mc's early enough to go home, eat breakfast

> and

> > take the kids down their country lane to wait for their school

bus.

> > and Loren had been using Nicotine gum and trying to quit

> > smoking around the time I had my transplant, but had gone back to

> > smoking. Now they claim they haven't somked this year yet and are

> > back on the gum.

> >

> > I haven't been on the computer much because of shaky hands and

still

> > having vision problems but would love it if someone would right

me

> at

> > email to my home email (cbayjpw@) & give me a short run

> > down of how people are doing. I tried to call Kerry today but no

> > reply. Also I am wondering how the fellow (Greg or who had a

> > transplant this year) is doing and what is going on with Leanne,

> > Joyce and Peggy.

> >

> > I attempted to sign up to another site that is people who have had

> > transplants since no-one on this site has answered any of my

> > questions about transplant med side effects. But I haven't done a

> > post on it yet either. Right now they have increased my Prograf

from

> > 3mg twice a day to 5 mg twice a day and it is the Grisslley Bear

of

> > the rejection meds. I just hope it is working. I have to take 2

> > Xanax (anti anxiety drug that I call my anti bitch med) every 6

> hours

> > now that the Prograf has been increased and Xanax is an addictive

> > med, which I am not happy aboout but you have to do what you have

to

> > do to survive. Tomorrow I am being evaluated at CountrySide YMCA

by

> > a Middletown Regional Hospital Physical Therapist to get signed up

> > for physical therapy to strengthen my muscles which have become

> > extremely weak since the lung collapse and all those IVs they gave

> > me. I also intend to join the Y since my lung doc said it was o.k.

> > for me to go into a pool. I hope to at least get into a water

> > exercise class at least once a week as I think it would not only

> help

> > strengthen my muscles but would be relaxing.

> >

> > Love and Aloha to all,

> > Judy - IPF 11/06 - Left Lung Transplant 8/07 - Lung Collapse 11/07

> >

>

[Guest guest]

Hi Judy...you always seem to be in good spirits when I read your posts. I'm sure sorry for all you go through! I don't even mention I too have some trouble sleeping. So many of you on the board have it worse than I.

God's Blessings!

Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there!

Re: 's New House & Judy's Prayer Request

Peggy, Leanne, Joyce and anyone else with sleep problems,The 22nd it will be 5 months since I had my left lung transplant and have had so many nights with so little sleep and so many nights with no sleep thanks to all the steroids. A funny story one night I believe last week was when I did finally get into bed I was going to check my insulin and relax looking at "Its Real Simple" magazine. However, as soon as I leaned against myi pillows I was out, diagonally across the bed, light on, tv on, laid on magagine, didn't check insulin & slept for at least 5 hours 7 when I awoke I spilled a bnag of gingerbread men cookies that I had sat on the bed to have a snack. I ended up vacuuming the crumbs out of my bed that morning and laundered the sheets later. I think that was the night after I had gone to Indy for my followup and had not slep any hours the night before. Trusting God is the key. i trusted him when they wheeled me into the surgery room for the transplant and when I went through the lung collapse the day before Thanksgiving. However, I did feel depressed and axious when the doctor told me on the 8th that he wanted to do another biopsy on me on the 22nd unless my spiro breathing is better that day. Night before last I did get 9 hours of sleep but last night it was 2:30 before I turned out the light and I woke up a couple of times not feeling rested and finally awoke around 8 a.m. & got up. I felt sleepy this morning, but managed to get a few things done here at home (baked some cupcakes to send to my grandkids in HI along with a gingerbread tree that I am going to send them. The gingerbread tree was a Christmas tree kit, but didn't get it down so decided to make it white with red hearts for Valentines day and send it early. Miranda, my 12 yeard old grand daughter from Lafayette put the tree together this past weekend and I will mail it with the cupcakes which I simply sprinkled with red and pink hearts and wrote in red Happy Birthday Maile on one of them as she will be 1 year old on 28 Jan. However, with my shaky hands it isn't easy to read the writing. Oh well, they will enjoy the cupcakes. Now I need to get on line on Toys R Us and find a gift for her in Honolulu that I can order and have my son pick up. I spent $300 in postage for all the gifts I mailed them at Christmas time and am not going to do that anymore. The $300 in postage used ukp all the savings I made by buying items on sale.One other thing I starated doing during my 10 day stay in the hospital after the lung collapse was watch QVC. In the hospital I didn't order anything as I had sent my wallet and credit card home with Jeff. But after I got home I started watching it at night and first thing some mornings and ended up buying a few items. Watching it is o.k. but it can get to be expensive if you start ordering things in the middle of the night when you are on all the meds. I used to be on Ambien, but have been on Lunista since I got home from the transplant on Aug. 30th. I also am on Zyrtec (antihistimine for my allergies) so the combination of Lunista, Zyrtec and Xanax does help me sleep; however, I am quite sure now that I am adicted to Xanax but it is a necessity because of the shakes.My physical therapy evaluation today ended up with him teaching me a number of exercises to do twice a day along with other ones I have been taught and I will be going for the physical therapy appointment twice a week for at least 4 weeks. The good part is that it is within 5 miles of my house and they see people Mon. through Fri. so I can at least get appointments to work around all of my other appointments. I thought today I would start a journal about how many minutes it takes me to do various things, but I didn't have time. There have been days when I didn't even have time or was too shaky to even take a shower even though I have a shower chair. Time for me to log off and finish my dinner. I just noticed how late it is getting.Good luck and good rest to all of you,Love and Aloha,Judy IPF 11/06 Transplant 8/07 Lung Collapse 11/07 butHappy to still be alive :-) in spite of all thesepost transplant side effects> > , Don't overdo on your new house like I did. Tomorrow will be> 8 months since I moved here and I still am not really settled or> organized. Of course Moving here in May, then a lung transplant in> Aug and then lung collapse in Nov. has effected my accomplishments.> > Right now the prayer request I have is that I can get enough rest and> relaxation between now and Jan. 22 when I go back for another checkup> at the transplant center. My spiro breathing test was not as good on> the 8th as it had been the previous time in Dec. so he has scheduled> another bronchoscope and biopsy for the 22nd unless my breathing is> better. My oximeter says my oxygen level is high enough but I do> have the SOB feelings; however, I think they are due to my fatigue> and my stress from the shakiness which I have aquired since they did> those 10 days of IV steroids in Nov and then last week increased my> Prograf (anti rejection med) from 3 mg to 5 mg twice a day. I meant> to get to bed by 10 tonight but was feeling too shaky and stressed so> decided to request prayer & just this typing has relaxed me. I still> haven't done my Christmas cards, but hope to do them this week. They> will be Happy New Year Cards and thank yous. I also plan on writing> a card to the daughter of the donor of my left lung as I received a> card from her when I got out of the hospital on Nov. 30th.> > Jeff, my oldest son volunteered to go get my 2 grandkids from> Lafayette and brought them over here New Years weekend so I was able> to give them their birthday and Christmas gifts (since I had been> depressed when their dad let me know Christmas morning that they were> not coming over for Christmas because of the 3 hour one way drive)> and enjoy their visit. Then this weekend their dad and mom brought> them over and Jeff treated us all to a dinner at a Brazilian> restaurant on Sat. night & Sun. morning I had my daughter-in-law and> my son help me cook brunch as they were planning to go home early> since 's 17 year old daughters were dog sitting for them and> wanted to get home early enough to get ready for school the next day> plus both & Loren get up very early to go to work. He has an> hour drive to his construction site where they are installing those> wind mills that generate electricity & had to be at Mc's> at 4 a.m. to open then to Macy's around 9 where she works full time.> She gets out of Mc's early enough to go home, eat breakfast and> take the kids down their country lane to wait for their school bus.> and Loren had been using Nicotine gum and trying to quit> smoking around the time I had my transplant, but had gone back to> smoking. Now they claim they haven't somked this year yet and are> back on the gum.> > I haven't been on the computer much because of shaky hands and still> having vision problems but would love it if someone would right me at> email to my home email (cbayjpw@...) & give me a short run> down of how people are doing. I tried to call Kerry today but no> reply. Also I am wondering how the fellow (Greg or who had a> transplant this year) is doing and what is going on with Leanne,> Joyce and Peggy.> > I attempted to sign up to another site that is people who have had> transplants since no-one on this site has answered any of my> questions about transplant med side effects. But I haven't done a> post on it yet either. Right now they have increased my Prograf from> 3mg twice a day to 5 mg twice a day and it is the Grisslley Bear of> the rejection meds. I just hope it is working. I have to take 2> Xanax (anti anxiety drug that I call my anti bitch med) every 6 hours> now that the Prograf has been increased and Xanax is an addictive> med, which I am not happy aboout but you have to do what you have to> do to survive. Tomorrow I am being evaluated at CountrySide YMCA by> a Middletown Regional Hospital Physical Therapist to get signed up> for physical therapy to strengthen my muscles which have become> extremely weak since the lung collapse and all those IVs they gave> me. I also intend to join the Y since my lung doc said it was o.k.> for me to go into a pool. I hope to at least get into a water> exercise class at least once a week as I think it would not only help> strengthen my muscles but would be relaxing.> > Love and Aloha to all,> Judy - IPF 11/06 - Left Lung Transplant 8/07 - Lung Collapse 11/07>