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Surgery

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Hello dear group,

It has been a while since I posted, I went on vacation the first two

weeks of August. I come home to the news that Dr. Fuchs at Duke sees

" no csf flow " at all on my latest CINE MRI. This was done on the

Saturday before I left. He recommends surgery.

This is nsg #3, and as far as opinions go. The first 2 saw the

obstruction from the Chiari, but refused to do anything about it.

Through this site, someone recommended Fuchs, and I'm am eternally

grateful. He feels I would definitely feel some relief from my symptoms

if I had the surgery. He is a very conservative surgeon, and that makes

me feel better.

I'm looking for opinions here. From those zipper heads who have been

through this, you have an idea of what lies ahead for me. I'd like to

know your thoughts. He is a Ped's guy, but has done several adults who

suffer from this. He is apparently well versed in the procedures with

adults. I would like to move forward, but the wait to get in touch with

him and to actually get someone to call me back concerns me. I called 2

times yesterday, and no one returned my call. So, should I consider

someone else for the 1) slow response time, and 2) peds.

This venue has been my life saver. It helped me explain what will be

happening to me to my children yesterday, and answer some questions for

myself. I can't begin to thank everyone out there enough.

Maureen in Fl, your posts the last few days have been a special blessing

to me. They've encouraged me so. I hope your reading this, and know

you've really helped someone out there.

Blessings and love to all.

Janet in NC

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