SchaferAutismReport: Study Shows Families' Financial Strain From Autism

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Subject: Study Shows Families' Financial Strain From Autism

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FINANCE

Study Shows Families' Financial Strain From Autism

RESEARCH

Brain Waves Are Window Into Autism Language Woes

Epilepsy Drug, Pregnancy Raise Autism Risk

DOD and CDC: Studies Suggest a Possible Link Between Multiple Vaccines

and Injury

Absence of Evidence

PUBLIC HEALTH

Vaccines: Bad Business for Doctors?

ADVOCACY

Mom Continues Autism Fight

TREATMENT

Patient-Led Drug Trials Defy Medical Establishment

PEOPLE

Sex and the Single Young Man With Autism

EVENTS

Autism One 2009 Conference Overview

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FINANCE

Study Shows Families' Financial Strain

From Autism

The Associated Press is.gd/9KIt

More than half a million U.S. children have

autism with costly health care needs that often put an unprecedented

financial strain on their families, national data show.

Compared with parents whose youngsters have

chronic health care needs but not autism, those with autistic children are

three times more likely to have to quit their jobs or reduce work hours to

care for their kids. They pay more for their kids' health needs, spend more

time providing or arranging for that care, and are more likely to have

money difficulties, the study found.

" This is the first national survey that

looked at the impact on families of having kids with special health care

needs, " said lead author Kogan, a researcher with the

government's Maternal and Child Health Bureau.

The results are from a nationally

representative 2005-06 survey of nearly 40,000 children with special health

care needs. These children have a broad range of chronic conditions, including

physical and mental illness, requiring more extensive than usual medical

care.

A total of 2,088 children with special

health needs had autism, which translates to about 535,000 kids aged 3 to

17 nationwide, the study authors said.

The study appears in December's Pediatrics,

being released Monday.

Autism typically involves poor verbal

communication, repetitive behaviors such as head-banging, and avoidance of

physical or eye contact. Affected children often need many more types of

treatment than kids with other chronic conditions, including speech and

behavior therapy and sometimes medication. Kogan said that may explain the

disproportionate strain on their families.

Jacquie Mace, whose 12-year-old son, Austin,

has autism, said the study presents a " very realistic " picture of

the challenges affected families face.

Mace said she spends " easily $15,000 to

$20,000 out of pocket " yearly on supplies for behavior treatment she

provides for her son.

She's still working to pay off a $7,000 bill

for dental work Austin had last year. He has to be sedated and hospitalized

for dental care because he

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Vol. 12 No.

170 p

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