Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 I also had my 48 week check up. Although my numbers did not increase they are still stable at 51-54% FVC and 34-37% DLCO and walked nearly 500 meters in 6 min @ 2 lpm and sat @ 95 %. THE REAL GOOD NEWS My study nurse and Dr. told me that they are planning on taking the study to the next level. What they called a roll out wich means, The results they recieved were very favorable and they will be giving the real medicine to everyone who was in the study for atleast a year so they can have more safety data for the FDA. After that period when approved by FDA it will be available to anyone for treatment. I think this medicine may be the key to atleast stopping the progression of this disease. Leanne Congrats on the too healthy I can understand the rollercoaster emotions you are going thru Peggy Do we have the next Barbara WA WA in you? Will you still remember me when you get the nobel peace prize. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 That is good news. Lots of studies being conducted, but that would mean at least two advancing, if it happens. The other one being Sildenafil/Revatio/Viagra. > > I also had my 48 week check up. Although my numbers did not increase > they are still stable at 51-54% FVC and 34-37% DLCO and walked nearly > 500 meters in 6 min @ 2 lpm and sat @ 95 %. > > THE REAL GOOD NEWS > My study nurse and Dr. told me that they are planning on taking the > study to the next level. What they called a roll out wich means, The > results they recieved were very favorable and they will be giving the > real medicine to everyone who was in the study for atleast a year so > they can have more safety data for the FDA. After that period when > approved by FDA it will be available to anyone for treatment. I think > this medicine may be the key to atleast stopping the progression of > this disease. > > Leanne Congrats on the too healthy I can understand the rollercoaster > emotions you are going thru > > Peggy Do we have the next Barbara WA WA in you? Will you still > remember me when you get the nobel peace prize. > Quote Link to comment Share on other sites More sharing options...
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