Re: new person, new diagnosis

[Guest guest]

As usual our feeling on you coming here is mixed. We wish you didn't

need to but we welcome you openly. Somewhat similarly, I had the CT's

for lymph nodes but no one picked up on the Fibrosis as they were so

focused on lymph nodes. So my diagnosis came later.

And, congratulations on 2 1/2 years. As bad as this disease is, I'm

sure its going to be easier to deal with than that was. And after

that I'm sure you know your strength and ability to deal so much

better.

We'll wait to hear about your appointment. Remember we're always here

for you.

Bruce Moreland 58 IPF 08/07 Dallas/Plano

>

> Hi folks,

> I'm new here, so be nice. How I got here is an amazing story in

> itself.

> About 6 weeks ago I found myself in ER with an attack of kidney

> stones. Not so unusual, given that I've had kidney stones before

and

> I've had kindeys all my life. When I followed up with my regular

> osteopath a week later she mentioned that the CT of my abdomen

showed

> some swollen lymph glands. She sent me to an oncologist. Part of

> his work up for lymphoma was to do a CT with contrast of my chest

and

> abdomen, as well as a PET scan. Just yesterday I found out that

the

> scans were negative for lymphoma, but that the CT of the chest

showed

> " moderate to severe pulmonary fibrosis " . The oncologist called my

> DO, and this Friday I have an appointment with a good pulmonologist.

> I'm 49. I smoked from the time I was 16 until 1987. I quit for

> many years, and started again in March of 2006, and quit in July of

> 2007. There was a lot of stress in my life during 2006...perhaps

> smoking again was something I should not have done.

> Symptoms? Dry cough and some annoying breathlessness when I do

> heavy lifting or running up a few flights of stairs. I'm 6-1, 270

> pounds, have a few controlled medical broblems and otherwise feel

> simply wonderful.

> I've been a critical care RN for over 25 years and am also an

> ordained Episcopal deacon. I'm a newlywed; Dawn and I have been

> married for 3 months. She's a social worker and student working on

> her PhD in Neuropsychological Traumatology. (Talk about your

obscure

> field of study!) Between us we have four adult children. We live

> with four cats and two Shelties.

> I'm also in recovery. Been clean and sober for 2-1/2 years.

I'm

> a survivor and an optimist with an outrageous and irreverent sense

of

> humor; I have been through crap I wouldn't wish on my worst enemy

(if

> I had any) and through it all have learned that I am made of things

I

> never dreamed of.

> I look forward to learning here. Be good to each other.

> jon+

>

[Guest guest]

Thanks for the pictures too, its always great to put a face to a name!

Sandie

>

> Hi folks,

> I'm new here, so be nice. How I got here is an amazing story in

> itself.

> About 6 weeks ago I found myself in ER with an attack of kidney

> stones. Not so unusual, given that I've had kidney stones before

and

> I've had kindeys all my life. When I followed up with my regular

> osteopath a week later she mentioned that the CT of my abdomen

showed

> some swollen lymph glands. She sent me to an oncologist. Part of

> his work up for lymphoma was to do a CT with contrast of my chest

and

> abdomen, as well as a PET scan. Just yesterday I found out that

the

> scans were negative for lymphoma, but that the CT of the chest

showed

> " moderate to severe pulmonary fibrosis " . The oncologist called my

> DO, and this Friday I have an appointment with a good pulmonologist.

> I'm 49. I smoked from the time I was 16 until 1987. I quit for

> many years, and started again in March of 2006, and quit in July of

> 2007. There was a lot of stress in my life during 2006...perhaps

> smoking again was something I should not have done.

> Symptoms? Dry cough and some annoying breathlessness when I do

> heavy lifting or running up a few flights of stairs. I'm 6-1, 270

> pounds, have a few controlled medical broblems and otherwise feel

> simply wonderful.

> I've been a critical care RN for over 25 years and am also an

> ordained Episcopal deacon. I'm a newlywed; Dawn and I have been

> married for 3 months. She's a social worker and student working on

> her PhD in Neuropsychological Traumatology. (Talk about your

obscure

> field of study!) Between us we have four adult children. We live

> with four cats and two Shelties.

> I'm also in recovery. Been clean and sober for 2-1/2 years.

I'm

> a survivor and an optimist with an outrageous and irreverent sense

of

> humor; I have been through crap I wouldn't wish on my worst enemy

(if

> I had any) and through it all have learned that I am made of things

I

> never dreamed of.

> I look forward to learning here. Be good to each other.

> jon+

>

[Guest guest]

Jon... welcome to our little group. A better bunch you will never find! An answer to any question and support all the time.

Certainly glad your scan for lymphoma is negative and great you could stop smoking again! I was a smoker many years ago, relapsed and then it was three times as hard to quit.

Being an RN you will have a lot of general knowledge to share I'm sure.

Congrats on the marriage. Dawn must be quite a gal to accept what's ahead for the two of you. Keep on keepin' on in your recovery too.

I was dx 3-06 and have been fairly stable since. I have other chronic health problems that currently give me more problems then the IPF. Mostly I have sob to deal with.

Stick around.

From: The Rev. Jon A. Egger

To: Breathe-Support

Sent: Tuesday, January 15, 2008 9:09 AM

Subject: new person, new diagnosis

Hi folks,I'm new here, so be nice. How I got here is an amazing story in itself.About 6 weeks ago I found myself in ER with an attack of kidney stones. Not so unusual, given that I've had kidney stones before and I've had kindeys all my life. When I followed up with my regular osteopath a week later she mentioned that the CT of my abdomen showed some swollen lymph glands. She sent me to an oncologist. Part of his work up for lymphoma was to do a CT with contrast of my chest and abdomen, as well as a PET scan. Just yesterday I found out that the scans were negative for lymphoma, but that the CT of the chest showed "moderate to severe pulmonary fibrosis". The oncologist called my DO, and this Friday I have an appointment with a good pulmonologist.I'm 49. I smoked from the time I was 16 until 1987. I quit for many years, and started again in March of 2006, and quit in July of 2007. There was a lot of stress in my life during 2006...perhaps smoking again was something I should not have done.Symptoms? Dry cough and some annoying breathlessness when I do heavy lifting or running up a few flights of stairs. I'm 6-1, 270 pounds, have a few controlled medical broblems and otherwise feel simply wonderful.I've been a critical care RN for over 25 years and am also an ordained Episcopal deacon. I'm a newlywed; Dawn and I have been married for 3 months. She's a social worker and student working on her PhD in Neuropsychological Traumatology. (Talk about your obscure field of study!) Between us we have four adult children. We live with four cats and two Shelties.I'm also in recovery. Been clean and sober for 2-1/2 years. I'm a survivor and an optimist with an outrageous and irreverent sense of humor; I have been through crap I wouldn't wish on my worst enemy (if I had any) and through it all have learned that I am made of things I never dreamed of.I look forward to learning here. Be good to each other.jon+

[Guest guest]

Jon. Welcome to the "air family". With

your nursing background you will be helping us!

This PF diagnosis is new and probably difficult to handle for everyone.

You have found the right place for your questions and for expressing

any thing at all!!

Z fibriotic NSIP/05

Z

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

Potter,

reader,carousel lover and MomMom to

Darah

“I’m gonna

be iron like a lion in Zion” Bob Marley

The Rev. Jon A. Egger wrote:

Hi folks,

I'm new here, so be nice. How I got here is an amazing story in

itself.

About 6 weeks ago I found myself in ER with an attack of kidney

stones. Not so unusual, given that I've had kidney stones before and

I've had kindeys all my life. When I followed up with my regular

osteopath a week later she mentioned that the CT of my abdomen showed

some swollen lymph glands. She sent me to an oncologist. Part of

his work up for lymphoma was to do a CT with contrast of my chest and

abdomen, as well as a PET scan. Just yesterday I found out that the

scans were negative for lymphoma, but that the CT of the chest showed

"moderate to severe pulmonary fibrosis". The oncologist called my

DO, and this Friday I have an appointment with a good pulmonologist.

I'm 49. I smoked from the time I was 16 until 1987. I quit for

many years, and started again in March of 2006, and quit in July of

2007. There was a lot of stress in my life during 2006...perhaps

smoking again was something I should not have done.

Symptoms? Dry cough and some annoying breathlessness when I do

heavy lifting or running up a few flights of stairs. I'm 6-1, 270

pounds, have a few controlled medical broblems and otherwise feel

simply wonderful.

I've been a critical care RN for over 25 years and am also an

ordained Episcopal deacon. I'm a newlywed; Dawn and I have been

married for 3 months. She's a social worker and student working on

her PhD in Neuropsychological Traumatology. (Talk about your obscure

field of study!) Between us we have four adult children. We live

with four cats and two Shelties.

I'm also in recovery. Been clean and sober for 2-1/2 years. I'm

a survivor and an optimist with an outrageous and irreverent sense of

humor; I have been through crap I wouldn't wish on my worst enemy (if

I had any) and through it all have learned that I am made of things I

never dreamed of.

I look forward to learning here. Be good to each other.

jon+

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[Guest guest]

Hey Peggy... did you notice Jon started his post with "so be nice"? he must have been reading for awhile. lol

Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there!

Re: new person, new diagnosis

Hi Jon, You do have an interesting story and a pretty bride. I am so sorry you have the need of our group. I posted a smarty reply earlier. Sometimes I just can't help myself.

Anyhow feel free to ask anything you want. When your screaming crying time comes we're here. Vent anyway you would like. We may be picking your brain too.

Welcome. God Bless.

Love and Prayers, Peggy

ipf 6/04 Florida

"Worry looks around,

Sorry looks back,

Faith looks up."

Hi folks,I'm new here, so be nice. How I got here is an amazing story in itself.About 6 weeks ago I found myself in ER with an attack of kidney stones. Not so unusual, given that I've had kidney stones before and I've had kindeys all my life. When I followed up with my regular osteopath a week later she mentioned that the CT of my abdomen showed some swollen lymph glands. She sent me to an oncologist. Part of his work up for lymphoma was to do a CT with contrast of my chest and abdomen, as well as a PET scan. Just yesterday I found out that the scans were negative for lymphoma, but that the CT of the chest showed "moderate to severe pulmonary fibrosis". The oncologist called my DO, and this Friday I have an appointment with a good pulmonologist.I'm 49. I smoked from the time I was 16 until 1987. I quit for many years, and started again in March of 2006, and quit in July of 2007. There was a lot of stress in my life during 2006...perhaps smoking again was something I should not have done.Symptoms? Dry cough and some annoying breathlessness when I do heavy lifting or running up a few flights of stairs. I'm 6-1, 270 pounds, have a few controlled medical broblems and otherwise feel simply wonderful.I've been a critical care RN for over 25 years and am also an ordained Episcopal deacon. I'm a newlywed; Dawn and I have been married for 3 months. She's a social worker and student working on her PhD in Neuropsychological Traumatology. (Talk about your obscure field of study!) Between us we have four adult children. We live with four cats and two Shelties.I'm also in recovery. Been clean and sober for 2-1/2 years. I'm a survivor and an optimist with an outrageous and irreverent sense of humor; I have been through crap I wouldn't wish on my worst enemy (if I had any) and through it all have learned that I am made of things I never dreamed of.I look forward to learning here. Be good to each other.jon+

[Guest guest]

I don't know how to be anything other than nice.. LOL  i wish. but I try. LOL Love and Prayers, Peggy  ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up." Hey Peggy...  did you notice Jon started his post with "so be nice"?  he must have been reading for awhile. lolMama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Re: new person, new diagnosisHi Jon, You do have an interesting story and a pretty bride. I am so sorry you have the need of our group. I posted a smarty reply earlier. Sometimes I just can't help myself. Anyhow feel free to ask anything you want. When your screaming crying time comes we're here. Vent anyway you would like. We may be picking your brain too.Welcome. God Bless.Love and Prayers, Peggy  ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up."Hi folks,I'm new here, so be nice. How I got here is an amazing story in itself.About 6 weeks ago I found myself in ER with an attack of kidney stones. Not so unusual, given that I've had kidney stones before and I've had kindeys all my life. When I followed up with my regular osteopath a week later she mentioned that the CT of my abdomen showed some swollen lymph glands. She sent me to an oncologist. Part of his work up for lymphoma was to do a CT with contrast of my chest and abdomen, as well as a PET scan. Just yesterday I found out that the scans were negative for lymphoma, but that the CT of the chest showed "moderate to severe pulmonary fibrosis". The oncologist called my DO, and this Friday I have an appointment with a good pulmonologist.I'm 49. I smoked from the time I was 16 until 1987. I quit for many years, and started again in March of 2006, and quit in July of 2007. There was a lot of stress in my life during 2006...perhaps smoking again was something I should not have done.Symptoms? Dry cough and some annoying breathlessness when I do heavy lifting or running up a few flights of stairs. I'm 6-1, 270 pounds, have a few controlled medical broblems and otherwise feel simply wonderful.I've been a critical care RN for over 25 years and am also an ordained Episcopal deacon. I'm a newlywed; Dawn and I have been married for 3 months. She's a social worker and student working on her PhD in Neuropsychological Traumatology. (Talk about your obscure field of study!) Between us we have four adult children. We live with four cats and two Shelties.I'm also in recovery. Been clean and sober for 2-1/2 years. I'm a survivor and an optimist with an outrageous and irreverent sense of humor; I have been through crap I wouldn't wish on my worst enemy (if I had any) and through it all have learned that I am made of things I never dreamed of.I look forward to learning here. Be good to each other.jon+

[Guest guest]

Peggy... keep trying. You're doin' nice nicely!

Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there!

Re: new person, new diagnosis

Hi Jon, You do have an interesting story and a pretty bride. I am so sorry you have the need of our group. I posted a smarty reply earlier. Sometimes I just can't help myself.

Anyhow feel free to ask anything you want. When your screaming crying time comes we're here. Vent anyway you would like. We may be picking your brain too.

Welcome. God Bless.

Love and Prayers, Peggy

ipf 6/04 Florida

"Worry looks around,

Sorry looks back,

Faith looks up."

Hi folks,I'm new here, so be nice. How I got here is an amazing story in itself.About 6 weeks ago I found myself in ER with an attack of kidney stones. Not so unusual, given that I've had kidney stones before and I've had kindeys all my life. When I followed up with my regular osteopath a week later she mentioned that the CT of my abdomen showed some swollen lymph glands. She sent me to an oncologist. Part of his work up for lymphoma was to do a CT with contrast of my chest and abdomen, as well as a PET scan. Just yesterday I found out that the scans were negative for lymphoma, but that the CT of the chest showed "moderate to severe pulmonary fibrosis". The oncologist called my DO, and this Friday I have an appointment with a good pulmonologist.I'm 49. I smoked from the time I was 16 until 1987. I quit for many years, and started again in March of 2006, and quit in July of 2007. There was a lot of stress in my life during 2006...perhaps smoking again was something I should not have done.Symptoms? Dry cough and some annoying breathlessness when I do heavy lifting or running up a few flights of stairs. I'm 6-1, 270 pounds, have a few controlled medical broblems and otherwise feel simply wonderful.I've been a critical care RN for over 25 years and am also an ordained Episcopal deacon. I'm a newlywed; Dawn and I have been married for 3 months. She's a social worker and student working on her PhD in Neuropsychological Traumatology. (Talk about your obscure field of study!) Between us we have four adult children. We live with four cats and two Shelties.I'm also in recovery. Been clean and sober for 2-1/2 years. I'm a survivor and an optimist with an outrageous and irreverent sense of humor; I have been through crap I wouldn't wish on my worst enemy (if I had any) and through it all have learned that I am made of things I never dreamed of.I look forward to learning here. Be good to each other.jon+