Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Gwynne, thanks for the Stuffed Penguin! Bruce, I know I said I'll go to work tommorrow, which I was planning on doing, now I'm debating if I should go to work...my body feels so tired and I have this huge headache at the moment which wasn't there before. At the hospital they said it's pretty normal after the Oxygen treatments. ---- Original Message ---- To: Breathe-Support Sent: Fri, 18 Jan 2008 9:33 pm Subject: Re: Irene, tests, and Ladies Gwynne: Oh, I forgot about lifting the arms and the pain to the shoulders.....that was bad. I had to zone my mind out, the pain from that was so strong and its not part of the test or what is suppose to be hard. There has to be some way to avoid that. (I suffered through a frozen right shoulder and went through the manipulation procedure a few years ago...but only time its bad now is for those tests. Ut oh....I'm in trouble....I went out. But I bundled up to record limits and never walked more than 30 feet from car to building. I've never dressed in so many clothes before in my life. So, maybe you won't scold me too bad. As to Irene, she got home quickly and is her bubbly self and, as one would expect, fully intending to go to work tomorrow. She promised not to do anything stupid though. For more see my next post, Profiles in Courage. > > > I hate it that our sweet Irene had an episode that > landed her in the hospital. Everything is SUCH a > struggle for the poor girl. But you're right, Bruce, > she has incredible strength and humor. Wish I could > take her a stuffed penguin right now! > > # & $*, I forgot chat night too. Duh. At least I wasn't > the only one! > > I feel a bit like I've been run over by a truck. The > fluoroscopy was a cinch, except for the expiration > which is sort of like doing a spiro, which makes me > cough. The VQ scan was sort of a beast, partly > because the injection hurt, and because during the > breathing part of the test - through a mask - I really > had trouble drawing a breath. The doc told me it was > because the liter flow wasn't as high as I am used to, > but I don't know if I believe that. Three minutes of that > was a llloonnngg time.Then the HRCT was painful > because of my bum right shoulder (broke it in 1999 > and now have impingement syndrome). Being on my > back with that arm above my head hurts. For the part > where you have to lie on your stomach, we had to turn > up my 02 so I could breathe. Anyway, I'm glad it's over. > I've read your posts and I'm going to crawl in bed > now with a movie, if I make it that long. And I'll be > thinking of Joyce, and what a BEAR it is that she's > having so much trouble just being comfortable in bed. > > Bruce, > Please don't go out into this VERY cold air until we > know you're completely over the pneumonia. Okay? > > Brud, > I remember only too well the look on my local > pulmonologist's face when he saw my first x-rays > three and a half years ago. It's sobering, isn't it? > I hope your PFTs next Monday lend some useful > information, and that the docs can figure out > what's going on soon. I agree totally that the > waiting is THE hardest part. Ten and a half months > waiting for new lungs is the toughest wait I've > ever had. > > Deon and Jane, > How cool would that be if you two get to meet?! > > Zena, > I want you to promise that you'll also drop in > on me the next time you're near Fort Worth. :-) > > Cyndi, > It's good that you and your dad got some good > news. You deserve it. > > , > Dearheart, I just didn't want to sound pretentious > to newbies, but you may call me Lady G or anything > else (nearly) your heart desires - I'm all for affection > and appreciation, both of which I have for you! > > Sher, > Here's a gentle correction for you: 's not "skilly", > she's "scilly" (silent c), as in the Isles of Scilly. Thought > your sharp mind would want to know, since I know > you care about our wondergirl in Oz. :-) > > Hugs and blessings, > Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas > Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Gwynne, Certainly will >> > I hate it that our sweet Irene had an episode that> landed her in the hospital. Everything is SUCH a> struggle for the poor girl. But you're right, Bruce,> she has incredible strength and humor. Wish I could> take her a stuffed penguin right now!> > # & $*, I forgot chat night too. Duh. At least I wasn't> the only one!> > I feel a bit like I've been run over by a truck. The> fluoroscopy was a cinch, except for the expiration> which is sort of like doing a spiro, which makes me> cough. The VQ scan was sort of a beast, partly> because the injection hurt, and because during the> breathing part of the test - through a mask - I really> had trouble drawing a breath. The doc told me it was> because the liter flow wasn't as high as I am used to,> but I don't know if I believe that. Three minutes of that> was a llloonnngg time.Then the HRCT was painful> because of my bum right shoulder (broke it in 1999> and now have impingement syndrome). Being on my> back with that arm above my head hurts. For the part> where you have to lie on your stomach, we had to turn> up my 02 so I could breathe. Anyway, I'm glad it's over.> I've read your posts and I'm going to crawl in bed> now with a movie, if I make it that long. And I'll be> thinking of Joyce, and what a BEAR it is that she's> having so much trouble just being comfortable in bed.> > Bruce,> Please don't go out into this VERY cold air until we> know you're completely over the pneumonia. Okay?> > Brud,> I remember only too well the look on my local> pulmonologist's face when he saw my first x-rays> three and a half years ago. It's sobering, isn't it?> I hope your PFTs next Monday lend some useful> information, and that the docs can figure out> what's going on soon. I agree totally that the> waiting is THE hardest part. Ten and a half months> waiting for new lungs is the toughest wait I've> ever had.> > Deon and Jane,> How cool would that be if you two get to meet?!> > Zena,> I want you to promise that you'll also drop in> on me the next time you're near Fort Worth. :-)> > Cyndi,> It's good that you and your dad got some good> news. You deserve it.> > ,> Dearheart, I just didn't want to sound pretentious> to newbies, but you may call me Lady G or anything> else (nearly) your heart desires - I'm all for affection> and appreciation, both of which I have for you!> > Sher,> Here's a gentle correction for you: 's not "skilly",> she's "scilly" (silent c), as in the Isles of Scilly. Thought> your sharp mind would want to know, since I know> you care about our wondergirl in Oz. :-)> > Hugs and blessings,> Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Hi Z, hows this for being up in the middle of the night.. One of those three hours and WAKE UP things.I am so tired. How are you? Love and Prayers, Peggyipf 6/04Worry looks around.Sorry looks back,Faith looks up. Gwynne, Certainly will >> > I hate it that our sweet Irene had an episode that> landed her in the hospital. Everything is SUCH a> struggle for the poor girl. But you're right, Bruce,> she has incredible strength and humor. Wish I could> take her a stuffed penguin right now!> > # & $*, I forgot chat night too. Duh. At least I wasn't> the only one!> > I feel a bit like I've been run over by a truck. The> fluoroscopy was a cinch, except for the expiration> which is sort of like doing a spiro, which makes me> cough. The VQ scan was sort of a beast, partly> because the injection hurt, and because during the> breathing part of the test - through a mask - I really> had trouble drawing a breath. The doc told me it was> because the liter flow wasn't as high as I am used to,> but I don't know if I believe that. Three minutes of that> was a llloonnngg time.Then the HRCT was painful> because of my bum right shoulder (broke it in 1999> and now have impingement syndrome). Being on my> back with that arm above my head hurts. For the part> where you have to lie on your stomach, we had to turn> up my 02 so I could breathe. Anyway, I'm glad it's over.> I've read your posts and I'm going to crawl in bed> now with a movie, if I make it that long. And I'll be> thinking of Joyce, and what a BEAR it is that she's> having so much trouble just being comfortable in bed.> > Bruce,> Please don't go out into this VERY cold air until we> know you're completely over the pneumonia. Okay?> > Brud,> I remember only too well the look on my local> pulmonologist's face when he saw my first x-rays> three and a half years ago. It's sobering, isn't it?> I hope your PFTs next Monday lend some useful> information, and that the docs can figure out> what's going on soon. I agree totally that the> waiting is THE hardest part. Ten and a half months> waiting for new lungs is the toughest wait I've> ever had.> > Deon and Jane,> How cool would that be if you two get to meet?!> > Zena,> I want you to promise that you'll also drop in> on me the next time you're near Fort Worth. :-)> > Cyndi,> It's good that you and your dad got some good> news. You deserve it.> > ,> Dearheart, I just didn't want to sound pretentious> to newbies, but you may call me Lady G or anything> else (nearly) your heart desires - I'm all for affection> and appreciation, both of which I have for you!> > Sher,> Here's a gentle correction for you: 's not "skilly",> she's "scilly" (silent c), as in the Isles of Scilly. Thought> your sharp mind would want to know, since I know> you care about our wondergirl in Oz. :-)> > Hugs and blessings,> Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 I find that when I start cleaning, I keep doing 'just one more thing' and can find that I've been going solidly for a couple of hours, then I'm really tired. So to stop me doing that I set the timer for 15 mins. It's also a good trick for a daunting task, as it is surprising how much you can get done in 15 mins. Knowing that you're only going to do 15 mins and then have a cuppa stops the whole task getting overwhelming. You know you're not going to do the job in 15 mins, 15 mins isn't a big deal and you've probably made a pretty good dent in the job so that when you've had your cuppa, watched a film or something, the daunting job doesn't look quite so bad! One of those silly things that gets the house work done, especially if I'm having an apathetic day. I'm glad you managed some more sleep Love Ze xx> > >> > >> > > I hate it that our sweet Irene had an episode that> > > landed her in the hospital. Everything is SUCH a> > > struggle for the poor girl. But you're right, Bruce,> > > she has incredible strength and humor. Wish I could> > > take her a stuffed penguin right now!> > >> > > # & $*, I forgot chat night too. Duh. At least I wasn't> > > the only one!> > >> > > I feel a bit like I've been run over by a truck. The> > > fluoroscopy was a cinch, except for the expiration> > > which is sort of like doing a spiro, which makes me> > > cough. The VQ scan was sort of a beast, partly> > > because the injection hurt, and because during the> > > breathing part of the test - through a mask - I really> > > had trouble drawing a breath. The doc told me it was> > > because the liter flow wasn't as high as I am used to,> > > but I don't know if I believe that. Three minutes of that> > > was a llloonnngg time.Then the HRCT was painful> > > because of my bum right shoulder (broke it in 1999> > > and now have impingement syndrome). Being on my> > > back with that arm above my head hurts. For the part> > > where you have to lie on your stomach, we had to turn> > > up my 02 so I could breathe. Anyway, I'm glad it's over.> > > I've read your posts and I'm going to crawl in bed> > > now with a movie, if I make it that long. And I'll be> > > thinking of Joyce, and what a BEAR it is that she's> > > having so much trouble just being comfortable in bed.> > >> > > Bruce,> > > Please don't go out into this VERY cold air until we> > > know you're completely over the pneumonia. Okay?> > >> > > Brud,> > > I remember only too well the look on my local> > > pulmonologist's face when he saw my first x-rays> > > three and a half years ago. It's sobering, isn't it?> > > I hope your PFTs next Monday lend some useful> > > information, and that the docs can figure out> > > what's going on soon. I agree totally that the> > > waiting is THE hardest part. Ten and a half months> > > waiting for new lungs is the toughest wait I've> > > ever had.> > >> > > Deon and Jane,> > > How cool would that be if you two get to meet?!> > >> > > Zena,> > > I want you to promise that you'll also drop in> > > on me the next time you're near Fort Worth. :-)> > >> > > Cyndi,> > > It's good that you and your dad got some good> > > news. You deserve it.> > >> > > ,> > > Dearheart, I just didn't want to sound pretentious> > > to newbies, but you may call me Lady G or anything> > > else (nearly) your heart desires - I'm all for affection> > > and appreciation, both of which I have for you!> > >> > > Sher,> > > Here's a gentle correction for you: 's not "skilly",> > > she's "scilly" (silent c), as in the Isles of Scilly. Thought> > > your sharp mind would want to know, since I know> > > you care about our wondergirl in Oz. :-)> > >> > > Hugs and blessings,> > > Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Gwynne i hope you get lots of rest and recover from those tests! Take care of you and snuggle up to that little Misha! Sandie > > > I hate it that our sweet Irene had an episode that > landed her in the hospital. Everything is SUCH a > struggle for the poor girl. But you're right, Bruce, > she has incredible strength and humor. Wish I could > take her a stuffed penguin right now! > > # & $*, I forgot chat night too. Duh. At least I wasn't > the only one! > > I feel a bit like I've been run over by a truck. The > fluoroscopy was a cinch, except for the expiration > which is sort of like doing a spiro, which makes me > cough. The VQ scan was sort of a beast, partly > because the injection hurt, and because during the > breathing part of the test - through a mask - I really > had trouble drawing a breath. The doc told me it was > because the liter flow wasn't as high as I am used to, > but I don't know if I believe that. Three minutes of that > was a llloonnngg time.Then the HRCT was painful > because of my bum right shoulder (broke it in 1999 > and now have impingement syndrome). Being on my > back with that arm above my head hurts. For the part > where you have to lie on your stomach, we had to turn > up my 02 so I could breathe. Anyway, I'm glad it's over. > I've read your posts and I'm going to crawl in bed > now with a movie, if I make it that long. And I'll be > thinking of Joyce, and what a BEAR it is that she's > having so much trouble just being comfortable in bed. > > Bruce, > Please don't go out into this VERY cold air until we > know you're completely over the pneumonia. Okay? > > Brud, > I remember only too well the look on my local > pulmonologist's face when he saw my first x-rays > three and a half years ago. It's sobering, isn't it? > I hope your PFTs next Monday lend some useful > information, and that the docs can figure out > what's going on soon. I agree totally that the > waiting is THE hardest part. Ten and a half months > waiting for new lungs is the toughest wait I've > ever had. > > Deon and Jane, > How cool would that be if you two get to meet?! > > Zena, > I want you to promise that you'll also drop in > on me the next time you're near Fort Worth. :-) > > Cyndi, > It's good that you and your dad got some good > news. You deserve it. > > , > Dearheart, I just didn't want to sound pretentious > to newbies, but you may call me Lady G or anything > else (nearly) your heart desires - I'm all for affection > and appreciation, both of which I have for you! > > Sher, > Here's a gentle correction for you: 's not " skilly " , > she's " scilly " (silent c), as in the Isles of Scilly. Thought > your sharp mind would want to know, since I know > you care about our wondergirl in Oz. :-) > > Hugs and blessings, > Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Oh I so know the feeling of that Zena! Gosh to just be able to clean the whole house in one day would be amazing! Sandie > > > > > > > > > > > > I hate it that our sweet Irene had an episode that > > > > landed her in the hospital. Everything is SUCH a > > > > struggle for the poor girl. But you're right, Bruce, > > > > she has incredible strength and humor. Wish I could > > > > take her a stuffed penguin right now! > > > > > > > > # & $*, I forgot chat night too. Duh. At least I wasn't > > > > the only one! > > > > > > > > I feel a bit like I've been run over by a truck. The > > > > fluoroscopy was a cinch, except for the expiration > > > > which is sort of like doing a spiro, which makes me > > > > cough. The VQ scan was sort of a beast, partly > > > > because the injection hurt, and because during the > > > > breathing part of the test - through a mask - I really > > > > had trouble drawing a breath. The doc told me it was > > > > because the liter flow wasn't as high as I am used to, > > > > but I don't know if I believe that. Three minutes of that > > > > was a llloonnngg time.Then the HRCT was painful > > > > because of my bum right shoulder (broke it in 1999 > > > > and now have impingement syndrome). Being on my > > > > back with that arm above my head hurts. For the part > > > > where you have to lie on your stomach, we had to turn > > > > up my 02 so I could breathe. Anyway, I'm glad it's over. > > > > I've read your posts and I'm going to crawl in bed > > > > now with a movie, if I make it that long. And I'll be > > > > thinking of Joyce, and what a BEAR it is that she's > > > > having so much trouble just being comfortable in bed. > > > > > > > > Bruce, > > > > Please don't go out into this VERY cold air until we > > > > know you're completely over the pneumonia. Okay? > > > > > > > > Brud, > > > > I remember only too well the look on my local > > > > pulmonologist's face when he saw my first x-rays > > > > three and a half years ago. It's sobering, isn't it? > > > > I hope your PFTs next Monday lend some useful > > > > information, and that the docs can figure out > > > > what's going on soon. I agree totally that the > > > > waiting is THE hardest part. Ten and a half months > > > > waiting for new lungs is the toughest wait I've > > > > ever had. > > > > > > > > Deon and Jane, > > > > How cool would that be if you two get to meet?! > > > > > > > > Zena, > > > > I want you to promise that you'll also drop in > > > > on me the next time you're near Fort Worth. :-) > > > > > > > > Cyndi, > > > > It's good that you and your dad got some good > > > > news. You deserve it. > > > > > > > > , > > > > Dearheart, I just didn't want to sound pretentious > > > > to newbies, but you may call me Lady G or anything > > > > else (nearly) your heart desires - I'm all for affection > > > > and appreciation, both of which I have for you! > > > > > > > > Sher, > > > > Here's a gentle correction for you: 's not " skilly " , > > > > she's " scilly " (silent c), as in the Isles of Scilly. Thought > > > > your sharp mind would want to know, since I know > > > > you care about our wondergirl in Oz. :-) > > > > > > > > Hugs and blessings, > > > > Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Zena, What a great idea! I am defiantly going to use it. Thanks- Sarcoid/PF 3/2006 California Re: Irene, tests, and Ladies I find that when I start cleaning, I keep doing 'just one more thing' and can find that I've been going solidly for a couple of hours, then I'm really tired. So to stop me doing that I set the timer for 15 mins. It's also a good trick for a daunting task, as it is surprising how much you can get done in 15 mins. Knowing that you're only going to do 15 mins and then have a cuppa stops the whole task getting overwhelming. You know you're not going to do the job in 15 mins, 15 mins isn't a big deal and you've probably made a pretty good dent in the job so that when you've had your cuppa, watched a film or something, the daunting job doesn't look quite so bad! One of those silly things that gets the house work done, especially if I'm having an apathetic day. I'm glad you managed some more sleep Love Ze xx> > >> > >> > > I hate it that our sweet Irene had an episode that> > > landed her in the hospital. Everything is SUCH a> > > struggle for the poor girl. But you're right, Bruce,> > > she has incredible strength and humor. Wish I could> > > take her a stuffed penguin right now!> > >> > > # & $*, I forgot chat night too. Duh. At least I wasn't> > > the only one!> > >> > > I feel a bit like I've been run over by a truck. The> > > fluoroscopy was a cinch, except for the expiration> > > which is sort of like doing a spiro, which makes me> > > cough. The VQ scan was sort of a beast, partly> > > because the injection hurt, and because during the> > > breathing part of the test - through a mask - I really> > > had trouble drawing a breath. The doc told me it was> > > because the liter flow wasn't as high as I am used to,> > > but I don't know if I believe that. Three minutes of that> > > was a llloonnngg time.Then the HRCT was painful> > > because of my bum right shoulder (broke it in 1999> > > and now have impingement syndrome). Being on my> > > back with that arm above my head hurts. For the part> > > where you have to lie on your stomach, we had to turn> > > up my 02 so I could breathe. Anyway, I'm glad it's over.> > > I've read your posts and I'm going to crawl in bed> > > now with a movie, if I make it that long. And I'll be> > > thinking of Joyce, and what a BEAR it is that she's> > > having so much trouble just being comfortable in bed.> > >> > > Bruce,> > > Please don't go out into this VERY cold air until we> > > know you're completely over the pneumonia. Okay?> > >> > > Brud,> > > I remember only too well the look on my local> > > pulmonologist' s face when he saw my first x-rays> > > three and a half years ago. It's sobering, isn't it?> > > I hope your PFTs next Monday lend some useful> > > information, and that the docs can figure out> > > what's going on soon. I agree totally that the> > > waiting is THE hardest part. Ten and a half months> > > waiting for new lungs is the toughest wait I've> > > ever had.> > >> > > Deon and Jane,> > > How cool would that be if you two get to meet?!> > >> > > Zena,> > > I want you to promise that you'll also drop in> > > on me the next time you're near Fort Worth. :-)> > >> > > Cyndi,> > > It's good that you and your dad got some good> > > news. You deserve it.> > >> > > ,> > > Dearheart, I just didn't want to sound pretentious> > > to newbies, but you may call me Lady G or anything> > > else (nearly) your heart desires - I'm all for affection> > > and appreciation, both of which I have for you!> > >> > > Sher,> > > Here's a gentle correction for you: 's not "skilly",> > > she's "scilly" (silent c), as in the Isles of Scilly. Thought> > > your sharp mind would want to know, since I know> > > you care about our wondergirl in Oz. :-)> > >> > > Hugs and blessings,> > > Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas> > >> >> Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Gwynnie... how embarrassing. Thanks for the update on scilly/skilly. Hell, I don't speak "down-under". Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Irene, tests, and Ladies I hate it that our sweet Irene had an episode thatlanded her in the hospital. Everything is SUCH astruggle for the poor girl. But you're right, Bruce,she has incredible strength and humor. Wish I couldtake her a stuffed penguin right now!# & $*, I forgot chat night too. Duh. At least I wasn'tthe only one!I feel a bit like I've been run over by a truck. Thefluoroscopy was a cinch, except for the expirationwhich is sort of like doing a spiro, which makes mecough. The VQ scan was sort of a beast, partlybecause the injection hurt, and because during thebreathing part of the test - through a mask - I reallyhad trouble drawing a breath. The doc told me it wasbecause the liter flow wasn't as high as I am used to,but I don't know if I believe that. Three minutes of thatwas a llloonnngg time.Then the HRCT was painfulbecause of my bum right shoulder (broke it in 1999and now have impingement syndrome). Being on myback with that arm above my head hurts. For the partwhere you have to lie on your stomach, we had to turnup my 02 so I could breathe. Anyway, I'm glad it's over.I've read your posts and I'm going to crawl in bednow with a movie, if I make it that long. And I'll bethinking of Joyce, and what a BEAR it is that she'shaving so much trouble just being comfortable in bed.Bruce,Please don't go out into this VERY cold air until weknow you're completely over the pneumonia. Okay?Brud,I remember only too well the look on my localpulmonologist's face when he saw my first x-raysthree and a half years ago. It's sobering, isn't it?I hope your PFTs next Monday lend some usefulinformation, and that the docs can figure outwhat's going on soon. I agree totally that thewaiting is THE hardest part. Ten and a half monthswaiting for new lungs is the toughest wait I'veever had.Deon and Jane,How cool would that be if you two get to meet?!Zena,I want you to promise that you'll also drop inon me the next time you're near Fort Worth. :-)Cyndi,It's good that you and your dad got some goodnews. You deserve it.,Dearheart, I just didn't want to sound pretentiousto newbies, but you may call me Lady G or anythingelse (nearly) your heart desires - I'm all for affectionand appreciation, both of which I have for you!Sher,Here's a gentle correction for you: 's not "skilly",she's "scilly" (silent c), as in the Isles of Scilly. Thoughtyour sharp mind would want to know, since I knowyou care about our wondergirl in Oz. :-)Hugs and blessings,Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Gwynnie...sorry I didn't include my wishes for this to be a good restful day. Those tests are sometimes harder than other times. Be good to you today! Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Irene, tests, and Ladies I hate it that our sweet Irene had an episode thatlanded her in the hospital. Everything is SUCH astruggle for the poor girl. But you're right, Bruce,she has incredible strength and humor. Wish I couldtake her a stuffed penguin right now!# & $*, I forgot chat night too. Duh. At least I wasn'tthe only one!I feel a bit like I've been run over by a truck. Thefluoroscopy was a cinch, except for the expirationwhich is sort of like doing a spiro, which makes mecough. The VQ scan was sort of a beast, partlybecause the injection hurt, and because during thebreathing part of the test - through a mask - I reallyhad trouble drawing a breath. The doc told me it wasbecause the liter flow wasn't as high as I am used to,but I don't know if I believe that. Three minutes of thatwas a llloonnngg time.Then the HRCT was painfulbecause of my bum right shoulder (broke it in 1999and now have impingement syndrome). Being on myback with that arm above my head hurts. For the partwhere you have to lie on your stomach, we had to turnup my 02 so I could breathe. Anyway, I'm glad it's over.I've read your posts and I'm going to crawl in bednow with a movie, if I make it that long. And I'll bethinking of Joyce, and what a BEAR it is that she'shaving so much trouble just being comfortable in bed.Bruce,Please don't go out into this VERY cold air until weknow you're completely over the pneumonia. Okay?Brud,I remember only too well the look on my localpulmonologist's face when he saw my first x-raysthree and a half years ago. It's sobering, isn't it?I hope your PFTs next Monday lend some usefulinformation, and that the docs can figure outwhat's going on soon. I agree totally that thewaiting is THE hardest part. Ten and a half monthswaiting for new lungs is the toughest wait I'veever had.Deon and Jane,How cool would that be if you two get to meet?!Zena,I want you to promise that you'll also drop inon me the next time you're near Fort Worth. :-)Cyndi,It's good that you and your dad got some goodnews. You deserve it.,Dearheart, I just didn't want to sound pretentiousto newbies, but you may call me Lady G or anythingelse (nearly) your heart desires - I'm all for affectionand appreciation, both of which I have for you!Sher,Here's a gentle correction for you: 's not "skilly",she's "scilly" (silent c), as in the Isles of Scilly. Thoughtyour sharp mind would want to know, since I knowyou care about our wondergirl in Oz. :-)Hugs and blessings,Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Welcome Home! > > > > > > I hate it that our sweet Irene had an episode that > > landed her in the hospital. Everything is SUCH a > > struggle for the poor girl. But you're right, Bruce, > > she has incredible strength and humor. Wish I could > > take her a stuffed penguin right now! > > > > # & $*, I forgot chat night too. Duh. At least I wasn't > > the only one! > > > > I feel a bit like I've been run over by a truck. The > > fluoroscopy was a cinch, except for the expiration > > which is sort of like doing a spiro, which makes me > > cough. The VQ scan was sort of a beast, partly > > because the injection hurt, and because during the > > breathing part of the test - through a mask - I really > > had trouble drawing a breath. The doc told me it was > > because the liter flow wasn't as high as I am used to, > > but I don't know if I believe that. Three minutes of that > > was a llloonnngg time.Then the HRCT was painful > > because of my bum right shoulder (broke it in 1999 > > and now have impingement syndrome). Being on my > > back with that arm above my head hurts. For the part > > where you have to lie on your stomach, we had to turn > > up my 02 so I could breathe. Anyway, I'm glad it's over. > > I've read your posts and I'm going to crawl in bed > > now with a movie, if I make it that long. And I'll be > > thinking of Joyce, and what a BEAR it is that she's > > having so much trouble just being comfortable in bed. > > > > Bruce, > > Please don't go out into this VERY cold air until we > > know you're completely over the pneumonia. Okay? > > > > Brud, > > I remember only too well the look on my local > > pulmonologist's face when he saw my first x-rays > > three and a half years ago. It's sobering, isn't it? > > I hope your PFTs next Monday lend some useful > > information, and that the docs can figure out > > what's going on soon. I agree totally that the > > waiting is THE hardest part. Ten and a half months > > waiting for new lungs is the toughest wait I've > > ever had. > > > > Deon and Jane, > > How cool would that be if you two get to meet?! > > > > Zena, > > I want you to promise that you'll also drop in > > on me the next time you're near Fort Worth. :-) > > > > Cyndi, > > It's good that you and your dad got some good > > news. You deserve it. > > > > , > > Dearheart, I just didn't want to sound pretentious > > to newbies, but you may call me Lady G or anything > > else (nearly) your heart desires - I'm all for affection > > and appreciation, both of which I have for you! > > > > Sher, > > Here's a gentle correction for you: 's not " skilly " , > > she's " scilly " (silent c), as in the Isles of Scilly. Thought > > your sharp mind would want to know, since I know > > you care about our wondergirl in Oz. :-) > > > > Hugs and blessings, > > Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas > > > > > > > > Meet the new AOL.ca. Free radio, music, videos, news & entertainment †" with a Canadian perspective. > > > > > > > > > > > > > ______________________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment †" with a Canadian perspective. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Thank you Bruce 103 days to go lol! ---- Original Message ---- To: Breathe-Support Sent: Sun, 20 Jan 2008 9:09 pm Subject: Re: Irene, tests, and Ladies Welcome Home! > > > > > > I hate it that our sweet Irene had an episode that > > landed her in the hospital. Everything is SUCH a > > struggle for the poor girl. But you're right, Bruce, > > she has incredible strength and humor. Wish I could > > take her a stuffed penguin right now! > > > > # & $*, I forgot chat night too. Duh. At least I wasn't > > the only one! > > > > I feel a bit like I've been run over by a truck. The > > fluoroscopy was a cinch, except for the expiration > > which is sort of like doing a spiro, which makes me > > cough. The VQ scan was sort of a beast, partly > > because the injection hurt, and because during the > > breathing part of the test - through a mask - I really > > had trouble drawing a breath. The doc told me it was > > because the liter flow wasn't as high as I am used to, > > but I don't know if I believe that. Three minutes of that > > was a llloonnngg time.Then the HRCT was painful > > because of my bum right shoulder (broke it in 1999 > > and now have impingement syndrome). Being on my > > back with that arm above my head hurts. For the part > > where you have to lie on your stomach, we had to turn > > up my 02 so I could breathe. Anyway, I'm glad it's over. > > I've read your posts and I'm going to crawl in bed > > now with a movie, if I make it that long. And I'll be > > thinking of Joyce, and what a BEAR it is that she's > > having so much trouble just being comfortable in bed. > > > > Bruce, > > Please don't go out into this VERY cold air until we > > know you're completely over the pneumonia. Okay? > > > > Brud, > > I remember only too well the look on my local > > pulmonologist's face when he saw my first x-rays > > three and a half years ago. It's sobering, isn't it? > > I hope your PFTs next Monday lend some useful > > information, and that the docs can figure out > > what's going on soon. I agree totally that the > > waiting is THE hardest part. Ten and a half months > > waiting for new lungs is the toughest wait I've > > ever had. > > > > Deon and Jane, > > How cool would that be if you two get to meet?! > > > > Zena, > > I want you to promise that you'll also drop in > > on me the next time you're near Fort Worth. :-) > > > > Cyndi, > > It's good that you and your dad got some good > > news. You deserve it. > > > > , > > Dearheart, I just didn't want to sound pretentious > > to newbies, but you may call me Lady G or anything > > else (nearly) your heart desires - I'm all for affection > > and appreciation, both of which I have for you! > > > > Sher, > > Here's a gentle correction for you: 's not "skilly", > > she's "scilly" (silent c), as in the Isles of Scilly. Thought > > your sharp mind would want to know, since I know > > you care about our wondergirl in Oz. :-) > > > > Hugs and blessings, > > Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas > > > > > > > > Meet the new AOL.ca. Free radio, music, videos, news & entertainment â€" with a Canadian perspective. > > > > > > > > > > > > > __________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment â€" with a Canadian perspective. > Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
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