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[Guest guest]

Joyce,

What a bummer that your bottle froze up.

It's not 10 degrees here today - more like

34 - but my nose is a disaster. Wish that

weren't such a typical side effect of dealing

with all this.

Somebody told me that the egg-crate type

mattresses for h. beds are comfy, but I

am clueless. Wish there were something I

could do to make you more comfortable.

I'm hoping that things like nice music,

good movies, eating truffles, and neckrubs

from Lucian will help in the meantime.

Bruce,

There IS an instance when it's feasible to want

to use a portable in your own home instead of

hooking up directly to the liquid reservoir: when

you're using a power chair. Those wheels are SO

easily caught up in tubing that it simplifies life

to use a portable when you're doing your

wheelies.

Gang,

The other day I said that an Esophagram is the

same thing as Flouroscopy. Found out that

isn't true. One is focused on the esophagus

and the other on the diaphragm. I'll find out

tomorrow afternoon the other main differences.

I'm having three radiology procedures done then,

so I'm planning on being pooped for the weekend.

Tina,

Going through a tx evaluation in the first place

can elicit many different kinds of feelings, and

now you're having to face a whole different type

of reality. It sounds like you have peace and have

accepted things for what they are. I hope so,

because that's vital to getting the most out of life

no matter what stage we're in, whether we're listed

or not. But I find that I process the same information

differently at different stages of illness (that's just

me), so remember --- Venting 'R' Us.

Hugs and blessings,

Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas