Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Bruce, I love my Mattress Genie too! Isn't it great? Beth in NC age 48 Fibrotic NSIP 06/06 Re: tests Overall, Protonix works the poorest of the inhibitors. Now, for some people its the one that works best. But if its not working a change might be in order. Nexium is shown to work best and Prilosec Second. Of course, depending on insurance, Nexium is the most expensive. Often it is cheaper to get the equivalent of Prilosec OTC over the counter. Note: 20 mg of Prilosec generally is considered equal to about 40 mg of Nexium. I would definitely get checked and then see if a change is in order.For any wondering why the hospitals use Protonix so much, I've been told that they get it free in an effort to try to get patients to start using it. Oh and I just had someone help me set up my Mattress Genie.....oh my. I love it. > > > > >> > > > > I think the insomnia so many of us have is due to> > > > > stress, depression, and fear; prednisone or other> > > > > meds or combinations of meds; oxygen deprivation> > > > > for some who don't realize they need more; sleep> > > > > disorders; late-evening eating; caffeine (including> > > > > chocolate); and pain and discomfort from all kinds> > > > > of physical conditions. Also, some people rest and> > > > > nap so much during the day that they simply aren't> > > > > sleepy at night.> > > > > > > > > > Sandie,> > > > > It's good that you have a CT scheduled next week.> > > > > That should yield some important information. You> > > > > still need to see a pulmonoligist for chronic or> > > > > prolonged shortness of breath.> > > > > > > > > > The tests I'm having Fri. are:> > > > > 1. Flouroscope, or esophagram - to see how well the> > > > > diaphragm is working, or in my case to confirm that> > > > > my meds are in fact controlling the reflux disease.> > > > > If it isn't, I'll probably get taken off the list.> > > > > 2. VQ scan - I honestly don't even remember from> > > > > the first one, but Bruce will know.> > > > > 3. HRCT (high resolution CT scan) of my lungs - to> > > > > show status or progression of my IPF> > > > > > > > > > I'm trying to get double-listed at two centers, and> > > > > one center wants all my tests to be within a year> > > > > old. So I'm having to repeat some things. It took> > > > > a month to get my chart from one center to the> > > > > other, and it was 14 items short of being complete.> > > > > grrrr. My appointment out-of-town is Feb. 1, so> > > > > now we're in a hurry to repeat those tests before> > > > > then. On the other hand, I'm lucky that they aren't> > > > > going to make me go through the entire transplant> > > > > evaluation there, which some centers would do.> > > > > > > > > > I know where ville is. I'm glad you had good> > > > > memories there.> > > > > > > > > > Jon A.,> > > > > It sounds like you're ahead of the game in terms of> > > > > the courage it takes to deal with this nasty disease.> > > > > My IPF was also discovered "by accident" - such a> > > > > huge kick in the gut. It's great that you quit smoking.> > > > > Congratulations on your marriage and on finding this> > > > > site, which is one of the best places to be when> > > > > you need support, knowledge, and caring friends.> > > > > I'm sorry you're sick, but welcome aboard.> > > > > > > > > > Lou,> > > > > Oh goody! You got Miss . I know how much> > > > > that will mean to you - I'm sure you've fallen in> > > > > love already. Enjoy the new baby!> > > > > > > > > > Joyce,> > > > > Yes, I've been jumping through hoops for 3 years,> > > > > and I don't plan to stop now! I hate it for us who> > > > > have SO much trouble doing the simplest of things.> > > > > Thank you, dear one, for your loving words of> > > > > encouragement.> > > > > > > > > > Bruce,> > > > > Great to hear that your doctor appointment went> > > > > well. He sounds like a good physician and a> > > > > caring person. Good for you for keepin' on> > > > > keepin' on! That's what it takes, my friend.> > > > > You'll fare so much better with a doctor you> > > > > feel comfortable with. I do hope you won't> > > > > have to get another CT for a while - omg you've> > > > > had so many!!!!> > > > > > > > > > Hugs and blessings,> > > > > Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Hi Beth, Well it looks like NO motor home.. It would be about 3000. a week.. choke, choke. I only wish..So we will be getting a SUV. something big and comfy. Thats a long trip for a small car. I love my car but the seats justdon't give you wiggle room..lol We will work all this out.. says he wants to get a hummer..right.. i ask if he is going to pick us up and put us in..lol he is just not right..lol Love and Prayers, Peggy ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up." Bruce,I love my Mattress Genie too! Isn't it great? Beth in NC age 48 Fibrotic NSIP 06/06 Re: testsOverall, Protonix works the poorest of the inhibitors. Now, for some people its the one that works best. But if its not working a change might be in order. Nexium is shown to work best and Prilosec Second. Of course, depending on insurance, Nexium is the most expensive. Often it is cheaper to get the equivalent of Prilosec OTC over the counter. Note: 20 mg of Prilosec generally is considered equal to about 40 mg of Nexium. I would definitely get checked and then see if a change is in order.For any wondering why the hospitals use Protonix so much, I've been told that they get it free in an effort to try to get patients to start using it. Oh and I just had someone help me set up my Mattress Genie.....oh my. I love it. > > > > >> > > > > I think the insomnia so many of us have is due to> > > > > stress, depression, and fear; prednisone or other> > > > > meds or combinations of meds; oxygen deprivation> > > > > for some who don't realize they need more; sleep> > > > > disorders; late-evening eating; caffeine (including> > > > > chocolate); and pain and discomfort from all kinds> > > > > of physical conditions. Also, some people rest and> > > > > nap so much during the day that they simply aren't> > > > > sleepy at night.> > > > > > > > > > Sandie,> > > > > It's good that you have a CT scheduled next week.> > > > > That should yield some important information. You> > > > > still need to see a pulmonoligist for chronic or> > > > > prolonged shortness of breath.> > > > > > > > > > The tests I'm having Fri. are:> > > > > 1. Flouroscope, or esophagram - to see how well the> > > > > diaphragm is working, or in my case to confirm that> > > > > my meds are in fact controlling the reflux disease.> > > > > If it isn't, I'll probably get taken off the list.> > > > > 2. VQ scan - I honestly don't even remember from> > > > > the first one, but Bruce will know.> > > > > 3. HRCT (high resolution CT scan) of my lungs - to> > > > > show status or progression of my IPF> > > > > > > > > > I'm trying to get double-listed at two centers, and> > > > > one center wants all my tests to be within a year> > > > > old. So I'm having to repeat some things. It took> > > > > a month to get my chart from one center to the> > > > > other, and it was 14 items short of being complete.> > > > > grrrr. My appointment out-of-town is Feb. 1, so> > > > > now we're in a hurry to repeat those tests before> > > > > then. On the other hand, I'm lucky that they aren't> > > > > going to make me go through the entire transplant> > > > > evaluation there, which some centers would do.> > > > > > > > > > I know where ville is. I'm glad you had good> > > > > memories there.> > > > > > > > > > Jon A.,> > > > > It sounds like you're ahead of the game in terms of> > > > > the courage it takes to deal with this nasty disease.> > > > > My IPF was also discovered "by accident" - such a> > > > > huge kick in the gut. It's great that you quit smoking.> > > > > Congratulations on your marriage and on finding this> > > > > site, which is one of the best places to be when> > > > > you need support, knowledge, and caring friends.> > > > > I'm sorry you're sick, but welcome aboard.> > > > > > > > > > Lou,> > > > > Oh goody! You got Miss . I know how much> > > > > that will mean to you - I'm sure you've fallen in> > > > > love already. Enjoy the new baby!> > > > > > > > > > Joyce,> > > > > Yes, I've been jumping through hoops for 3 years,> > > > > and I don't plan to stop now! I hate it for us who> > > > > have SO much trouble doing the simplest of things.> > > > > Thank you, dear one, for your loving words of> > > > > encouragement.> > > > > > > > > > Bruce,> > > > > Great to hear that your doctor appointment went> > > > > well. He sounds like a good physician and a> > > > > caring person. Good for you for keepin' on> > > > > keepin' on! That's what it takes, my friend.> > > > > You'll fare so much better with a doctor you> > > > > feel comfortable with. I do hope you won't> > > > > have to get another CT for a while - omg you've> > > > > had so many!!!!> > > > > > > > > > Hugs and blessings,> > > > > Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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