Re: 3-6 months my bro could have died..explanation

[Guest guest]

I just had to add that I,too strongly agree with the positive ,assertive

stance that is espousing. I,too, almost died prior to my

surgery.... therefore my choice was somewhat different then many

here...live or die??? Hmmmm...that was a pretty easy one for me.

I do however feel that logic would dictate that if there is a negative

progression occurring in symptoms, the odds are not great that this will

right itself without surgical intervention. And I ,personally,would not

have wanted to wait until the symptoms were irreversible..... In my case,

I WAS fortunate and have led a quite normal, active life for the 10 years

since my decompression.

I'm not trying to " pick on " anyone.. but I felt badly that it appeared

that MANY people were getting on 's case... and I question whether

this is fair. Yes, there is a chance of complications from surgery...

this can be minimized by research and finding a Dr. with knowledge and

experience in this area... not just one that happens to be near by. I

also believe that the " complications " of living in daily pain and danger

are a real concern too. The weighing of these has to be a very personal

decision......

Sorry for sounding " preachy " , but I do feel strongly about this.........

Best wishes to all,

Sally R...ACM... decompression '91.... Hydro.... VP shunt.... playing

tennis in Bethlehem,Pa <g>

jason beckler wrote:

> Ok people,

> i have recieved about 100 emails on why or how could have my bro

> died from this......First...your brain is not suppose to be in your

> neck(his whole cerebellum(sp) was in his neck cutting off blood and

> spinal fluid to the rest of his brain. when he

> sneezed,coughed,laughed hard or any jerky movements he would pass out

> for several minutes.(thats not normal) Second...after the surgery

> which at the time there were only about 5 or 6 NSG's doing the

> surgery the doc had never seen someone like him that was that far

> along in ACM. Before surgery my bro could not see(he was legally

> blind),could not walk(without help or a walker),could not understand

> him when he talked...he had a host of other symptoms and i'm sure

> most of us have them too. After the surgery he was almost

> normal...almost 20/20 vision,walks fine(wabbles a little) speech is

> fine. the host of other symptoms are all pretty much gone especially

> the headaches!...Now he owns and runs the most successful tattoo and

> body peircing studio in north louisiana! Third...those of you that

> have made lifestyle adjustments because you are scared of surgery or

> don't think you need it....just wait till you are like my brother

> was...then we will wait 3-6 months after that point and i'll keep my

> eye on the obituaries.

> I don't mean to be a crab this morning, but i got so many emails

> where people are not going to have the surgery because they are

> scared....AGAIN...It is not normal to have your brain being sucked

> down into your neck!!!!!....there is hope and surgery and hope after

> surgery that you will be somewhat normal again....YES there are those

> that have had complications after surgery...and i may be one of

> those,but i will bet my bottom dollar i won't.

> The road less traveled will make all the difference....Don't make

> lifestyle adjustments for a defect that can be corrected...everything

> we do has a risk involved, but do you want to appease this defect?

> Lets be realistic...people with cancer have surgery...people with

> heart,lung,liver,problems ect. have surgery.....people with ACM need

> and do have surgery....and i will too.

>

> We Will WIN,

>

>

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