Re: Re: BIO-MEDICAL INTERVENTION

[Guest guest]

Thank you.

We did have him tested and it indicated no issues. We were informed it was a test to determine whether the gluten/casein passed the blood brain barrier. Interesting test.

He has a mild allergy to casein (not part of the above test but was an allergy test), which appears to present as eczema after eating processed cheeses (cheetos, cheezits, doritos, the yucky cheese that comes with crackers in a package) and a lot of yogurt. We try to limit or rotate them.

I am sure some really hardcore biomedial people would say to remove them.

Re: BIO-MEDICAL INTERVENTIONTo: sList@ yahoogroups. comDate: Friday, August 15, 2008, 12:07 PM

Hello MAUREEN,The subject is not controversial here, many of us are doing bio med.I would recommend you start GFCF diet immediately. You have nothing to lose and everything to gain. Your child sounds like one of the ones that might benefit most.Steve> I am going to bring up a very controversial topic , I hope no one is > offended .. I am very interested in bio-medical intervention . I have > been researching it and it makes absolute sense to me ..Before we ever > thought our some might be on the spectrum we knew he was a sick kid . > Tons of allergies , eczema , chronic ear infections and viral > infections, always stuffy , constant redness and puffiness around the > eyes , constant nose bleeds and G.I issues . We have consulted many > physicians and they just tell us its normal and that he will grow out > of it . We even had him tested for allergies ( a very obvious allergic > child) and he tested negative for everything. Yet in the mean time my > child is miserable . Does anyone here have any experience with > intergrative medicine ? If so can you guide us in what we can do for > our son ?> > NO MORE ZYRTEC!! ( my new mantra)>

Get the MapQuest Toolbar. Directions, Traffic, Gas Prices More!

[Guest guest]

Actually, I don’t think it’s so terrible that your

son is not GFCF. Neither is mine. Neither are a lot of children

with autism, probably more not on the diet than are.

From: sList

[mailto:sList ] On Behalf Of Behavioranalysis@...

Sent: Tuesday, August 19, 2008 3:11 PM

To: sList

Subject: Re: Re: BIO-MEDICAL INTERVENTION

You can have your son tested to

see whether or not he needs to be on the GFCF diet.

In some cases results can even indicate he may only need to be GF or CF.

Re:

Re: BIO-MEDICAL INTERVENTION

I do not see a DAN doctor yet, but I am very

interested . My sons belly gets bloated but he is never really constipated , I

dont know what it could be ?

Today was my sons first day in school ( mainstream

3-k) and he came home saying he had a cupcake ..... After practically beating

it into these people that he is GFCF , they gave him a cupcake ... I told them

just to give him what I send for him and nothing else (just to keep it

easy) . The bad thing is that sometimes my son will say that he did

something he saw someone else do because he inverts pronouns and uses some

language incorrectly , but I can not be sure . Just thought I would vent

my rage. Do you know anywhere I can find some good GFCF refrencing for his teacher.

& nbs

p;

Maureen

Re: BIO-MEDICAL INTERVENTION

To: sList@ yahoogroups. com

Date: Friday, August 15, 2008, 12:07 PM

Hello MAUREEN,

The subject is not controversial here, many of us are doing bio med.

I would recommend you start GFCF diet immediately. You have nothing

to lose and everything to gain. Your child sounds like one of the

ones that might benefit most.

Steve

> I am going to bring up a very controversial topic , I hope no one

is

> offended .. I am very interested in bio-medical intervention . I

have

> been researching it and it makes absolute sense to me ..Before we

ever

> thought our some might be on the spectrum we knew he was a sick

kid .

> Tons of allergies , eczema , chronic ear infections and viral

> infections, always stuffy , constant redness and puffiness around

the

> eyes , constant nose bleeds and G.I issues . We have consulted many

> physicians and they just tell us its normal and that he will grow

out

> of it . We even had him tested for allergies ( a very obvious

allergic

> child) and he tested negative for everything. Yet in the mean time

my

> child is miserable . Does anyone here have any experience with

> intergrative medicine ? If so can you guide us in what we can do

for

> our son ?

>

> NO MORE ZYRTEC!! ( my new mantra)

>

Get

the MapQuest Toolbar. Directions, Traffic, Gas Prices More!

[Guest guest]

GFCF is not for every child nor every family...GF had no impact on my son, and as an infant he did have milk allergies as evidenced by chronic ear infections..last sip of cow's milk equated with no more ear infection.so we were CF for a long time, These days he will occassionally have pizza or some other cheese based food, and can handle it. The fact that he can go into a pizza store or Mc's and order food like every other (NT) child is a wonderful thing...he can go to family parties and eat with his peers at the gathereing. Every child responds differently and every family has to find a way to balance itself..We need to be comfortable with the choices we make for our children...we are all just trying to figure out what works....

--------- Re: BIO-MEDICAL INTERVENTION

To: sList@ yahoogroups. com

Date: Friday, August 15, 2008, 12:07 PM

Hello MAUREEN,

The subject is not controversial here, many of us are doing bio med.

I would recommend you start GFCF diet immediately. You have nothing

to lose and everything to gain. Your child sounds like one of the

ones that might benefit most.

Steve

> I am going to bring up a very controversial topic , I hope no one

is

> offended .. I am very interested in bio-medical intervention . I

have

> been researching it and it makes absolute sense to me ..Before we

ever

> thought our some might be on the spectrum we knew he was a sick

kid .

> Tons of allergies , eczema , chronic ear infections and viral

> infections, always stuffy , constant redness and puffiness around

the

> eyes , constant nose bleeds and G.I issues . We have consulted many

> physicians and they just tell us its normal and that he will grow

out

> of it . We even had him tested for allergies ( a very obvious

allergic

> child) and he tested negative for everything. Yet in the mean time

my

> child is miserable . Does anyone here have any experience with

> intergrative medicine ? If so can you guide us in what we can do

for

> our son ?

>

> NO MORE ZYRTEC!! ( my new mantra)

>

Get

the MapQuest Toolbar. Directions, Traffic, Gas Prices More!

[Guest guest]

We are in the first stages of this . Pretty much eliminating Gluten and Casein for at least 3 month and watching him very closely . We can not afford a DAN doc just yet , so we are learning as much as we can and giving everything a chance . As long as it does not hurt him , there is a possibility it could help him .

After 3 months I would like to try to incorporate some casein and then gluten and see how he does . I know for a fact this diet has helped him be more attentive and his speech has improved tremendously in just a few weeks .

My son is in a mainstream private pre-school so he does not have an IEP .

Ian never had symptoms of major G.I issues , maybe just when he was a baby . The worst I have noticed is a puffed up belly at times, but he never really has diarrhea or constipation and I was able to potty train quite easily . I am actually beginning to think that he may be allergic to corn , he is very a-topic with terrible eczema , red puffy eyes , rhinitis .... Does anyone have a child that does not have G.I issues and is obviously very a-topic ? What do you do for your child?

Since going to school my son seems to be very anxious and he is echoing again ( delayed echoing), which he has not done in a long time . He mainly just repeats full conversations between two other people or an event that stuck in his mind . What can I do about this ??? It is really odd how he does it because he is not directly talking to anyone he is repeating all this to himself, by himself . It almost seems like he is trying to figure out how people work.

( My little martian child) , I so desperately want him to be able to make sense of things without having to research every social interaction he has . He will dwell on these sort of things for weeks . Sometimes weeks will go by and he will echo a conversation he had echoed weeks before . Does anyone have any advice for us ?? How can we make school an easier place to understand?

Maureen

Re: BIO-MEDICAL INTERVENTIONTo: sList@ yahoogroups. comDate: Friday, August 15, 2008, 12:07 PM

Hello MAUREEN,The subject is not controversial here, many of us are doing bio med.I would recommend you start GFCF diet immediately. You have nothing to lose and everything to gain. Your child sounds like one of the ones that might benefit most.Steve> I am going to bring up a very controversial topic , I hope no one is > offended .. I am very interested in bio-medical intervention . I have > been researching it and it makes absolute sense to me ..Before we ever > thought our some might be on the spectrum we knew he was a sick kid . > Tons of allergies , eczema , chronic ear infections and viral > infections, always stuffy , constant redness and puffiness around the > eyes , constant nose bleeds and G.I issues . We have consulted many > physicians and they just tell us its normal and that he will grow out > of it . We even had

him tested for allergies ( a very obvious allergic > child) and he tested negative for everything. Yet in the mean time my > child is miserable . Does anyone here have any experience with > intergrative medicine ? If so can you guide us in what we can do for > our son ?> > NO MORE ZYRTEC!! ( my new mantra)>

[Guest guest]

Yes, that was helpful…thanks.

From:

sList [mailto:sList ] On Behalf

Of celesteleo2725

Sent: Saturday, August 23, 2008 9:01 AM

To: sList

Subject: Re: BIO-MEDICAL INTERVENTION

IgE testing is covered by most insurances, but

IgG testing is not,

even Great Plains does not take Blue cross blue shield for allergy

testing. I know taht some parents did bill the insurance for the

testing, when it was through sage or alletess and they only have to

pay a little copayment.

IgG testing is the test that will determine the food sensitivities,

meaning if there is protein of any foods taht are transpassing the

wall on the intestines and going into the bloodstream IgG testing

will detect that, most of the time the food allergies are not

detectable to the eyes, the children will not get a physical

reactions when they take the food, but they will have a distended

belly on times, dark circles around the eyes, stomachache, they will

get more lethargic, have a sticky white/yellowish coating on their

tongue (that most pediatrician will confuse with candida, it happened

to my son with the soy), or this foods will affect the children's

behaviors.

An IgE reaction is what is call an allergy, meaning if the child eats

that type of food will get a rash, or a swollen tongue or lips or an

anaphilactic reaction.

I think taht an IgG food allergy testing is really good for anyone

starting on the GfCf diet or any other diet modifications becuase a

lot of parents replace the cow's milk with almond or soy and the

child is sometimes is more sensitive to these to foods than teh cow's

milk or the will replace the gluten with corn or almond or rice and

the child may have a corn sensitivity, specially if they have red

cheeks, dry skin, hyperactivity because they may have yeast.

Once again, the way you can do the testing is calling the specialty

labs and asking for a kit, being that you need to draw blood from the

child you must ask the pediatrician office if they will sign the

requicision form and do the draw blood at their office. Regular labs

like oracle, labcorp or quest do not have IgG testing, they only have

IgE. At the office we do have the test kits and we can draw the

blood also if anyone is interested.

Hope this helps

Luciana

> >

> > Maureen,

> >

> > The test you can do to check for the gluten and casein allergies

> can

> > be done with a blood draw and at the office where I work, BodyMed

> > with Dr Zeno we can do it for $7 each.

> > Great Plains only does the urine for the casein and gluten

> peptides,

> > we work with them also, but I think taht for the situation you

are

> > on, Allettes lab is going to be better, adn as I said before, the

> > price to check for gluten and casein will be only $14.

> > Give me a call to the office, we can help you and Dr Zeno can see

> > your child and you can pay for the consultation little by little,

> it

> > is only $300. Also most of the initial testing can be covered by

> > insurance, even medicaid.

> >

> > You can contact me at (954)584-3198

> >

> > Luciana

>

[Guest guest]

Biggest issues are inability to attend and focus (more because

she has her own agenda - if she really wanted to converse or complete a task

– she could) and opposition/non compliance – again because she has

her own agenda. Communication is delayed but she can converse.

I think it is just hard for all of us to figure this out.

As parents, you want to leave no stone unturned but when you think you have

tried all you can, there is always another treatment or something

you haven’t and you feel compelled to do it – after all, this is

your baby. You always hope that then next thing will be it , so you spend

a little more time and a little more money only to feel the heartbreak of no

results once again. It is just frustrating that we don’t have the

answers we need to heal our children. Im off on a rant. And

actually, my daughter seems to be doing well at this point but I just want so

bad for her to succeed – as we all do. Just wish I could have that magic

pill.

Thanks for hearing me. Ill check out the Feingold diet

online…think we looked at it before but just wasn’t there at the time.

Not sure I am now either but testing seems a little easier – that’s

why I was exploring it. I appreciate your help – you really seem to

have a wealth of knowledge. J

From: sList

[mailto:sList ] On Behalf Of badillo9@...

Sent: Saturday, August 23, 2008 11:05 PM

To: sList

Subject: Re: Re: BIO-MEDICAL INTERVENTION

In a message dated 8/23/2008 12:12:53 A.M. Eastern Daylight Time,

thecohanes@... writes:

I feel like I am pulling ay straws trying to find the reasons

for my daughters behavior

What kind of behavior is your child having? You might want to

check out the Feingold Diet. It is very effective for children extremely

reactive to phenols, dyes, chemicals, etc.

Badillo

It's only a deal if it's where you want to go. Find your

travel deal here.

[Guest guest]

Biggest issues are inability to attend and focus (more because she has her own agenda - if she really wanted to converse or complete a task – she could) and opposition/non compliance – again because she has her own agenda.

This is classical behavior caused by yeast overgrowth. Put her on a really good probiotic - like Klaire Labs, Kirkman Labs - I like the Klaire Therabiotic complete because it has many different strains at 25 billion microorganism. Try and get her to have more protein instead of carbs so her sugar levels are not increasing. The protein helps with brain functioning - for instance - start the morning with a protein shake like JayRobb which is really clean (egg or whey) - Vitamin Shoppe or Tunies is cheaper than Wholefoods. The protein sustains rather than causing the sugar to elevate and then drop so the sugar craving starts again because of the drop in energy level. The protein also helps with keeping kids focused. She might need a protein enzyme (proteolytic enzymes) to absorb and metabolize the protein which you can give to her at dinner. Protein bars are nice substitutes for cookies etc. Cliff Builder Bar has 20gm of protein per bar. In addition to the probiotic and increased protein, Chromium GTF or Chromium Picolinate will help stabilize the blood sugar levels and stop the sugar and carb cravings. Plus you need to get something for the decrease the yeast preferably in a liquid so you can control the amount with the drops. If she starts having melt downs, it means that there's too much dieoff and you need to slow down and give less. Start with three to five drops everyday. You'll probably need two probiotics a day to clean up the dieoff. Over a period of time you will see improvement - the issue is you can't rush eradicating yeast because your child will become impossible to live with.

You can check to see if the healthfood store has a yeast/ Candida tincture or contact Dr. LeGunn's Office at 561 417-8383 and ask for Yeastaway. They can mail it to you as well (Boca Raton location) Dr. LeGunn also has the Klaire Labs probiotic.

You will most definitely see a difference in her with the reduction in yeast overgrowth. Plus Dr. LeGunn has a great homeopathic like the Bach Flower Rescue Remedy called "Emotional Trauma" - a few drops calms them down right away when they get in that defiant mode.

Just as a baseline...you would know if you need the Feingold Diet if your child is very reactive to chemicals...for instance. The behaviors are fine and then the child has a gatorade with all that chemical dye and all of a sudden the behavior dramatically changes and deteriorates. Some children with dyes can't even write their name anymore. Doris Rapp's book on "Is This My Child" explains exactly what happens in these circumstances. These type of kids do really well on the Feingold Diet.

It's only a deal if it's where you want to go. Find your travel deal here.

[Guest guest]

It sounds to me that your daughter is in need of some good ABA

Therapy. If she is already getting ABA maybe she needs more. We all would like

to have a magic pill. It would solve so many problems, not only the infliction

but also all the problems that it causes. You need to seek scientifically based

procedures, otherwise, the magic pills you try may be placebos only. Placebos

can be expensive.

I have seen a baby progress normally and for some unknown reason

stops somewhere around 18 months. Even more heartbreaking is to see him

regress. I can remember every time we pulled out the camera and pointed it at

him, he would put on this big smile. That stopped. The words he had, he lost. I

think it is this regression that bothers me the most.

There is a real need to lead with your head and not your heart,

even as difficult that might seem.

From:

sList [mailto:sList ] On Behalf

Of Cohane

Sent: Sunday, August 24, 2008 10:31 PM

To: sList

Subject: RE: Re: BIO-MEDICAL INTERVENTION

Biggest issues are inability to attend

and focus (more because she has her own agenda - if she really wanted to

converse or complete a task – she could) and opposition/non compliance

– again because she has her own agenda. Communication is delayed

but she can converse.

I think it is just hard for all of us to

figure this out. As parents, you want to leave no stone unturned but when

you think you have tried all you can, there is always another

treatment or something you haven’t and you feel compelled to do it

– after all, this is your baby. You always hope that then next

thing will be it , so you spend a little more time and a little more money only

to feel the heartbreak of no results once again. It is just frustrating

that we don’t have the answers we need to heal our children. Im off

on a rant. And actually, my daughter seems to be doing well at this point

but I just want so bad for her to succeed – as we all do. Just wish I

could have that magic pill.

Thanks for hearing me. Ill check

out the Feingold diet online…think we looked at it before but just

wasn’t there at the time. Not sure I am now either but testing seems a

little easier – that’s why I was exploring it. I appreciate

your help – you really seem to have a wealth of knowledge. J

From:

sList [mailto:sList ] On Behalf

Of badillo9@...

Sent: Saturday, August 23, 2008 11:05 PM

To: sList

Subject: Re: Re: BIO-MEDICAL INTERVENTION

In a message dated 8/23/2008 12:12:53 A.M.

Eastern Daylight Time, thecohanes@... writes:

I feel

like I am pulling ay straws trying to find the reasons for my daughters

behavior

What kind of behavior is your child

having? You might want to check out the Feingold Diet. It is very effective for

children extremely reactive to phenols, dyes, chemicals, etc.

Badillo

It's only a deal if it's where you

want to go. Find your travel deal here.

[Guest guest]

While it is true that homeopathic remedies such as coffea cruda can beeffective to help sleep they also might have the opposite effect andcreate wakefulness. This happens if they do not match the individual'ssymptoms. The dose of the remedy is also of importance. If you want touse it daily you should use a low dose and monitor the child carefully.Just a word of caution

Matching individual symptoms to homeopathy is done with classical constitutional remedies. We are just looking here anecdotally to see if this remedy will address sleep issues. If you try it and it doesn't work homeopathy is fortunately non toxic, so there is no harm done.

It's only a deal if it's where you want to go. Find your travel deal here.

[Guest guest]

My son urinates really frequently even when he has very little to drink . What can cause this ? and has anyone else had this issue with their child .

Re: Re: BIO-MEDICAL INTERVENTIONTo: sList@ yahoogroups. comDate: Wednesday, August 27, 2008, 10:13 PM

The drawbacks of taking anti fungal medications is that it takes the yeast out of the blood and into the tissue and the yeast will come back with a vengeance down the road within a few months. Anti fungals do effectively eradicate the yeast in the blood, however, yeast in the tissue means the yeast is systemic and much more pervasive. To get the tissue healed requires Hyperbaric Oxygen Treatment in cases of gut dysbiosis and severe leaky gut which is one of the reasons why many parents have found HBOT to be very effective in reducing hyperactivity and many of the symptoms from yeast overgrowth. Using medication also requires monitoring the liver and considering how toxic these children are, any added toxicity to the liver is not advisable.

Yeast dieoff is a nasty process but it is possible to kill the Candida without having a dieoff process if you go slowly and use enough probiotics. In the long run it is a safer and more effective approach because the yeast reduction will generally not return unless there is a specific reason - like antibiotic usage.

There's no doubt ABA is effective and make sure reinforcers are not sugar laden, but working on a biological level with autism on many of the issues will reduce the need for ABA in the long run. Eventually your child will need to be able to function in a small group setting learning group skills like normal children.

It's only a deal if it's where you want to go. Find your travel deal here.

[Guest guest]

My son urinates really frequently even when he has very little to drink . What can cause this ? and has anyone else had this issue with their child .

It's a muscle issue.......he needs minerals to get better control of the bladder. Give him electrolytes (like Emergence C packages in water) so he hydrates and buy some minerals (liquid or supplement) - can be trace minerals and minerals - both will help strengthen the bladder/kidney function.

It's only a deal if it's where you want to go. Find your travel deal here.

[Guest guest]

Hi Maureen,

I don't know, but for some reason I was drawn to your post/email. I have no idea why, I just was.

I do not know where or how this email was posted because I just started to learn how to actually use the yahoo groups. You will see my emails are all always filled with spelling errors, or my latest ..my type"O''s.LOL.. Just started saying I have type "O" pesonalitiy now!

I have just written a book, and never thought it was going to happen.(Neither did anyone else, but that didn't matter, I did it for me.) The truth is, it never would have happened if it were not for my daughter. She suffers from autism. She is now six. In my book I focus on finding the so called hidden treasures, and other saying that people say when they really are trying to help...but just "Don't Get It" However, the things I learned most from my daughter is to never give up on your child and never give up on yourself. So this email is for you ,and any one else who wants to read, listen , and learn.

I was never told it is OK to grieve! I was always told where to get help, or what treatment or therapy was or was not worth it. What about the emotions..what happened to that? Why cas I only told to "suck it up and just be strong, sorry but ..not reality. We must learn to grive like any one else going through a loss, and that's what it is in more than one way. And so that is what I did, and am still doing. Finally I learned to look for the lessons, and find my answers in each new sign in my life.

Every new challenge, new phase, or new "problem" is truly just a way of learning. We learn to slowly and eventually "accept" Only (just speaking from my own experience) we as parents of autistic or other children with disabilities..we have to "Accept" over and over again. Every time I have been through something I thought was never going to end, or was up all night, or fighing the potty wars, or in our case now learning to 'Accept " that my daughter is screaming for hours at a time. With each new phase, you can either take it, toss it, or trade it in. Meaning learn with each lesson. Do I hate the stares, gastly comments, or eye ball rolling that I am faced with each day. YES..I do. Then I started to realise that if I remembered I am leaning with my child, it didn't seem like she was so alone in this fight. This is why we are their parents ans we are not the ones who roll theri eyes

anymore when we see a Mother struggling with their child. We now try to help them.despite my everyday troubles I still try to help those even less fortunate than I am, and my daughter taught me that! She taught me the true meaning of compassion and unconditional love. Not many ever learn that in a lifetime!

We didn't choose this for them, but you know what? They didn't choose this either. In my book I have a quote. It is "Take Every step forward, Find Every lost hope, and make Every NEW dream come true." I also talk about finding the good in autism..yes thats right, there really is good. If I did not finally come to believe this, then I would not find good in my child; because that is a part of her. It may not be her, but still it is a part of her. I don't want to give too much away, but all my life I have lived with too many "why mes", "What ifs" and "Its not fairs" You know what..it is not fair. It makes me sad, and I take each weakness after having my own meltdown.. and turn that weakness it into my strength.

My message that I am sending to all who read my book or not..is "You are not alone, you are never alone." (This goes for our children too.It is something we all have to learn with each lesson that is given to us. )Religious or not, my story is about all the angels in my life,including my little girl. I hope you all learn to find your strength in this not always so nice, sometimes strange, mysterious, and a little bit crazy world we live in.

One day I descoved something worse than autism, it was feeling that my daughters life was not as good as other childrens. She could not talk, nor could I hold her in my arms without her wanting to leave me in a giant struggle. All I wanted was her smile back, her hug, and for her to say MaMa. No..not any more. Today I tell my story and talk about the days where most kids read book...and laugh as I say, no not my child..she ate them! ( Got lots of fiber I suppose she needed!) When most children her age were eating at the table mine was humming or making strange noises. Eventually I said ..well at least she is eating. Some kids throw their food, or pick their nose at the table..mine hums! I didn't know it then, but she was, and still is one of my greatest teachers.

We will never forget that this is "just not fair," but don't ever forget it is their spirit that fuels their life.. It is you that are learning with them, it is you that will be their guide, as they guide you too. I admire all your strength, for it is you that is there for your children, and they will never be alone, they will never be forgotten, they will however... be more loved than you can ever imagaine. You will soon find your answers, as I have mine with each passing day, and each question I struggle with.

With each new "Phase" let down, or each new adventure I have no doubt it will lead you to the right path in your life. "BELIEVE and you will see, have faith and you will find." Look for your signs and follow your heart, yes..in my case..even when I want to turn up my i-pod as far as it can go! I stop for the day, and find a new tune for my tomorrows,

Kriss

Kriss (WW)

Re: Re: BIO-MEDICAL INTERVENTION

In a message dated 8/23/2008 12:12:53 A.M. Eastern Daylight Time, thecohanescomcast (DOT) net writes:

I feel like I am pulling ay straws trying to find the reasons for my daughters behavior

What kind of behavior is your child having? You might want to check out the Feingold Diet. It is very effective for children extremely reactive to phenols, dyes, chemicals, etc.

Badillo

It's only a deal if it's where you want to go. Find your travel deal here.

[Guest guest]

Kriss,

Thank you for your post. I thought my son was the only kid who sometimes prefers to eat (or at least figure out how to break bindings and get pictures off of pages) rather than read books You have to laugh at some things so you don't go crazy, right? One time I was at a playdate and the other moms couldn't believe I just smiled at him when he started eating sidewalk chalk and told him that was silly as I took it away.

Jen H

Subject: Re: Re: BIO-MEDICAL INTERVENTIONTo: sList Date: Thursday, August 28, 2008, 7:12 PM

Hi Maureen,

I don't know, but for some reason I was drawn to your post/email. I have no idea why, I just was.

I do not know where or how this email was posted because I just started to learn how to actually use the yahoo groups. You will see my emails are all always filled with spelling errors, or my latest ..my type"O''s.LOL. . Just started saying I have type "O" pesonalitiy now!

I have just written a book, and never thought it was going to happen.(Neither did anyone else, but that didn't matter, I did it for me.) The truth is, it never would have happened if it were not for my daughter. She suffers from autism. She is now six. In my book I focus on finding the so called hidden treasures, and other saying that people say when they really are trying to help...but just "Don't Get It" However, the things I learned most from my daughter is to never give up on your child and never give up on yourself. So this email is for you ,and any one else who wants to read, listen , and learn.

I was never told it is OK to grieve! I was always told where to get help, or what treatment or therapy was or was not worth it. What about the emotions..what happened to that? Why cas I only told to "suck it up and just be strong, sorry but ..not reality. We must learn to grive like any one else going through a loss, and that's what it is in more than one way. And so that is what I did, and am still doing. Finally I learned to look for the lessons, and find my answers in each new sign in my life.

Every new challenge, new phase, or new "problem" is truly just a way of learning. We learn to slowly and eventually "accept" Only (just speaking from my own experience) we as parents of autistic or other children with disabilities. .we have to "Accept" over and over again. Every time I have been through something I thought was never going to end, or was up all night, or fighing the potty wars, or in our case now learning to 'Accept " that my daughter is screaming for hours at a time. With each new phase, you can either take it, toss it, or trade it in. Meaning learn with each lesson. Do I hate the stares, gastly comments, or eye ball rolling that I am faced with each day. YES..I do. Then I started to realise that if I remembered I am leaning with my child, it didn't seem like she was so alone in this fight. This is why we are their parents ans we are not the ones who roll theri eyes

anymore when we see a Mother struggling with their child. We now try to help them.despite my everyday troubles I still try to help those even less fortunate than I am, and my daughter taught me that! She taught me the true meaning of compassion and unconditional love. Not many ever learn that in a lifetime!

We didn't choose this for them, but you know what? They didn't choose this either. In my book I have a quote. It is "Take Every step forward, Find Every lost hope, and make Every NEW dream come true." I also talk about finding the good in autism..yes thats right, there really is good. If I did not finally come to believe this, then I would not find good in my child; because that is a part of her. It may not be her, but still it is a part of her. I don't want to give too much away, but all my life I have lived with too many "why mes", "What ifs" and "Its not fairs" You know what..it is not fair. It makes me sad, and I take each weakness after having my own meltdown.. and turn that weakness it into my strength.

My message that I am sending to all who read my book or not..is "You are not alone, you are never alone." (This goes for our children too.It is something we all have to learn with each lesson that is given to us. )Religious or not, my story is about all the angels in my life,including my little girl. I hope you all learn to find your strength in this not always so nice, sometimes strange, mysterious, and a little bit crazy world we live in.

One day I descoved something worse than autism, it was feeling that my daughters life was not as good as other childrens. She could not talk, nor could I hold her in my arms without her wanting to leave me in a giant struggle. All I wanted was her smile back, her hug, and for her to say MaMa. No..not any more. Today I tell my story and talk about the days where most kids read book...and laugh as I say, no not my child..she ate them! ( Got lots of fiber I suppose she needed!) When most children her age were eating at the table mine was humming or making strange noises. Eventually I said ..well at least she is eating. Some kids throw their food, or pick their nose at the table..mine hums! I didn't know it then, but she was, and still is one of my greatest teachers.

We will never forget that this is "just not fair," but don't ever forget it is their spirit that fuels their life.. It is you that are learning with them, it is you that will be their guide, as they guide you too. I admire all your strength, for it is you that is there for your children, and they will never be alone, they will never be forgotten, they will however... be more loved than you can ever imagaine. You will soon find your answers, as I have mine with each passing day, and each question I struggle with.

With each new "Phase" let down, or each new adventure I have no doubt it will lead you to the right path in your life. "BELIEVE and you will see, have faith and you will find." Look for your signs and follow your heart, yes..in my case..even when I want to turn up my i-pod as far as it can go! I stop for the day, and find a new tune for my tomorrows,

Kriss

Kriss (WW)

Re: Re: BIO-MEDICAL INTERVENTION

In a message dated 8/23/2008 12:12:53 A.M. Eastern Daylight Time, thecohanescomcast (DOT) net writes:

I feel like I am pulling ay straws trying to find the reasons for my daughters behavior

What kind of behavior is your child having? You might want to check out the Feingold Diet. It is very effective for children extremely reactive to phenols, dyes, chemicals, etc.

Badillo

It's only a deal if it's where you want to go. Find your travel deal here.

[Guest guest]

Awesome !!! Finally some answers . Thank You . I will let you know how it goes.

Re: Re: BIO-MEDICAL INTERVENTION

In a message dated 8/23/2008 12:12:53 A.M. Eastern Daylight Time, thecohanescomcast (DOT) net writes:

I feel like I am pulling ay straws trying to find the reasons for my daughters behavior

What kind of behavior is your child having? You might want to check out the Feingold Diet. It is very effective for children extremely reactive to phenols, dyes, chemicals, etc.

Badillo

It's only a deal if it's where you want to go. Find your travel deal here.