Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 what a beautiful ;etter that you wrote. yes there are times in our lives when we wonder will i get through this miserable day. but you know what i did get through it. maybe not on the good side, but i can look back and say i did it. it was hard but i learned a lotfrom this rotten day. you wrote the words down so good. can we change the way the day will go??? maybe yes and maybe no. but it is a learnig day. just like in school. thanks for caring. cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 Thanks, Babs. Just gonna try to hang in until then. Hope you have a good day. BarbaraBabs wrote: Hi Barbara, I can understand ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Thanks for the kind words ! I inherited a few good genes in amidst the suckers that gave me PF and all these auto-immune diseases! LOL. My daughter has a Grandmother on her paternal side who is still breathtaking at the age of 70. h will be young looking for many, many years yet. My hair was a medium brown before the cytoxan when I was 39. I lost a whole bunch of hair and when it grew back it was very dark and thicker than before. I let it grow long, then chop. Let it grow, then chop. I'm in the middle of letting it grow again and will probably chop it for my 50th birthday in 2010. I like that we look alike! How cool is that? And darn I wish I had thought to keep the ponytail when it went whack to the floor the last cut! Maybe by the time I cut this crop off I'll have a grandbaby to save it for. I haven't decided what I want my grandbabies to call me when I get some of them. I like your name though. My great-nephew called me Aunt Barber. It was so cute. My little great-niece calls my sister Aunt , though her name is Janet. But because I have called her Janny all her life little miss thang picked it up and told me " you call her Janny, but I call her " . So she can say the name properly, just chooses NOT to! LOL! They're soooooo adorable when they're little...then they grow up....LOL! And just so you know, I greatly enjoy your posts and I haven't seen one offensive thing yet. Keep being yourself. Yourself is a fun and neat person! Hugs! Babs in Texas > > > Sorry Babs I momentarily forgot your pics....I can't go backwards to > check anything while I'm posting directly from the Board site or I'll > loose everything I've typed (I know 'cos I've tried that before!) > > Do you know we'd look quite alike if you saw an older photo of me BEFORE > I had my VERY long dark hair cut at the end of 2006. My youngest > grand-daugher was HORRIFIED when I walked in the door with my freshly > cut hair...I showed her the long plait that the Hairdresser gave me for > posterity....evberytime Zoe came over to my place she'd go to the box > the plait was kept in & bring it over to me saying " Sticky Tape > Grangi " ...she's never quite forgiven me for getting the CHOP! > > Translation: GRANGI is what my grandkids call me .....GRAN + the GI of > =GRANGI > > I'm not surprised your daughter has stayed looking ridiculously YOUNG > for her age ... her MOTHER looks ridiculously young too! > > GIna in Oz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Hi Babs don't worry! We're here to support each other and learn new things each day! I should have given more info...There's a lot of things happening with my health which I have developped Toe Cellulitis and I'm on Keflex 2000mg every day for the next 5 days. Even though sometimes, there are days that it's one thing after another, like a snowstorm lol...and after everything calms down....it's back to normal or semi-normal. I'll give a brief explanation of what's going on.... In 2006, was told I had Drug Induced Lupus and if I stop my meds symptoms will go away (if I stop the meds my condition will get worse). I was asked to stay away from the sun and if I had to go out, wear protect face and skin. Even though dr's had said it's Drug Induced Lupus, I should treat like having Lupus. I don't! (i pretend it doesn't exist). I've been through so much lately....I would recommend follow dr's orders and do what your dr says! I have Crohn's related Arthritis which can affect any joint in my body. I'm on Remicade Infusions for the Crohn's. I'm on Methotrexate so I won't develop antibodies to Remicade. Methotrexate caused the PF. It's just a cycle that never ends..not counting that my immune system is so low, that I can catch any infection. Thank you for the Hugs! I'm sending some over to you too ((((((Babs)))))))) Irene Raynaud's Disease 09/07 PF 03/07 Canada ---- Original Message ---- To: Breathe-Support Sent: Tue, 8 Jan 2008 2:44 am Subject: Re: Irene/Raynaud's Irene, sorry to keep being so pushy about this....a person can test false-negative for lupus or scleroderma and still very much have that disease. Seeing that you have Raynaud's and PF it makes sense that you have another AI disease at work. My last Pulmo ran blood work that showed NO elevated SED or anything to indicate any AI disease. Which is hilarious considering my long history of AI. My rheumy ran the tests in August and as usual, it was off the charts on all indicators. Pulmo said the lab must have messed up..... I'm fairly new to the board and not up on how ill everyone is, or at what stage of the disease they're all at. Please forgive me for my ignorance. I hope I'm not coming across as unsympathetic because that is so far from the empathy I have for you. I have had multiple AI's since I was 15, so I know the long, arduous and uphill battle that these diseases entail. But I also know that the Doc's aren't always correct. My own brother was a doctor. He felt unwell with self-diagnosed allergies. By the time he realized that something was seriously wrong on a Sunday night it was too late. He died on that Tuesday, at the age of 52, from Wegner's Granulamatosis. An AI disease. So, even the doctors can get it wrong, in a big way. Ask them to broaden the test spectrum and do more checking if you feel the need to know what the specific disease is. It may not matter to you at this point. I personally don't care to know if I have any more darn diseases. I'm tired of being told "interesting"........ Big hugs to you! Babs in Texas > > > Hi Babs, > > Raynaud's Disease is not the main disease for me....it's secondary to the other stuff I have also....I've been checked for Lupus/Scleroderma/Sjogren's/Rheumatoid Arthritis....with further analysis why I have an elevated ANA...and it's negative of any of the above mentionned. > > Irene > Raynaud's Disease 09/07 PF 03/07 Canada Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
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