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Re: Worst Caretaker Award

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Bet he is out of warrantee and little trade in value too. lol

And the sloppiness of the suppliers. Why they can't do 10, 10, 10, 10

and why no Y connector. Its not that complicated. And, how long one

would have lasted you is easily calculated or estimated. But the

suppliers really work hard to just use the equipment they've gotten

back in and not get more.

>

>

> I say it, and sayit, and say it.....

>

> I need a wife. I got my liquid for home use on Thursday. The

delivery

> guy said VERY PLAINLY .... do not go to bed on less than 1/4 full.

> Soo.....guess what. You guessed it. Husband's job...not done. I

woke

> up, no 02!

>

> You know, I brought this on myself. I always did everything for

myself.

> Now, I need help and he is not trained!

>

> Just discovered when that Mama ship ran out the there is one other

of

> the four that goes to 10. The other two goes to 6. Aaaargh.

Another

> phone call, another problem. How hard is it??? 10, 10, 10, 10

not 10,

> 10, 6, 6. And no I don't have a Y connector. I did find out the

the

> big mama ship lasts 3 days.

>

> I am tired of thinking!

>

> Hugs, Joyce D.

> PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA

> 2 COR. 12:10 ....when I am weak, then I am strong.

>

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Peggy,

I woke up and immediatly realized that the air was not blowing up my nose at gale force. I have Edna right by my bed. Did I use her...no. Did I use my emergency alert doo-lolly...no. I got up and rushed into his bedroom and tried to knock him into conciousness. By that time I WAS in trouble. Then, I hooked Edna up.

The bed....oh you mean the torture machine. They brought me a new mattress. It is an Invacare Deluxe. Lordy, this is deluxe???! I am talking to the people where Beth got her Memory Foam Mattress. I just need to know that it will bend with the bed. I can get one for under $300. We took the APP pad off and that helped. Whatever they use that thing for, it is dreadful. They offered me a gel topper...I looked at the picture. It looks like a raft. Oh, I don't think so.

Who comes up with this stuff? Maybe there are people in this world who like to sleep on plastic and sweat like pigs all night. It ain't me!

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.

> > > I say it, and sayit, and say it.....> > I need a wife. I got my liquid for home use on Thursday. The > delivery guy said VERY PLAINLY .... do not go to bed on less than 1/4 > full. Soo.....guess what. You guessed it. Husband's job...not > done. I woke up, no 02!> > You know, I brought this on myself. I always did everything for > myself. Now, I need help and he is not trained!> > Just discovered when that Mama ship ran out the there is one other of > the four that goes to 10. The other two goes to 6. Aaaargh. > Another phone call, another problem. How hard is it??? 10, 10, 10, > 10 not 10, 10, 6, 6. And no I don't have a Y connector. I did find > out the the big mama ship lasts 3 days.> > I am tired of thinking!> > Hugs, Joyce D.> PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA> 2 COR. 12:10 ....when I am weak, then I am strong.>

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Joyce I so love your sense of humor, even in your great time of

NEED! My gosh honey they sure havent been good to you and who does

come up with this stuff. How come its so hard for them to get you a

comfy bed? I wish I could take all those troubles away! I am sure

Lucian didnt mind you knocking him around he would have rather you

did that then something else!

Hang in there my friend! The sun is going to shine today!

Sandie

> >

> >

> > I say it, and sayit, and say it.....

> >

> > I need a wife. I got my liquid for home use on Thursday. The

> > delivery guy said VERY PLAINLY .... do not go to bed on less than

1/4

> > full. Soo.....guess what. You guessed it. Husband's job...not

> > done. I woke up, no 02!

> >

> > You know, I brought this on myself. I always did everything for

> > myself. Now, I need help and he is not trained!

> >

> > Just discovered when that Mama ship ran out the there is one

other of

> > the four that goes to 10. The other two goes to 6. Aaaargh.

> > Another phone call, another problem. How hard is it??? 10, 10, 10,

> > 10 not 10, 10, 6, 6. And no I don't have a Y connector. I did find

> > out the the big mama ship lasts 3 days.

> >

> > I am tired of thinking!

> >

> > Hugs, Joyce D.

> > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA

> > 2 COR. 12:10 ....when I am weak, then I am strong.

> >

>

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I'm for 36 inch thick luxury foam and 100 pillows of every sort.

Well, ok, maybe thats overboard a little, but I so want her to get

what will make her comfortable and to get her oxygen set up like it

should be rather than like a bunch on clowns who don't give a damn

about the patient would do it.

I saw Gwynne's outrage at the oxygen set up. Well, she and I are

being spoiled by a supplier who cares, thanks to her telling me about

them. It's a shame that they aren't all that way. But I am made to

feel like a person they know and are there to help, not customer

number 576118. Maybe its that they act like medical providers and

treat me as a patient versus just providers of a commodity with a

customer. No, they're better than medical providers.

> >

> >

> > I say it, and sayit, and say it.....

> >

> > I need a wife. I got my liquid for home use on Thursday. The

> > delivery guy said VERY PLAINLY .... do not go to bed on less

than 1/4

> > full. Soo.....guess what. You guessed it. Husband's job...not

> > done. I woke up, no 02!

> >

> > You know, I brought this on myself. I always did everything for

> > myself. Now, I need help and he is not trained!

> >

> > Just discovered when that Mama ship ran out the there is one

other of

> > the four that goes to 10. The other two goes to 6. Aaaargh.

> > Another phone call, another problem. How hard is it??? 10, 10,

10,

> > 10 not 10, 10, 6, 6. And no I don't have a Y connector. I did

find

> > out the the big mama ship lasts 3 days.

> >

> > I am tired of thinking!

> >

> > Hugs, Joyce D.

> > PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA

> > 2 COR. 12:10 ....when I am weak, then I am strong.

> >

>

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