Re: Pneumonia

[Guest guest]

I think I know the source of mine. My lung never completely was pain

free after the VATS but my high level of pain tolerance led me to

dismiss it, until it hit very hard. There were a couple of things

that weren't done well in the hospital as their attention was much

more on those in extremely critical situations and those with heart

bypasses and they are new and haven't worked out all the kinks. Its a

Heart Hospital beside the regular one and does just Heart and Lung.

First, which I didn't know until this week, the day of the surgery

nothing was draining into the ccntainer from my tube remaining in.

When my ex-wife pointed it out they realized they had failed to turn

the suction on. The others were their delay in walking me which I

finally persisted and got done but later than they should have and

their failure to give me pain meds to make my breathing better even

though I didn't require them for the pain and the doctor didn't

discover that for a day or two. Their other screw ups including

failing to take me down for an xray because they believed I'd been

discharged when I was moved to a different floor. Oh, and they

decided not to have the respiratory tech come in at night and let me

sleep until my temperature rose and I insisted on her. Not the

hospital I would choose again.

My Primary physician agrees with my theory, particularly considering

the area of the most pain originates right around the incision they

biopsied through.

> > > >

> > > > Well, my name is Judy Brown and I am 63 yrs. old. I live in SC

> > with

> > > > my husband Joe and 3 dogs.(2 Goldens and a Lab) Every day they

> > bring

> > > > me great joy..the dogs!!! hahahah. My husband Joe tries but he

> > isn't

> > > > an emotional type person so he isn't someone I can talk to

about

> > most

> > > > things.

> > > > I have 5 grown, married kids who all live up north. Three of

them

> > > > came at Christmas with their families and I was completely

> > > > overwhelmed. It made me realize how much I have slipped in a

> > fairly

> > > > short time.

> > > > I was diagnosed this past April 07 but was previously mis-

> > diagnosed

> > > > for more than a year. The family Dr. kept insisting I had a

bad

> > case

> > > > of asthma plus pneumonia and I needed to " ACCEPT IT. " After 5

> > weeks

> > > > of antibiotics with no change in me or my xray, he finally

agreed

> > to

> > > > send me to a Pulmonologist. That changed my life for the good

and

> > > > bad. He did many tests, ruled out Asthma and sent me for a CT

> > Scan.

> > > > Also, he put me on oxygen 24/7 as my breathing was very

labored.

> > When

> > > > he diagnosed me with IPF he said I was at the serious end of

the

> > > > disease. I do feel myself slipping and that scares me.

> > > > We have no medical insurance and I can't get any. I was also

> > denied

> > > > Soc. Sec. Dis. and have a lawyer to fight it. I really need

> > medical

> > > > and a chance to get on the Transplant list. It doesn't look

likely

> > > > for me and that makes me feel depressed if I think about it

too

> > much.

> > > > Still, I try very hard to keep a positive attitude and not

dwell

> > on

> > > > the things I can't do anymore. Instead, I think about all the

> > things

> > > > I can still do and feel blessed. I need a support group. And

> > > > hopefully, I can be support to others as well. I will always

be

> > > > available to talk whenever anyone needs a friend. I am one who

> > likes

> > > > to give back. So, again, thank you all for being here!

> > > > judybrown63

> > > > 04-07 IPF SC

> > > >

> > >

> >

>