Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 I HATE THIS BLEEPING DISEASE........Peggy wrote: Joyce, Gwynne, and anyone else on high flow. My high flow concentrator just got here a bit ago. I was so excited to be able to be on my feet and complete a job without my body screaming for 02, WELL I have this set on 6 and I went into the kitchen and took the trash out maybe 15 feet. My legs started so I came in and checked my sat it was 90.. How is that??? I am getting really upset. I am NOT ready for higher that 6, The question is Is this how y'all went higher? just BAM need more?? Oh I am upset. Love and Prayers, Peggy ipf 6/04 Worry looks around. Sorry looks back, Faith looks up. Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 What were your sats before doing that? What flow were you on before this concentrator? It hits differently with everyone as does each activity. So while I am not yet on high flow, here's some comments. Lifting and carrying something like the trash will hit me harder than a longer slow walk. How quickly did it jump back up from 90, which of course many of our high flow group would love to be able to do that at 90? Whats the temperature there today and how warm were you dressed? That can impact you. Last, understand 6 isn't always 6 nor comparing one concentrator even to another isn't always the same. Concentrators vary widely in their operating pressure and also in their average oxygen output. Most are about 90% oxygen. However, you don't know what yours is. Respironics Millineum, for instance, considers anything from 82% up to be in normal green light range. So 6 may be 6 on compressed or liquid, may be 5.4 on an average concentrato and may be as low as 4.9 and still considered in the normal range. In reality it could be running lower. So, comparisons can be misleading from one piece of equipment to another. > > Joyce, Gwynne, and anyone else on high flow. My high flow > concentrator just got here a bit ago. I was so excited to be able to > be on my feet and complete a job without my body screaming for 02, > WELL I have this set on 6 and I went into the kitchen and took the > trash out maybe 15 feet. My legs started so I came in and checked my > sat it was 90.. How is that??? I am getting really upset. > I am NOT ready for higher that 6, The question is Is this how y'all > went higher? just BAM need more?? Oh I am upset. > > > Love and Prayers, Peggy > ipf 6/04 > > Worry looks around. > Sorry looks back, > Faith looks up. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Peggy, I never knew it was o.k. to put the concentrator outside. Also 50 ft. was the limit of tubing that I was told to use. Why didn't you just use liquid. They took my concentrator and I was glad to see the end of it. I have listened to those things for 10 years and I love the silence. We did make a hole in the wall for the liquid to come into the house. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> P, the guy accidently had a high flow water bottle in his truck > so it sounds like a wind tunnel on my face. He made a "note"that I > need supplies for HF. How much hose can you use on this. We have it > sitting outside and are trying to place it. I don't want him to make > a hole in the house unless I can use about 75 feet of hose.> > > Love and Prayers, Peggy> ipf 6/04> > Worry looks around.> Sorry looks back,> Faith looks up.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 Do not go pick it up....make them provide you adequate service. You're only in such complication because they failed to advise or even help you incoming up with the best solution. They were simply looking out for themselves. THE ONLY REASONS FOR THEM EVER PROVIDING YOU A CONCENTRATOR AT YOUR INCREASING LEVELS WAS TO SAVE THEM MAKING DELIVERIES AND COST. Now for you there is the reason of having to or having not to be there for deliveries but that isn't relevant in your case. There is also the issue of being able to pop your concentrator into your vehicle for a long trip. But many options there. I'm just saying what their reason was. Effort and cost. Concentrator is one time delivery, little maintenance. Liquid is weekly deliveries and refilling with liquid. Concentrator saves you money and costs you significant money in electric bills. Yes, you've kept changing your mind, but because they didn't treat you as a patient needing a solution but just as a customer getting a commodity. They have the attitude of a retailer, not a health care provider. Who cares that they are NOT going to be happy. By the way, are there no other choices of providers for you? Yes, humidifiers are available for liquid just like they are for concentrators. As to the tubing, we're back to most recommending only 50 feet but 75 is sold and I've heard of people using 100. Its just the longer you go the greater chance of losing some flow along the way. > > I called and ask and was told as long as it is protected from sun and > rain it's fine. BUT I told I may get the liquid back. This thing > is like a jet sitting there with someone letting the air out of its > tires every few min. I will > keep my tanks for outings. > > I hope they will do that. I know they are NOT going to be happy. > Maybe they'll let us go pick it up. Oh I just dread telling them. Oh > well live and learn. > > Did you say your liquid has a water bottle? and how much tubing can > you use with it? > > > Love and Prayers, Peggy > ipf 6/04 > > Worry looks around. > Sorry looks back, > Faith looks up. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 75 feet of tubing is what I use...I've always used at least 75 feet. I've checked with a flow meter and the flow is at the LPM that I set the concentrator at and my sats stay up, so 75 feet seems to work for me. I've been told by a couple of different respiratory therapists that you would need to use about 100 feet of tubing to have an appreciable difference in flow, one that would affect my well being. It's funny how we all get told different things...well not funny exactly more like frustrating! Beth in NC age 48 Fibrotic NSIP 06/06 "For as long as I shall live, I will testify to Love." Re: high flow family Actually Concentrator does have very specific limits on temperature in specs although I have no idea why. Probably the frosted or dewed air would cause internal problems.At to length, while there is some dropoff of flow as you go even from 25-50 feet it is minimal and probably not measurable or noticeable. beyond 50 feet it increases, but to what degree I don't know. I don't know of anyone using more than 50 feet or recommending it. However, extension hoses are easy to add if one wants and SalterLabs does make 75 foot hoses so the idea as I've found them for sale on a web site and I'm sure others do. Salter however on their site many times mentions "tubing length limited for optimum performance. "> >> > P, the guy accidently had a high flow water bottle in his truck> > so it sounds like a wind tunnel on my face. He made a "note"that I> > need supplies for HF. How much hose can you use on this. We have it> > sitting outside and are trying to place it. I don't want him to make> > a hole in the house unless I can use about 75 feet of hose.> >> >> > Love and Prayers, Peggy> > ipf 6/04> >> > Worry looks around.> > Sorry looks back,> > Faith looks up.> >> Quote Link to comment Share on other sites More sharing options...
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