Re: An Update.....I know the reactions I'm going to get!

January 20, 2008

Irene: The oxygen desat measures your oxygen at rest and also while

you are moving. My last one was done on a treadmill and at a very

slow pace to atart out and for as long as I could go. The treadmill

also inclined slightly while I was walking. In other words, when my

sats dropped below 80, they called it quits. This test enables them

to tell you how much 02 you need to be on to keep your sats up.

They increased my 02 as I needed it and found what level I needed.

With me, my sats drop as soon as I stand up! And, when I walk they

drop even more, and if I am talking they drop even more. Thus, the

need for full-time 02. I am on 3-4 liters at rest and up to 6 when

I am up moving around. I hope you can get this test. It will show

you what you need.

God Bless,

Tina

IPF 04/07 PH 11/07 Ohio

> >

> > I'm doing OK considering what has happenned in the last 4 days.

As

> I posted before I'm in good spirits!?Gasping for air and not being

> able to talk for a long time etc...As you know I was admitted to

> hospital on Thursday/Friday to ensure that no blood clots were

> present. I was on 3 litres of Oxygen, had a VQ Scan, Ultrasound, X-

> Rays and?blood tests. Blood thinners, Prednisone, Oxygen

treatments

> were administered.

> >

> > There was a second reason why I was admitted in hospital, after

> the 5th oxygen treatment in ER, dr came in to check my lungs and

> asked me how I was feeling. I said a bit better, than when the

> ambulance brought me in, says let me check your lungs, he listens

to

> the lungs and says to me " You're still wheezing a lot, how can you

> be feeling better " . That's when he ordered for the lung dr to come

> and see me in ER. She did come and I saw her, asked me a bunch of

> questions...I was losing a bit of consciousness and I was very

pale

> and my face as the dr put it " it looked pretty sick and she didn't

> like the way it looked " .

> >

> > No further instructions were given to me as I was discharged and

> sent home. As you all know, on Saturday I did go to work. As you

> don't know while at work I was having chest pains and gasping for

> air.?Did my 8hrs shift, met with my sister....asked her to take me

> back to ER my Sats had dropped between 85% and 90%.

> >

> > Usually I hide it from ER dr's that I have PF. The first

question

> I was asked do I have a lung disease example PF?and I couldn't

hide

> it anymore and said YES. I was immediately put on 3-4 litres of

> Oxygen, X-Rays, a lot of blood tests and a lot of monitoring. I

was

> hooked up to a Heart Monitor, ECG machine, IV and my Sats were

> monitored also. Even when I was spoke with the ER dr, it took a

lot

> of energy to tell him what was going on.?

> >

> > Honestly I couldn't get out of it. I didn't argue with the

> dr/nurses, let?them do exactly what was necessary?and see were it

> leads back of my mind I was thinking OMG, I'm going to miss

another

> day of work. Saturday all night and Sunday morning I was hooked up

> on the Oxygen (they had inserted a tube in my nose, tube was

getting

> very irritating, I kept it in there). Sunday morning around 7am,

dr

> said let's take out the Oxygen and if the Sats drop again, she's

> staying if the Sats are stable she can go home.

> >

> > BP was stable at one point it was 155/108 Pulse 124. Sats stayed

> pretty stable and I was discharged, instead of coming straight

home

> as instructed, I waited till the subways stations opened to go to

> work. Which I did, stayed for the whole shift.

> >

> > They found bilateral nodules at the bases of the lobes. I'm not

> sure if it's from the X-Ray or they looked at my CT Scan....will

> have further information this week. Was asked who follows me and?

if

> I?do have follow-up appointments for my PF. Asked me if I have

Home

> Care Oxygen at home. To all of his questions I said NO.?He was

> totally schocked! especially in the condition that I was in.?

Showed

> him the pictures of my hand...you should have seen his expression

on

> his face. I was in too much pain to even laugh. I don't even have

> the energy to cough.....

> >

> > Usually for anything they tell me see your GP in the next few

> days! Now, it was in between the next 2 days see your GP if you're

> not getting any better.

> >

> > Irene

> > Raynaud's Disease 09/07

> > PF 03/07

> > Canada

> >

> __________________________________________________________

> ___

> > Meet the new AOL.ca. Free radio, music, videos, news &

> entertainment ? with a Canadian perspective.

> >

>

_____________________________________________________________________

___

> Meet the new AOL.ca. Free radio, music, videos, news &

entertainment ? with a Canadian perspective.

>

January 20, 2008

Irene,

This is the text-book definition for oxygen desaturation is:

Insufficient amounts of oxygen in the bloodstream. Desaturation can

occur when oxygen-poor (blue) blood from the right side of the heart

circulation mixes with oxygen-rich (red) blood in the left side of

the heart circulation and goes to the body. Normal oxygen saturation

in the arteries is 95 to 100 percent.

And the test is called an Exercise Test for Desaturation:

The exercise for desaturation test evaluates oxygen needs at rest

and during exercise. How it's done: Patients walk on level ground or

on a treadmill at a comfortable pace for a maximum of six minutes

per exercise period. Several six-minute walking exercise periods may

be required. Patients may be asked to wear oxygen during the testing

periods if their oxygen level is found to be low, either at rest or

with exercise. A pulse oximeter (device used to determine the amount

of oxygen in the blood) is placed on the earlobe or fingertip to

monitor blood oxygen levels.

Tina

IPF 04/07 PH 11/07 Ohio

> >

> > I'm doing OK considering what has happenned in the last 4 days.

As

> I posted before I'm in good spirits!?Gasping for air and not being

> able to talk for a long time etc...As you know I was admitted to

> hospital on Thursday/Friday to ensure that no blood clots were

> present. I was on 3 litres of Oxygen, had a VQ Scan, Ultrasound, X-

> Rays and?blood tests. Blood thinners, Prednisone, Oxygen

treatments

> were administered.

> >

> > There was a second reason why I was admitted in hospital, after

> the 5th oxygen treatment in ER, dr came in to check my lungs and

> asked me how I was feeling. I said a bit better, than when the

> ambulance brought me in, says let me check your lungs, he listens

to

> the lungs and says to me " You're still wheezing a lot, how can you

> be feeling better " . That's when he ordered for the lung dr to come

> and see me in ER. She did come and I saw her, asked me a bunch of

> questions...I was losing a bit of consciousness and I was very

pale

> and my face as the dr put it " it looked pretty sick and she didn't

> like the way it looked " .

> >

> > No further instructions were given to me as I was discharged and

> sent home. As you all know, on Saturday I did go to work. As you

> don't know while at work I was having chest pains and gasping for

> air.?Did my 8hrs shift, met with my sister....asked her to take me

> back to ER my Sats had dropped between 85% and 90%.

> >

> > Usually I hide it from ER dr's that I have PF. The first

question

> I was asked do I have a lung disease example PF?and I couldn't

hide

> it anymore and said YES. I was immediately put on 3-4 litres of

> Oxygen, X-Rays, a lot of blood tests and a lot of monitoring. I

was

> hooked up to a Heart Monitor, ECG machine, IV and my Sats were

> monitored also. Even when I was spoke with the ER dr, it took a

lot

> of energy to tell him what was going on.?

> >

> > Honestly I couldn't get out of it. I didn't argue with the

> dr/nurses, let?them do exactly what was necessary?and see were it

> leads back of my mind I was thinking OMG, I'm going to miss

another

> day of work. Saturday all night and Sunday morning I was hooked up

> on the Oxygen (they had inserted a tube in my nose, tube was

getting

> very irritating, I kept it in there). Sunday morning around 7am,

dr

> said let's take out the Oxygen and if the Sats drop again, she's

> staying if the Sats are stable she can go home.

> >

> > BP was stable at one point it was 155/108 Pulse 124. Sats stayed

> pretty stable and I was discharged, instead of coming straight

home

> as instructed, I waited till the subways stations opened to go to

> work. Which I did, stayed for the whole shift.

> >

> > They found bilateral nodules at the bases of the lobes. I'm not

> sure if it's from the X-Ray or they looked at my CT Scan....will

> have further information this week. Was asked who follows me and?

if

> I?do have follow-up appointments for my PF. Asked me if I have

Home

> Care Oxygen at home. To all of his questions I said NO.?He was

> totally schocked! especially in the condition that I was in.?

Showed

> him the pictures of my hand...you should have seen his expression

on

> his face. I was in too much pain to even laugh. I don't even have

> the energy to cough.....

> >

> > Usually for anything they tell me see your GP in the next few

> days! Now, it was in between the next 2 days see your GP if you're

> not getting any better.

> >

> > Irene

> > Raynaud's Disease 09/07

> > PF 03/07

> > Canada

> >

> __________________________________________________________

> ___

> > Meet the new AOL.ca. Free radio, music, videos, news &

> entertainment ? with a Canadian perspective.

> >

>

_____________________________________________________________________

___

> Meet the new AOL.ca. Free radio, music, videos, news &

entertainment ? with a Canadian perspective.

>

January 20, 2008

Here its referred to as a six minute walk. Don't have any idea what

it's called in Canada, in English or French.

> > >

> > > I'm doing OK considering what has happenned in the last 4 days.

> As

> > I posted before I'm in good spirits!?Gasping for air and not

being

> > able to talk for a long time etc...As you know I was admitted to

> > hospital on Thursday/Friday to ensure that no blood clots were

> > present. I was on 3 litres of Oxygen, had a VQ Scan, Ultrasound,

X-

> > Rays and?blood tests. Blood thinners, Prednisone, Oxygen

> treatments

> > were administered.

> > >

> > > There was a second reason why I was admitted in hospital, after

> > the 5th oxygen treatment in ER, dr came in to check my lungs and

> > asked me how I was feeling. I said a bit better, than when the

> > ambulance brought me in, says let me check your lungs, he listens

> to

> > the lungs and says to me " You're still wheezing a lot, how can

you

> > be feeling better " . That's when he ordered for the lung dr to

come

> > and see me in ER. She did come and I saw her, asked me a bunch of

> > questions...I was losing a bit of consciousness and I was very

> pale

> > and my face as the dr put it " it looked pretty sick and she

didn't

> > like the way it looked " .

> > >

> > > No further instructions were given to me as I was discharged

and

> > sent home. As you all know, on Saturday I did go to work. As you

> > don't know while at work I was having chest pains and gasping for

> > air.?Did my 8hrs shift, met with my sister....asked her to take

me

> > back to ER my Sats had dropped between 85% and 90%.

> > >

> > > Usually I hide it from ER dr's that I have PF. The first

> question

> > I was asked do I have a lung disease example PF?and I couldn't

> hide

> > it anymore and said YES. I was immediately put on 3-4 litres of

> > Oxygen, X-Rays, a lot of blood tests and a lot of monitoring. I

> was

> > hooked up to a Heart Monitor, ECG machine, IV and my Sats were

> > monitored also. Even when I was spoke with the ER dr, it took a

> lot

> > of energy to tell him what was going on.?

> > >

> > > Honestly I couldn't get out of it. I didn't argue with the

> > dr/nurses, let?them do exactly what was necessary?and see were it

> > leads back of my mind I was thinking OMG, I'm going to miss

> another

> > day of work. Saturday all night and Sunday morning I was hooked

up

> > on the Oxygen (they had inserted a tube in my nose, tube was

> getting

> > very irritating, I kept it in there). Sunday morning around 7am,

> dr

> > said let's take out the Oxygen and if the Sats drop again, she's

> > staying if the Sats are stable she can go home.

> > >

> > > BP was stable at one point it was 155/108 Pulse 124. Sats

stayed

> > pretty stable and I was discharged, instead of coming straight

> home

> > as instructed, I waited till the subways stations opened to go to

> > work. Which I did, stayed for the whole shift.

> > >

> > > They found bilateral nodules at the bases of the lobes. I'm not

> > sure if it's from the X-Ray or they looked at my CT Scan....will

> > have further information this week. Was asked who follows me and?

> if

> > I?do have follow-up appointments for my PF. Asked me if I have

> Home

> > Care Oxygen at home. To all of his questions I said NO.?He was

> > totally schocked! especially in the condition that I was in.?

> Showed

> > him the pictures of my hand...you should have seen his expression

> on

> > his face. I was in too much pain to even laugh. I don't even have

> > the energy to cough.....

> > >

> > > Usually for anything they tell me see your GP in the next few

> > days! Now, it was in between the next 2 days see your GP if

you're

> > not getting any better.

> > >

> > > Irene

> > > Raynaud's Disease 09/07

> > > PF 03/07

> > > Canada

> > >

> > __________________________________________________________

> > ___

> > > Meet the new AOL.ca. Free radio, music, videos, news &

> > entertainment ? with a Canadian perspective.

> > >

> >

>

_____________________________________________________________________

> ___

> > Meet the new AOL.ca. Free radio, music, videos, news &

> entertainment ? with a Canadian perspective.

> >

>

January 21, 2008

Oh Irene I hope your feeling better! I know how it is to have to go

to work and work and be sick, its something I do every day! I hope

you get some time to rest and take care of yourself! Hang in there!

Sandie

>

> I'm doing OK considering what has happenned in the last 4 days. As

I posted before I'm in good spirits!?Gasping for air and not being

able to talk for a long time etc...As you know I was admitted to

hospital on Thursday/Friday to ensure that no blood clots were

present. I was on 3 litres of Oxygen, had a VQ Scan, Ultrasound, X-

Rays and?blood tests. Blood thinners, Prednisone, Oxygen treatments

were administered.

>

> There was a second reason why I was admitted in hospital, after the

5th oxygen treatment in ER, dr came in to check my lungs and asked me

how I was feeling. I said a bit better, than when the ambulance

brought me in, says let me check your lungs, he listens to the lungs

and says to me " You're still wheezing a lot, how can you be feeling

better " . That's when he ordered for the lung dr to come and see me in

ER. She did come and I saw her, asked me a bunch of questions...I was

losing a bit of consciousness and I was very pale and my face as the

dr put it " it looked pretty sick and she didn't like the way it

looked " .

>

> No further instructions were given to me as I was discharged and

sent home. As you all know, on Saturday I did go to work. As you

don't know while at work I was having chest pains and gasping for

air.?Did my 8hrs shift, met with my sister....asked her to take me

back to ER my Sats had dropped between 85% and 90%.

>

> Usually I hide it from ER dr's that I have PF. The first question I

was asked do I have a lung disease example PF?and I couldn't hide it

anymore and said YES. I was immediately put on 3-4 litres of Oxygen,

X-Rays, a lot of blood tests and a lot of monitoring. I was hooked up

to a Heart Monitor, ECG machine, IV and my Sats were monitored also.

Even when I was spoke with the ER dr, it took a lot of energy to tell

him what was going on.?

>

> Honestly I couldn't get out of it. I didn't argue with the

dr/nurses, let?them do exactly what was necessary?and see were it

leads back of my mind I was thinking OMG, I'm going to miss another

day of work. Saturday all night and Sunday morning I was hooked up on

the Oxygen (they had inserted a tube in my nose, tube was getting

very irritating, I kept it in there). Sunday morning around 7am, dr

said let's take out the Oxygen and if the Sats drop again, she's

staying if the Sats are stable she can go home.

>

> BP was stable at one point it was 155/108 Pulse 124. Sats stayed

pretty stable and I was discharged, instead of coming straight home

as instructed, I waited till the subways stations opened to go to

work. Which I did, stayed for the whole shift.

>

> They found bilateral nodules at the bases of the lobes. I'm not

sure if it's from the X-Ray or they looked at my CT Scan....will have

further information this week. Was asked who follows me and?if I?do

have follow-up appointments for my PF. Asked me if I have Home Care

Oxygen at home. To all of his questions I said NO.?He was totally

schocked! especially in the condition that I was in.?Showed him the

pictures of my hand...you should have seen his expression on his

face. I was in too much pain to even laugh. I don't even have the

energy to cough.....

>

> Usually for anything they tell me see your GP in the next few days!

Now, it was in between the next 2 days see your GP if you're not

getting any better.

>

> Irene

> Raynaud's Disease 09/07

> PF 03/07

> Canada

>

______________________________________________________________________

__

> Meet the new AOL.ca. Free radio, music, videos, news &

entertainment ? with a Canadian perspective.

>

January 21, 2008

---- Original Message ----

To: Breathe-Support

Sent: Mon, 21 Jan 2008 1:01 am

Subject: Re: An Update.....I know the reactions I'm going to get!