OMG- Latest Laugh from SSI !!! NCC

[Guest guest]

Dear All:

Please take this in the manner it was written. I in no way mean to hurt

anyone's feeling and hope you all see the humor in this...otherwise it is

totally unbelievable.

I have finally figured out the Social Security Administration. Due to

the ADA they have to hire Disabled Individuals also. That is great, everyone

deserves a chance at a job, but you would think they would think twice about

the position they give them...apparently the ones deciding who is disabled

and who is not were hired under the ADA (mentally challenged). This is how I

came to my conclusion.

I received a letter today from the SSI. Now was awarded his

initial SSI, beginning at birth, in an unbelievable 22 days. We applied Feb.

4 and received our approval letter on Feb. 26th. However the following is

the first three paragraphs of a letter accompanied by a 10 page questionnaire

<< " E. 's Social Security Disability Case file has been

sent to the Federal Disability Determination Services in Baltimore, land

for medical development and evaluation. After reviewing the claim, we find

that we need more information about daily activities and/or pain allegations.

Please attempt to answer all the questions on the enclosed form in as much

detail as possible and avoid single word answers. The information you

provide will help our agency make a final decision on the case.

This form should be returned within 10 calendar days from the date of this

letter, in the self-addressed, postage paid envelope provided. Failure to do

so may result in a determination being made based on the evidence in file. "

>>

Now believe it or not I sent in the other routine papers a month ago

explaining how is paralyzed from the waist down, 24 hour a day

humidified oxygen dependent, is G-Tube fed, and has had his trachea and

esophagus surgically separated to prevent aspiration pneumonias and bacterial

respiratory infections. This surgery has left him Non-vocal, and with the

trache as the only airway (he cannot breathe thru his nose or mouth) he

requires constant suctioning to keep this airway clear. All these situations

are permanent (Unless God intervenes). WHAT else could they possible need to

determine that is disabled. Even a child could figure it out with

what I sent already and just looking at his medical records they got. Any

one with any sense or smarts knows that spinal cord damage is irreversible,

that a cure has yet to be found.

You know I have to find some humor in this or the ignorance and stupidity

level at which the Government agencies function would really PISS me off.

Hope everyone is having a much better day!!!

Love, huggs, and prayers, Haydee (Nana to , 8 years old w/Spina

Bifida, ACM II, Hydrocephalus w/VP Shunt, Tethered Cord, Syringomyelia

w/Syrinx @ c1-c2, G-Tube fed, (totally NPO), Swallowing Coordination

Disorder, Neurogenic Bladder, ARDS (Lung Failure 3/30/97, 33 days on ECMO

(total lung bypass), 50 days in a Coma, 60 days on life support, 24

HR-Humidified Oxygen Dependent, Radical Tracheostomy w/total loss of Vocal

Cord Use, Resistant Pseudomonas, Paralyzed from the Waist Down, 18 Surgeries,

Asthma, Severe Latex Allergy, Allergy to many Medications, Adhesives, and

tons of other stuff, Posterior Fossa Decompression, Opening of the Dura, No

Graft, c1-c2 Laminectomy, March 2, 1999, so far so good and getting better

and stronger every day!!! With Such a Wonderful Love of Life and one

crazzzzzy Nana (dx'd so far with Lupus, Hypothyroidism, GERDS, IBS, Sleep

Apnea, Severe Edema) living right outside Baton Rouge, Louisiana)

's Web Page~~~~> The Story

http://www.pressenter.com/~chip/joshua.htm