02 nightmares

[Guest guest]

I've read about so many having trouble with 02, etc., I just had to

jump in and tell you about mine. Luckily I haven't had too much to

complain about, but here's the deal. When I first was put on 02 in

February, 2007, my son, Kaleb, loved the idea of pulling the cart

for me. He just thought he was Superman with that responsibility,

and it was nice, except for the occasional tug when he would pull

faster than I could keep up, and not to mention his directional

skills were lacking. But, my husband refused to have anything to do

with the oxygen. He actually even made some very unkind remarks

about being on oxygen, which didn't help my apprehension about the

whole thing. And, then there was my mother. When she learned of my

fait, she told me not to use the oxygen too much because I would

become dependent! Duh! I really couldn't get it through their

heads that it was medically necessary! I urged my insurance company

to supply me with a portable oxygen concentrator because my travels

to the transplant center were very long and that it would be

beneficial to me. But, that didn't work. They refused to pay for

one. So, I am still using the bottles that will last 1-2 hours on

intermittent and the one in the cart will last 3-4 hours on

intermittent. As for travels, I've switched suppliers twice. Once

was because of the lack of attention to my travel plans and the

required concentrator needed when I was out of town. It was

supposed to be set-up and the day before I was to leave, I called to

confirm everything, only to find out that it had not been set up.

The last minute rush was on when I told them I would find a supplier

who could take care of me in a better fashion. And, I switched as

soon as I returned from that trip. Thereafter, the new supplier

treated me well and I didn't have any complaints....until it came

time for me to move to Ohio. They were supposed to set that all up

for me. Even though they did not have any offices in or around

Sandusky or Cleveland, they said it would not be a problem, because

they were owned by Lincare and would find one for me. Well, I gave

them plenty of notice and they screwed up too! So, I came to Ohio,

found an oxygen supplier that day and had delivery set up that

afternoon. Unfortunately, it is a small local company and they

can't help me with travels either. So, I am on the search for a new

company. Oh, and that's not all. My living arrangements with my

mother were very sketchy in the beginning. We didn't know where

Kaleb and I would be sleeping, even though my mother and step-father

have two spare rooms. So, it turns out Kaleb and I had to get the

master bedroom because it is the farthest from their room, because

my step-father can't stand the sound of the oxygen concentrator.

LOL! Oh well, that suited me just fine. But, I had just

accomplished the year long battle it took for Kaleb to sleep in his

own room - and here we are sharing a room. He loves it, of course.

But, I had to give up a queen size bed for a twin because we had to

be able to fit two beds in one room! Now, if you're asking why we

couldn't use the other spare bedroom, well, it is because that room

was my brother's room and he passed away one year ago this month and

it is still a shrine in his honor. Nothing is allowed to be touched

or moved in that room and the door is kept locked and closed. I

understand the grieving part, but I wonder how long it will be like

this? And, then I wonder, upon my passing, if my room also becomes

a shrine, my mother and step-father will have given up half of their

house! I think they will sell the house and move after all this!

Anyway, I just wanted to share my story.

God Bless,

Tina

IPF 04/07 PH 11/07 Ohio

[Guest guest]

Oh Tina that doesnt sound good! I cant beleive O2 companies are like

that the horror stories I keep hearing! I hope your parents finish

their grieving before your gone because they should be enjoying every

minute they can get with you now. I am sorry things have to be so

rough especailly at a time like this when you need love and support!

We support you and are here for you!

Hang in there, Chin up!

Sandie

>

> I've read about so many having trouble with 02, etc., I just had to

> jump in and tell you about mine. Luckily I haven't had too much to

> complain about, but here's the deal. When I first was put on 02 in

> February, 2007, my son, Kaleb, loved the idea of pulling the cart

> for me. He just thought he was Superman with that responsibility,

> and it was nice, except for the occasional tug when he would pull

> faster than I could keep up, and not to mention his directional

> skills were lacking. But, my husband refused to have anything to

do

> with the oxygen. He actually even made some very unkind remarks

> about being on oxygen, which didn't help my apprehension about the

> whole thing. And, then there was my mother. When she learned of

my

> fait, she told me not to use the oxygen too much because I would

> become dependent! Duh! I really couldn't get it through their

> heads that it was medically necessary! I urged my insurance

company

> to supply me with a portable oxygen concentrator because my travels

> to the transplant center were very long and that it would be

> beneficial to me. But, that didn't work. They refused to pay for

> one. So, I am still using the bottles that will last 1-2 hours on

> intermittent and the one in the cart will last 3-4 hours on

> intermittent. As for travels, I've switched suppliers twice. Once

> was because of the lack of attention to my travel plans and the

> required concentrator needed when I was out of town. It was

> supposed to be set-up and the day before I was to leave, I called

to

> confirm everything, only to find out that it had not been set up.

> The last minute rush was on when I told them I would find a

supplier

> who could take care of me in a better fashion. And, I switched as

> soon as I returned from that trip. Thereafter, the new supplier

> treated me well and I didn't have any complaints....until it came

> time for me to move to Ohio. They were supposed to set that all up

> for me. Even though they did not have any offices in or around

> Sandusky or Cleveland, they said it would not be a problem, because

> they were owned by Lincare and would find one for me. Well, I gave

> them plenty of notice and they screwed up too! So, I came to Ohio,

> found an oxygen supplier that day and had delivery set up that

> afternoon. Unfortunately, it is a small local company and they

> can't help me with travels either. So, I am on the search for a

new

> company. Oh, and that's not all. My living arrangements with my

> mother were very sketchy in the beginning. We didn't know where

> Kaleb and I would be sleeping, even though my mother and step-

father

> have two spare rooms. So, it turns out Kaleb and I had to get the

> master bedroom because it is the farthest from their room, because

> my step-father can't stand the sound of the oxygen concentrator.

> LOL! Oh well, that suited me just fine. But, I had just

> accomplished the year long battle it took for Kaleb to sleep in his

> own room - and here we are sharing a room. He loves it, of

course.

> But, I had to give up a queen size bed for a twin because we had to

> be able to fit two beds in one room! Now, if you're asking why we

> couldn't use the other spare bedroom, well, it is because that room

> was my brother's room and he passed away one year ago this month

and

> it is still a shrine in his honor. Nothing is allowed to be

touched

> or moved in that room and the door is kept locked and closed. I

> understand the grieving part, but I wonder how long it will be like

> this? And, then I wonder, upon my passing, if my room also becomes

> a shrine, my mother and step-father will have given up half of

their

> house! I think they will sell the house and move after all this!

> Anyway, I just wanted to share my story.

>

> God Bless,

>

> Tina

> IPF 04/07 PH 11/07 Ohio

>