Anyone diagnosed by takayasu?

[Guest guest]

HI ALL,

i'm a new member of this group,and i'm so happy joining it.

Actually i have a rare disesse called TAKAYASU,(i wonder if anyone

in this group was diagnosed by this disease),it's an inflammatory

disease of unknown etiology that affects the aorta and its

branches,it caused me hypertension,and most of my veins were

affected,i'm now a 32 year old female who lost all her dreams and

her aim is searching everywhere for the right medicine to this rare

disease,that attacked my whole life changing it to a sad,depressed

one.

sometimes it's good to share your experience with others especially

those who suffer from other illness,cause i think the pain is the

same although the only difference could be the name of the disease.

with respect.

MIRNA.

[Guest guest]

Hello and welcome to the group Mirna. I am glad that you found us, though sorry that you have the need for a support group like this one.

I had never heard of Takayasu before but I have been reading a bit about it. I know that RA can affect the heart though it doesn't always.

Hugs, Jacy

~Dogs have owners but Cats have staff.

jacymail@...IM: jacygal - ICQ: 96949087www.geocities.com/mtn_rose

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-----Original Message-----From: mirna [mailto:eguana23@...]Sent: Tuesday, September 07, 2004 15:16Rheumatoid Arthritis Subject: Anyone diagnosed by takayasu?HI ALL,i'm a new member of this group,and i'm so happy joining it.Actually i have a rare disesse called TAKAYASU,(i wonder if anyone in this group was diagnosed by this disease),it's an inflammatory disease of unknown etiology that affects the aorta and its branches,it caused me hypertension,and most of my veins were affected,i'm now a 32 year old female who lost all her dreams and her aim is searching everywhere for the right medicine to this rare disease,that attacked my whole life changing it to a sad,depressed one.sometimes it's good to share your experience with others especially those who suffer from other illness,cause i think the pain is the same although the only difference could be the name of the disease.with respect.MIRNA.

[Guest guest]

Jacy, my husband had RA and it effected his heart. He went into Congestive

Heart Failure. Atrophy also set in and when he died he was down to about

145 or 150 pounds. He did weigh over 200 pounds. I never saw a person

suffer so much as he did. He wanted to die........Joyce

----- Original Message -----

From: " Jacy " <jacymail@...>

<Rheumatoid Arthritis >

Sent: Thursday, September 09, 2004 4:28 PM

Subject: RE: Anyone diagnosed by takayasu?

Hello and welcome to the group Mirna. I am glad that you found us, though

sorry that you have the need for a support group like this one.

I had never heard of Takayasu before but I have been reading a bit about it.

I know that RA can affect the heart though it doesn't always.

Hugs, Jacy ~Dogs have owners but Cats have staff.

jacymail@...

IM: jacygal - ICQ: 96949087

www.geocities.com/mtn_rose

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-----Original Message-----

From: mirna [mailto:eguana23@...]

Sent: Tuesday, September 07, 2004 15:16

Rheumatoid Arthritis

Subject: Anyone diagnosed by takayasu?

HI ALL,

i'm a new member of this group,and i'm so happy joining it.

Actually i have a rare disesse called TAKAYASU,(i wonder if anyone

in this group was diagnosed by this disease),it's an inflammatory

disease of unknown etiology that affects the aorta and its

branches,it caused me hypertension,and most of my veins were

affected,i'm now a 32 year old female who lost all her dreams and

her aim is searching everywhere for the right medicine to this rare

disease,that attacked my whole life changing it to a sad,depressed

one.

sometimes it's good to share your experience with others especially

those who suffer from other illness,cause i think the pain is the

same although the only difference could be the name of the disease.

with respect.

MIRNA.

[Guest guest]

Mirna,

Hope you find some relief. The newest big thing is that inflammation

is a cause of many, many problems. I use Lodine XL or generic form is

called Etodolac for inflammation. Keep trying anti-inflammatories til you

find one that helps and don't give up!!! Start reading and educate

yourself as much as possible. Be proactive because it is YOUR body.

Doctors are not Gods and many times it is just trial and error. Hang in

there with the rest of us!

Kay

----- Original Message -----

From: " mirna " <eguana23@...>

<Rheumatoid Arthritis >

Sent: Tuesday, September 07, 2004 4:15 PM

Subject: Anyone diagnosed by takayasu?

>

> HI ALL,

> i'm a new member of this group,and i'm so happy joining it.

> Actually i have a rare disesse called TAKAYASU,(i wonder if anyone

> in this group was diagnosed by this disease),it's an inflammatory

> disease of unknown etiology that affects the aorta and its

> branches,it caused me hypertension,and most of my veins were

> affected,i'm now a 32 year old female who lost all her dreams and

> her aim is searching everywhere for the right medicine to this rare

> disease,that attacked my whole life changing it to a sad,depressed

> one.

> sometimes it's good to share your experience with others especially

> those who suffer from other illness,cause i think the pain is the

> same although the only difference could be the name of the disease.

>

> with respect.

> MIRNA.

>

>

>

>

>

>

>

[Guest guest]

Oh Joyce I am so very sorry to hear that!

Hugs, Jacy

~Dogs have owners but Cats have staff.

jacymail@...IM: jacygal - ICQ: 96949087www.geocities.com/mtn_rose

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-----Original Message-----From: Joyce McCrary [mailto:j.mccrary@...]Sent: Thursday, September 09, 2004 18:55Rheumatoid Arthritis Subject: Re: Anyone diagnosed by takayasu?Jacy, my husband had RA and it effected his heart. He went into CongestiveHeart Failure. Atrophy also set in and when he died he was down to about145 or 150 pounds. He did weigh over 200 pounds. I never saw a personsuffer so much as he did. He wanted to die........Joyce----- Original Message ----- From: "Jacy" <jacymail@...><Rheumatoid Arthritis >Sent: Thursday, September 09, 2004 4:28 PMSubject: RE: Anyone diagnosed by takayasu?Hello and welcome to the group Mirna. I am glad that you found us, thoughsorry that you have the need for a support group like this one.I had never heard of Takayasu before but I have been reading a bit about it.I know that RA can affect the heart though it doesn't always. Hugs, Jacy ~Dogs have owners but Cats have staff. jacymail@... IM: jacygal - ICQ: 96949087 www.geocities.com/mtn_rose Signature powered by Plaxo Want a signature like this? -----Original Message----- From: mirna [mailto:eguana23@...] Sent: Tuesday, September 07, 2004 15:16 Rheumatoid Arthritis Subject: Anyone diagnosed by takayasu? HI ALL, i'm a new member of this group,and i'm so happy joining it. Actually i have a rare disesse called TAKAYASU,(i wonder if anyone in this group was diagnosed by this disease),it's an inflammatory disease of unknown etiology that affects the aorta and its branches,it caused me hypertension,and most of my veins were affected,i'm now a 32 year old female who lost all her dreams and her aim is searching everywhere for the right medicine to this rare disease,that attacked my whole life changing it to a sad,depressed one. sometimes it's good to share your experience with others especially those who suffer from other illness,cause i think the pain is the same although the only difference could be the name of the disease. with respect. MIRNA.

[Guest guest]

Thank you Jacy.....Joyce

----- Original Message -----

From: Jacy

Rheumatoid Arthritis

Sent: Friday, September 10, 2004 1:05 AM

Subject: RE: Anyone diagnosed by takayasu?

Oh Joyce I am so very sorry to hear that!

Hugs, Jacy

~Dogs have owners but Cats have staff.

jacymail@...IM: jacygal - ICQ: 96949087www.geocities.com/mtn_rose

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-----Original Message-----From: Joyce McCrary [mailto:j.mccrary@...]Sent: Thursday, September 09, 2004 18:55Rheumatoid Arthritis Subject: Re: Anyone diagnosed by takayasu?Jacy, my husband had RA and it effected his heart. He went into CongestiveHeart Failure. Atrophy also set in and when he died he was down to about145 or 150 pounds. He did weigh over 200 pounds. I never saw a personsuffer so much as he did. He wanted to die........Joyce----- Original Message ----- From: "Jacy" <jacymail@...><Rheumatoid Arthritis >Sent: Thursday, September 09, 2004 4:28 PMSubject: RE: Anyone diagnosed by takayasu?Hello and welcome to the group Mirna. I am glad that you found us, thoughsorry that you have the need for a support group like this one.I had never heard of Takayasu before but I have been reading a bit about it.I know that RA can affect the heart though it doesn't always. Hugs, Jacy ~Dogs have owners but Cats have staff. jacymail@... IM: jacygal - ICQ: 96949087 www.geocities.com/mtn_rose Signature powered by Plaxo Want a signature like this? -----Original Message----- From: mirna [mailto:eguana23@...] Sent: Tuesday, September 07, 2004 15:16 Rheumatoid Arthritis Subject: Anyone diagnosed by takayasu? HI ALL, i'm a new member of this group,and i'm so happy joining it. Actually i have a rare disesse called TAKAYASU,(i wonder if anyone in this group was diagnosed by this disease),it's an inflammatory disease of unknown etiology that affects the aorta and its branches,it caused me hypertension,and most of my veins were affected,i'm now a 32 year old female who lost all her dreams and her aim is searching everywhere for the right medicine to this rare disease,that attacked my whole life changing it to a sad,depressed one. sometimes it's good to share your experience with others especially those who suffer from other illness,cause i think the pain is the same although the only difference could be the name of the disease. with respect. MIRNA.

[Guest guest]

HI KAY,

thank you so much for ur reply and your encouragement,I really appreciate it,and i'll promise you to be up to date with everything new, concerning my disease, just hoep to find the right one.

with respect,

mirnaTired of spam? Get advanced junk mail protection with MSN 8.