Tricia

[Guest guest]

Tricia,

Hi. Thanks for your two cents worth. Christen's main complaints are gas,

belly aches, loose stools, and spitting up. She has never had a throat

culture. She has never seen a pulmnologist or a real CF doctor. Our

pediatrician will not make the referral because CF was ruled out by a

pediatric gastroenterologist and deemed " unnecessary " . Her sweats were 41

and 25. She was on Creon 10 at one point and doing well, but was taken off

by this gastroenterologist because he said they were dangerous and she did

not need them anyway. She does not, in our opinion, do as well without the

enzymes. The doctors say that she cannot have CF because she is between the

75 and 90 percentile as far as weight goes on the growth chart. We will talk

to both doctors soon and see what we might do as far as future care goes.

Thanks,

Diane