Re: Update on How Everything is going!

[Guest guest]

You sure do put your cell camera to good use. Sometimes I forget I

have one.

Probably no alternative to prednisone in that situation but at least

its just three days. Although it its back to normal size then is it

just to keep it from flaring again?

Yes, some technicians are great, but some forget the rule: Better to

keep your mouth shut and let people think you are a fool than to open

your mouth and remove all doubt.

>

> Hi All my Friends.

>

> This morning, I had the HRCT for my lungs, I don't know why

technician was looking for a Blood in My Lungs, instead he was

supposed to be looking to see if PF has progressed...I asked him,

will you be able to see if disease progressed, he said we did get a

clear view of your lungs....

>

> On Friday, my hand swelled, was numb, couldn't feel it etc...made

an urgent appointment to see my Rheumatologist today after the scan,

took photos of my hand on cell and showed them to her this morning,

because I knew by the time I will see her my hand would be back to

normal size.? I have to e-mail the pictures to her of hand...once I

get to know how to do it, I'll post them on the group.

>

> I was prescribed Prednisone 20mg to take for 3 days, each time it

happens. I told my dr's today...I don't like a bit that I have to go?

on Pred. ??

>

> The diagnosis: RS3PE in translation? it means " Remitting

seronegative symmetrical synovitis with pitting oedema "

>

> Pictures are very? gross to look at:

> http://www.rhumatologie.asso.fr/images/Pub-select/img-71-484-488-

1.jpg

> http://www.ssjs.ac.jp/jpc/BUNKEN/ORTHO/RS3PE/RS3PE.jpg

>

> Irene Raynaud's Disease PF 03/07 Canada

>

>

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> Meet the new AOL.ca. Free radio, music, videos, news &

entertainment ? with a Canadian perspective.

>

[Guest guest]

Irene... I wouldn't call the pictures gross but they sure look like sore hands!

I'm sorry you deal with this disease.

Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there!

Update on How Everything is going!

Hi All my Friends.This morning, I had the HRCT for my lungs, I don't know why technician was looking for a Blood in My Lungs, instead he was supposed to be looking to see if PF has progressed...I asked him, will you be able to see if disease progressed, he said we did get a clear view of your lungs....On Friday, my hand swelled, was numb, couldn't feel it etc...made an urgent appointment to see my Rheumatologist today after the scan, took photos of my hand on cell and showed them to her this morning, because I knew by the time I will see her my hand would be back to normal size. I have to e-mail the pictures to her of hand...once I get to know how to do it, I'll post them on the group.I was prescribed Prednisone 20mg to take for 3 days, each time it happens. I told my dr's today...I don't like a bit that I have to go on Pred. The diagnosis: RS3PE in translation it means "Remitting seronegative symmetrical synovitis with pitting oedema"Pictures are very gross to look at:http://www.rhumatologie.asso.fr/images/Pub-select/img-71-484-488-1.jpghttp://www.ssjs.ac.jp/jpc/BUNKEN/ORTHO/RS3PE/RS3PE.jpgIrene Raynaud's Disease PF 03/07 Canada

Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective.