Re: Dr. Bruce and all who post here from Lou

[Guest guest]

If you're on 3 for sitting, then 4 in shower for that brief time

wouldn't be at all a surprise that you needed. However, I will say

here that, in my humble opinion, no one should be on a constant level

24/7. Thats an office prescription and not based on anything real.

You certainly don't need the same sitting on the sofa you need out

shopping or cleaning the house. I so strongly recommend an oximeter.

Also you can have a 24 hour oximeter study done and do all your

normal activities and have the changes tracked. My personal needs to

from 0 to 4. I was initially told 2 liters 24/7. At two liters moving

fast my oxygen would be in the low 80's. At 2 liters on the

treadmill, well, I'd never try that to find out where it would go

after 30 minutes at 2 or 2.5 mph. Of course, at 2 liters I'd never be

able to do that.

>

> I just want to thank every one of you who have made very wonderful

> suggestions about the cannula in the shower. I do know I am on #3

> level 24/7, is it harmful to put it higher? They say the higher

the

> level, the harder it is on your lungs and heart. How is that

> possible? " They " , are the articles I have read.

>

> You guys have all been there for me and I really need you now. I

am

> struggling to take care of Hubby with pneumonia too. I do not feel

so

> well today, I made pancakes this morning (bisquick) and they were

> really good. I think we will order in tonight. I hope I don't get

the

> pneumonia. Has anyone here known anyone to have PF and pneumonia

same

> time?

>

> Guess too many questions. I definitely am taking on a terry

bathrobe

> for the shower tho so I don't have to dry off, that seems to really

> drain me.

>

> Love you all so much.

> Love, Lou (don't have an oximeter) my pulmo won't give me one

>

[Guest guest]

> >

> > I just want to thank every one of you who have made very

wonderful

> > suggestions about the cannula in the shower. I do know I am on

#3

> > level 24/7, is it harmful to put it higher? They say the higher

> the

> > level, the harder it is on your lungs and heart. How is that

> > possible? " They " , are the articles I have read.

> >

> > You guys have all been there for me and I really need you now. I

> am

> > struggling to take care of Hubby with pneumonia too. I do not

feel

> so

> > well today, I made pancakes this morning (bisquick) and they were

> > really good. I think we will order in tonight. I hope I don't

get

> the

> > pneumonia. Has anyone here known anyone to have PF and pneumonia

> same

> > time?

> >

> > Guess too many questions. I definitely am taking on a terry

> bathrobe

> > for the shower tho so I don't have to dry off, that seems to

really

> > drain me.

> >

> > Love you all so much.

> > Love, Lou (don't have an oximeter) my pulmo won't give me

one

> >

>THANKS BRUCE FOR YOUR HELP

LOVE, MARY LOU (AT LEAST, HA, THERE IS LOVE IN MY LETTERS. HAHAHA)

[Guest guest]

Well, often insurance won't cover them either. At least insist on a

24 hour reading. And, if you can afford an oximeter, I'd say buy one.

They start around $150 for pretty decent ones and $250 for great

ones. I know many pulmonologists oppose them. But they aren't able to

check you under all conditions. My guess is 3 is what kept you

maintained during a six minute walk. Well, what if you aren't walking

or if you walk faster.

Well, I'm off for a while. Been sitting a bit on 1 liter and turning

up to 3 to head out the door. I'll check while out to make sure thats

getting the job done.

> > >

> > > I just want to thank every one of you who have made very

> wonderful

> > > suggestions about the cannula in the shower. I do know I am on

> #3

> > > level 24/7, is it harmful to put it higher? They say the

higher

> > the

> > > level, the harder it is on your lungs and heart. How is that

> > > possible? " They " , are the articles I have read.

> > >

> > > You guys have all been there for me and I really need you now.

I

> > am

> > > struggling to take care of Hubby with pneumonia too. I do not

> feel

> > so

> > > well today, I made pancakes this morning (bisquick) and they

were

> > > really good. I think we will order in tonight. I hope I don't

> get

> > the

> > > pneumonia. Has anyone here known anyone to have PF and

pneumonia

> > same

> > > time?

> > >

> > > Guess too many questions. I definitely am taking on a terry

> > bathrobe

> > > for the shower tho so I don't have to dry off, that seems to

> really

> > > drain me.

> > >

> > > Love you all so much.

> > > Love, Lou (don't have an oximeter) my pulmo won't give me

> one

> > >

> >THANKS BRUCE FOR YOUR HELP

> LOVE, MARY LOU (AT LEAST, HA, THERE IS LOVE IN MY LETTERS. HAHAHA)

>