Re: Kathie

[Guest guest]

Sher, Sorry it has taken me a couple of days to get back to the

group. Friday was my " big " day at the lung doc's. Had ecco, ct,

pfts, met with Dr. Raghu. Draining. So I have spent the weekend

napping and watching football with my husband.

You are right Tacoma isn't far away and we have very good friends

that live in Woodburn. We meet with them and go RV camping. Maybe

when the weather gets better we CAN meet. works and I don't

drive too far, we call it the magic circle.

I will sum up my Dr.'s comments to three words, " deteriorating but

stable " . My dx has been changed to include hypersensitivity

pneumonitis (hp) again to the NSIP, type II. It started as HP almost

12 years ago.

Even though I don't post too often, Sher, I have been reading since

last March and I feel pretty confident with your statement about

being " more assertive " . lol

I know tired, sometimes I feel just too tired to breathe, but I keep

on doing it!

Kathie WA

NSIP '96, PH

---

Kathie... I'm going to be more assertive (if it's possible, lol)when

I go to OHSU in Feb. I'm just not feeling good and sooooo tired. I

get out of bed and sit here for 2-3 hrs, leave and come back again. I

tell myself it's better than going back to bed. My O2 provider -

Lincare - offers a complimentary 24 hr oximeter and I'll work that

baby this time!

Gee, Tacoma isn't that far away! Maybe we can arrange to get together

some day when the weather is nicer. Half-way or something. I don't

mind the drive.

My daughter, Lysa, lives in Aloha, and we are in Canby. East of

ville.

There aren't many of us in this great Pacific Northwest. Armede

(doesn't post much anymore) lives in Seattle and Joy does too. Maybe

we can get something going......??

I met R when she was in Salem visiting her daughter. It was

such fun to actually meet her. She's a little tiny gal and when we

had our picture taken I looked and felt like Bunyan's mother!!

The picture is on the web...look in her album.

What you said to Leanne echoes my thoughts too! Thanks for writing so

thoughtfully.

Take care. Glad to meetcha.

Mama-Sher, 69; IPF, 3-06, OR.

Don't fret about tomorrow, God is already there!

Re:

Sher,

During my years with this disease I have been on and off O2 several

times. And once or twice when I felt I needed to back on my sats

wouldn't drop " low enough " to satisfy insurance guidelines (in other

words I was still conscious lol). My PCP was great, she told me if

they weren't low enough from walking in the halls we would take a few

stairs or even head out to the parking lot! She is wonderful.

Like many here the 6 minute walk is fine as a measure but in real

life when we " walk " , we're carrying our O2, or groceries or pushing a

vacuum or whatever. Not strolling down a long hall with a tech or

therapist carrying our air.

Kathie NSIP '96, PAH

WA.