Re: Shelly

[Guest guest]

Great news on the Enbrel but who figured his dose on the methadone? I

hope he doesn't have to be on such a painkiller too long and Enbrel

works for him. Good luck.

Beverly

[Guest guest]

,

People that use pain medicine to relieve pain do not get addicted to them.

It is the people that take them that don't need them. that can become

addicted. For many years I suffered with pain because I was afraid of

addiction. Alcoholism is on my father's side, and I worried that I could

become addicted to pain meds.

Pain meds should be treated just like any other necessary medicine. I'll

send in some sites that explain pain treatment and addiction.

a

----- Original Message -----

From: <12372101@...>

< egroups>

Sent: Thursday, April 20, 2000 9:11 PM

Subject: Re: [ ]

> Beverly,

>

> the dose of Methadone was 1/2 tablet every 8 hrs and it was 5mgs per

tablet

> so he was only getting 2.5mg per dose.We were surprised that it affected

him

> like that. He had 2 doses one at 10pm last night and one at 9:30 this

> morning. It seems that he just can't take this kind of pain killer. he has

> taken Demerol before and codine and never had a reaction like this but we

> were trying it because it was a non-addicting pain killer. I am so worried

> about using addicting meds since there has been drug addiction in the

family

> in the past and i have a great fear that it could be passed down. So we

are

> going back to the old pain killer but he will get it everyday not just

when

> he can't take the pain anymore. The ER dr said that his Rhem. dr must have

> really felt that it would help jesse. She knows s Dr personally and

> knows that he cares for his kids and wouldn't do anything to hurt.

>

>

>

> ------------------------------------------------------------------------

> High rates giving you headaches? The 0% APR Introductory Rate from

> Capital One. 9.9% Fixed thereafter!

> 1/3010/4/_/478567/_/956279499/

> ------------------------------------------------------------------------

>

> URL to change your membership options:

/group/

> RA-support website: http://www.rasupport.webprovider.com/

> Our chat room: www.delphi.com/RheumatoidArth1/start

>

[Guest guest]

,

I'm happy that Jake is doing so well.

Quite a scare with though! I think you and your family have had quite

enough excitement for awhile. I'm so happy that was approved for

Enbrel. I'm hoping so much that it helps him. Can't wait to hear how it

goes.

> I have some good news and some bad news today. First i will tell that

Jakes

> checkup for his ears went great. He had a new hearing test done and he his

> above normal now. When i was checking out of the drs with jake, my oldest

son

> called on the cell phone and said that jesse was acting really strange. He

> started hitting one of their friends and then passed out cold in the boys

> arms and then couldn't get him to wake up so we rushed home and i

> tried to get him awake but i couldn't get him to wake up either so i

called

> the dr and he said stop the Methadone and get him to the ER so they can

watch

> him good.Basicly he was well kind of drunk in a way.He is home now doing

> good.

>

> now for the other good new. As we were leaving came out to the

> driveway saying the drug store was calling to tell me that the Enbrel was

> approved. I went and got it after we left the hospital.So jesse will start

it

> tomorrow but he wants to wait until tuesday to do it. I might let him pass

> until then since he still feels funny from today. Don't want to put more

> stess into his little body.

>

> Hopefully the Enbrel will work for him. Crossing fingers,

[Guest guest]

Thank you a for telling me this. It makes me feel better about trying

another pain med. I can't stand seeing him hurt but i sure can't handle what

i watched him go through yesterday. Well he slept through most of it, it was

the rest of us having heart attacks over it.

I just gave jesse his first Enbrel injection and he said wow mom you didn't

hurt me at all and he was so happy that it didn't sting like the methotrexate

did when he had that in injections.Any way he said the needle size that comes

in the kit feels fine and i told him no waiting just close your eyes and i do

it. He did great. he didn't even bleed but he wanted a band aid any way so i

gave him one. I am so happy that it was a good experience cause he was so

nervous. I am also proud that i didn't hurt him. I must be getting better at

this.

just want you and everyone to know that it went great. Thanks ,

[Guest guest]

Barb,

First of all you have to be a special person cause my moms name is Barbara

too. Yes jesse is amazing most of the time. Some days he acts like a brat but

i don't know a child that doesn't. LOL.

It has felt like we have gone back to square one a few times. turned 11

in march and is the second oldest of five boys.He is very smart and very

cute. He has tow head blonde hair, Blue-gray eyes, freckles and the biggest

dimples in town.

He is only 49 inches tall and weighs 481/2 pounds. He is very tiny but tries

to be the biggest kid on the block.

One day is gonna be there for all the kids that need someone to look up

to. he is pretty special. I hope that you can find the right treatment for

you. I am hoping the Enbrel will be just what jesse needs.

Take care will thinking about you,

[Guest guest]

Today has been a day for the 2 youngest ones to fight all day. They fight but

when it comes to doing things that are wrong they do it together. Its been a

long day. If i remember correctly its a full moon. It seems my kids react to

full moons. The older kids have been good though.

I will have to scan a good picture of to send to all of you so you know

just who he is. He is one of those kids that steals a persons heart.

[Guest guest]

,

I'm so new here that I don't know how old is but I just wanted to tell

you that he gave me the needed " push " to suck it up today and move on. I

have been sooo fatigued and frustrated about going back to, what is for me,

square on that I have forgetten to counting my blessings!! (like the

possiblity of ne wdrugsenbrel and remicade for starters) Thank you God for

children who alow us adults to see things thru their eyes!! And thank you

for sharing with us!! What a trooper!

Barb

-----Original Message-----

From: 12372101@... <12372101@...>

egroups < egroups>

Date: Friday, April 21, 2000 1:34 PM

Subject: Re: [ ]

>Thank you a for telling me this. It makes me feel better about trying

>another pain med. I can't stand seeing him hurt but i sure can't handle

what

>i watched him go through yesterday. Well he slept through most of it, it

was

>the rest of us having heart attacks over it.

>

>I just gave jesse his first Enbrel injection and he said wow mom you didn't

>hurt me at all and he was so happy that it didn't sting like the

methotrexate

>did when he had that in injections.Any way he said the needle size that

comes

>in the kit feels fine and i told him no waiting just close your eyes and i

do

>it. He did great. he didn't even bleed but he wanted a band aid any way so

i

>gave him one. I am so happy that it was a good experience cause he was so

>nervous. I am also proud that i didn't hurt him. I must be getting better

at

>this.

>

>just want you and everyone to know that it went great. Thanks ,

>

>------------------------------------------------------------------------

>You can win $1000!

>Just one of 1000 great reasons to visit eGroups!

>Click here:

>1/2865/4/_/478567/_/956349139/

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>

>URL to change your membership options:

/group/

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>Our chat room: www.delphi.com/RheumatoidArth1/start

>

>

[Guest guest]

All,

Oh my gosh, I just read my own reply. PLEASE excuse my typing skills, I feel

like I'm under water right now. i can't even think straight, let alone

spell, obviously!! Although, if you ask my sister she'll tell you that

during one of my ear surgeries they removed my brain by accident. LOL!

Oh,the joys of sibling rivalry! you must see some of that.

Thanks for telling me about , I can now see him in my minds eye.

Barb

iginal Message-----

From: Kendall <bbkendall@...>

egroups < egroups>

Date: Friday, April 21, 2000 2:50 PM

Subject: Re: [ ]

>,

>I'm so new here that I don't know how old is but I just wanted to

tell

>you that he gave me the needed " push " to suck it up today and move on. I

>have been sooo fatigued and frustrated about going back to, what is for me,

>square on that I have forgetten to counting my blessings!! (like the

>possiblity of ne wdrugsenbrel and remicade for starters) Thank you God for

>children who alow us adults to see things thru their eyes!! And thank you

>for sharing with us!! What a trooper!

>Barb

>-----Original Message-----

>From: 12372101@... <12372101@...>

> egroups < egroups>

>Date: Friday, April 21, 2000 1:34 PM

>Subject: Re: [ ]

>

>

>>Thank you a for telling me this. It makes me feel better about trying

>>another pain med. I can't stand seeing him hurt but i sure can't handle

>what

>>i watched him go through yesterday. Well he slept through most of it, it

>was

>>the rest of us having heart attacks over it.

>>

>>I just gave jesse his first Enbrel injection and he said wow mom you

didn't

>>hurt me at all and he was so happy that it didn't sting like the

>methotrexate

>>did when he had that in injections.Any way he said the needle size that

>comes

>>in the kit feels fine and i told him no waiting just close your eyes and i

>do

>>it. He did great. he didn't even bleed but he wanted a band aid any way so

>i

>>gave him one. I am so happy that it was a good experience cause he was so

>>nervous. I am also proud that i didn't hurt him. I must be getting better

>at

>>this.

>>

>>just want you and everyone to know that it went great. Thanks ,

>>

>>------------------------------------------------------------------------

>>You can win $1000!

>>Just one of 1000 great reasons to visit eGroups!

>>Click here:

>>1/2865/4/_/478567/_/956349139/

>>------------------------------------------------------------------------

>>

>>URL to change your membership options:

>/group/

>>RA-support website: http://www.rasupport.webprovider.com/

>>Our chat room: www.delphi.com/RheumatoidArth1/start

>>

>>

>

>

>------------------------------------------------------------------------

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>

>

[Guest guest]

Thank you a now stop making me blush, lol.

[Guest guest]

Oh you guys are gonna make my head swell with all this praise. but i love it.

Thanks Joan.

[Guest guest]

,

Thanks for sharing . He sounds adorable! He is one special kid to be

suffering with such pain, yet not let it make him bitter or angry. Maybe it

is because he has such a special

mom.

a

----- Original Message -----

From: <12372101@...>

< egroups>

Sent: Friday, April 21, 2000 6:13 PM

Subject: Re: [ ]

> Barb,

>

> First of all you have to be a special person cause my moms name is Barbara

> too. Yes jesse is amazing most of the time. Some days he acts like a brat

but

> i don't know a child that doesn't. LOL.

>

> It has felt like we have gone back to square one a few times. turned

11

> in march and is the second oldest of five boys.He is very smart and very

> cute. He has tow head blonde hair, Blue-gray eyes, freckles and the

biggest

> dimples in town.

> He is only 49 inches tall and weighs 481/2 pounds. He is very tiny but

tries

> to be the biggest kid on the block.

>

> One day is gonna be there for all the kids that need someone to look

up

> to. he is pretty special. I hope that you can find the right treatment for

> you. I am hoping the Enbrel will be just what jesse needs.

>

> Take care will thinking about you,

>

> ------------------------------------------------------------------------

> Good friends, school spirit, hair-dos you'd like to forget.

> Classmates.com has them all. And with 4.4 million alumni already

> registered, there's a good chance you'll find your friends here:

> 1/2885/4/_/478567/_/956355239/

> ------------------------------------------------------------------------

>

> URL to change your membership options:

/group/

> RA-support website: http://www.rasupport.webprovider.com/

> Our chat room: www.delphi.com/RheumatoidArth1/start

>

[Guest guest]

,

Try to think of it like diabetes. Does a diabetic get addicted to insulin?

Yes, technically, but it is not a mental addiction, it is a necessity for

life. People that take pain meds for recreation are ones that become

addicted. Please talk to the doctor about your concerns. After I finally

fessed up to my doctor about fear of addiction, he verified what others on

the list told me. I really believe I developed fibromyalgia from always

being in pain. I would have to be on the verge of tears before I took pain

meds, thinking I would become an addict.

I am so happy that he got his Enbrel shot and it wasn't anything unpleasant.

That is such good news, but will be better news if it helps him. If it

controls the RA, his need for pain meds may be decreased.

You did a good job mom! I hope you all have a happy Easter.

a

----- Original Message -----

From: <12372101@...>

< egroups>

Sent: Friday, April 21, 2000 4:31 PM

Subject: Re: [ ]

> Thank you a for telling me this. It makes me feel better about trying

> another pain med. I can't stand seeing him hurt but i sure can't handle

what

> i watched him go through yesterday. Well he slept through most of it, it

was

> the rest of us having heart attacks over it.

>

> I just gave jesse his first Enbrel injection and he said wow mom you

didn't

> hurt me at all and he was so happy that it didn't sting like the

methotrexate

> did when he had that in injections.Any way he said the needle size that

comes

> in the kit feels fine and i told him no waiting just close your eyes and i

do

> it. He did great. he didn't even bleed but he wanted a band aid any way so

i

> gave him one. I am so happy that it was a good experience cause he was so

> nervous. I am also proud that i didn't hurt him. I must be getting better

at

> this.

>

> just want you and everyone to know that it went great. Thanks ,

>

> ------------------------------------------------------------------------

> You can win $1000!

> Just one of 1000 great reasons to visit eGroups!

> Click here:

> 1/2865/4/_/478567/_/956349139/

> ------------------------------------------------------------------------

>

> URL to change your membership options:

/group/

> RA-support website: http://www.rasupport.webprovider.com/

> Our chat room: www.delphi.com/RheumatoidArth1/start

>

[Guest guest]

Hi, ,

I am so very happy that was able to start the Enbrel today, and

congratulations to you on doing such a fine job!! and all of your

family have become very special to all of us, and I am sure that

can teach us a lot. He is a very brave young man, and you have every

right to be proud of him, as well as of all your children. It is so hard

to watch a child in pain.

Hang in there, !! We are all behind you.

Hugs,

Joan

12372101@... wrote:

>

> Thank you a for telling me this. It makes me feel better about trying

> another pain med. I can't stand seeing him hurt but i sure can't handle what

> i watched him go through yesterday. Well he slept through most of it, it was

> the rest of us having heart attacks over it.

>

> I just gave jesse his first Enbrel injection and he said wow mom you didn't

> hurt me at all and he was so happy that it didn't sting like the methotrexate

> did when he had that in injections.Any way he said the needle size that comes

> in the kit feels fine and i told him no waiting just close your eyes and i do

> it. He did great. he didn't even bleed but he wanted a band aid any way so i

> gave him one. I am so happy that it was a good experience cause he was so

> nervous. I am also proud that i didn't hurt him. I must be getting better at

> this.

>

> just want you and everyone to know that it went great. Thanks ,

[Guest guest]

Thank you Sandy i sure hope i am not like my father was. After he died my mom

was to over protective that she smothered me until i was 15 and then i rebel

and ran away from home and all kinds of things. I never did get into drugs or

lots of drinking then and i was way to shy and afraid to ever be involved

with a guy to seriously until i was 17 and in a foster home with a wonderful

family. i am very thankful for that experince because with out it i don't

think that i would be the way i am now. I understand how things are with my

kids and try not to pry much into their " privacy " but they feel close enough

to me to talk and well i usually can tell when they are up to somethings

thats not on the level.I try not to be over protective and smothering but

when they screw up they are punished but not harshly. If we can talk about it

and they accept their punishment then its much easier. The only one that has

to argue with me is but thats his age but he takes his punishment like

a man even if he doesn't agree with it. My mom always makes me know that i am

doing a good job and she always tells me that my grandparents always say how

good my kids are. they see my kids maybe once every 5 years and they see my

youngest cousin daily and my kids always hug them and kiss them and my cousin

who is the same age as jesse barely even talks to them. so they think my kids

are caring and sensitive children. they say that with everything that we have

gone through my kids show lots of love to people. That makes me feel good and

very proud of my boys.

Thank you, shelly

[Guest guest]

,

Well, our relationship was rocky for many years. It was only the last 5

years he was alive that we were able to make our amends ~ and he was the one

who initiated the mending, which I am so thankful for.

I cannot imagine what you must have gone through!!! How horrible!!! My

fiancee' has horror stories regarding his father and growing up years that

would make your hair stand up on the back of your neck!! I just cannot

comphrehend fully the extent that some children suffer through with their

parents.

At any rate, you sound like you are an excellent parent!!!

Hugs,

Sandy

>I wish that i had that kind of relationship with my father. My father also

>died when i was young. I was 9 years old and my father died of a stab wound

>that was inflected by my stepmother. The last imagine of my father that i

>have is him laying on the kitchen floor bleeding and dying. My father was

not

>a nice man though. i can say that he was good to me but not to the rest of

my

>family. I was his princess but it was more of and emotional control over my

>mother so to speak.to say the least it has haunted me for most of my

life.So

>hearing a story like that gives me hope that not every father was like

>mine.Very beautiful.

>

>

>

>------------------------------------------------------------------------

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>1/3019/4/_/478567/_/957130448/

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>

>URL to change your membership options:

/group/

>RA-support website: http://www.rasupport.webprovider.com/

>Our chat room: www.delphi.com/RheumatoidArth1/start

>

>

[Guest guest]

, your Son sounds like a wonderful and Loving Child you should be

Proud:) hugs jenny

[Guest guest]

Of course I'll be thinking of you tomorrow, ! Good luck. I've had my

share of dental nightmares. In fact, I was just at the endodontist

yesterday. I think the anxiety before the appointment is worse than the

procedure sometimes.

Sounds like the oral surgeon is very kind. You won't have to worry. Tooth

extraction is a routine procedure these days. I'm sure they'll take very

good care of you.

Let us know how it all went when you have the chance.

----- Original Message -----

From: <12372101@...>

< egroups>

Sent: Wednesday, May 31, 2000 7:35 AM

Subject: Re: [ ] Many Common Drugs Promote Tooth Decay

> Speaking of teeth, i am not sure i will be able to be apart of prayer day

on

> friday. I go in early to have surgery to have 5 or 6 teeth pulled on

friday.

> I sorry butt will be put to sleep so i won't know what hit me and they say

> that i won't remember much until saturday afternoon or so. Maybe you all

can

> say a prayer for me so i don't chicken out since i am scared to death of

the

> dentist. This oral surgeon though was really great and very sweet. he even

> stopped me in the hallway before he even examed me and gently touched my

arm

> and its ok you will alright.

>

> Chances are i won't be on line at least until next week sometime. Everyone

> take care and welcome to all the new member, you will love this group.

>

>

[Guest guest]

Say, !

That's interesting about your boys. Of course, you don't owe anyone an

explanation about your choice to circumcise or not. Certainly sometimes it

is advisable to circumcise. I had a question about and his redness and

itchiness. Does he like a lot of soap in his water or bubble baths? If so,

that could be contributing to his problem. Girls and uncircumcised boys have

to be careful about too much soap in the water.

Glad you had a good time in Vermont. Hope your cousin has great success with

his CD. Exciting!

----- Original Message -----

From: <12372101@...>

< egroups>

Sent: Friday, August 04, 2000 11:27 AM

Subject: Re: [ ] Circumcising

> I have 5 boys and 3 of them were circumcised. the two younger ones have

not

> been circumcised. I was there and watched the dr circumcise and the

> amount of skin that jesse had there was amazing. My family dr of many

years

> told me that it was the right thing to do cause all the skin that jesse

had

> would have closed over his penis and prevent him from going pee normally.

>

> Now justin and jared were not circumcised and justin does fine but jared

no

> matter how well we clean him gets all red and itchy. I have to say in some

> boys its good to have them circumcised. i have been on both ends and have

> seen what can happen when its not done. it all depends on the child and

the

> parents and an exam from a dr to decide if it should be done or not. I now

> wish that i had jared circumcised cause i see how much it hurts when it is

> red and itchy. Iam afraid that at the age of 4 or 5 we will have to do it

and

> that is going to be much more painful for him.

>

> shelly

[Guest guest]

Oh ,

this year has been pretty good so far. started school yesterday and

seems to be enjoying it. The school seems to be dealing with him much better.

He has a very nice young teacher that he seems to like.

Don't worry i will keep you all informed of how he is doing. He is as much a

part of most of you now as well as me.

Yes thank god no one got hurt from the lighting. We actually have a storm

coming in now so iam trying to answer my emails before the storm comes.

take care,

shelly

[Guest guest]

You really have had your share of excitement this year, ! Car

accidents, lightning strikes, emergency room trips, oral surgery. Did I

leave anything out? I'm so happy that you and the kids are OK and that the

damage to your home was minimal considering the possibilities.

Thanks for the notes about 's progress with Enbrel. That is always a

bright spot in my day when I read about his feeling better.

----- Original Message -----

From: <12372101@...>

< egroups>

Sent: Monday, August 14, 2000 4:55 PM

Subject: [ ] (no subject)

> Iam trying to catch up on all the emails. You see lighting hit 2 houses

over

> from our house last wed. and fried my modem and phone lines and even fried

3

> out of 5 of our tvs. iam lucky that was all. if the kids were out side

they

> would have been fried as well.

>

> it was so strange the thunder was way off and there was not even a single

> drop of rain and then bang lighting hit the neighbors house. scared us all

to

> death. don't worry we are all ok.

>

> shelly

[Guest guest]

Holly,

You live in a country that has always been a place where me and my oldest son

would love to visit. He loves to watch the Crocidle Hunter on tv. robert my

oldest son may someday be on tv doing just what the croc hunter does. He

loves that stuff. He has even gotten by a pygmy rattle snake 2 years ago and

still loves to mess with thing like that even though he almost lost his hand

from it and spent a week in the hospital and now deals with bad allergies due

to the bite. ever since he as little he loved that stuff. now at least he is

into skateboarding so i don't have worry about him getting bit by a posionous

reptile just worry about him breaking a few bones in his arm or leg or hip

since thats where he lands most of the time. I look at this way, no drugs or

guns so thats the way i will keep it. rather deal with a few broken bones or

bites then drugs or guns.

take care,

shelly

[Guest guest]

,

I'm sorry but I don't know very much at all about crocodiles. Despite

the fact that the movie Crocodile Dundee was very popular, I think

most Australians have had little to no real life experience with

them. Most Aussies live in the city areas.

I've seen them in the zoo but that's about it. Mind you, up in the

north of my state (western australia) I know there are probably

lots...and also I think the Northern Territory probably has them

there...so if you get the chance to come to Australia, they'd be the

places to go.

I'm just flicking through a Tourism Australia book I have....in

Darwin there's a place called East Alligator River that has salt

water crocodiles..oh look, there's another place called South

Alligator River..hehe terribly original names, aren't they! Yeahh I

think the Northern Territory is the way to go..their TV ad campaign

said, " you'll never never know, if you never never go " (they call it

the Never Never too I think...)... Also there is apparently a " Darwin

Crocodile Farm " which is 40 kilometres south of Darwin and " houses

over 1000 salt water and fresh water crocodiles, some up to four

metres in length. " That sounds like the place to go!

I hope your son gets to come to Australia. It's a great place, I'm

sure he'd have a wonderful time. He could take some type of four

wheel drive trip around and he'd have a ball!

Holly

[Guest guest]

Holly,

i do believe that the croc hunter is named Steve Darwin and his wife. The do

the show together. I will have to show your email so that he can know

where to go when he makes it your country. He will get a kick out of it.

thanks,

shelly

[Guest guest]

Hi !

I do that too when I get tired. I get very goofy and can't stop talking. Then

when I get past that, I get grumpy!

Do you have any scanned pics of your boys you could share? I would love to

see what looks like. =)

I think that is great that is thinking about his schooling! Maybe he

will be the doctor that comes up with the cure! =) Heck, maybe all 5 will go

into business together and work their fannies off looking for a cure!

~Rainy Sue

[Guest guest]

wouldn't that be nice but i can honestly say robert isn't medical material.

he is into animals. his is always watching the discovery channel and animal

planet channels. I expect him to be one of those people that either studies

rare animals or be like the croc hunter.

jake is always taking things apart and trying to put them back together. he

has more tools then my boyfriend does. lol. let me tell you a hardware store

is like heaven to jake. you should see his face when he walks into one.

the 2 younger ones haven't let on what they would like to be yet. iam sure

they will.

yes i have one group of pics. scanned of the boys but you can't see jesse

very well. i just got some new ones from justins birthday in june. i will get

jason to scan them for me and i will send them to you. there is a great one

of jesse. i caught him by surprise. lol. he was mad.

shelly