Re: Shelly

[Guest guest]

Great news about court . I hope this is the end of your problems with

them.

Are you still in a lot of pain? If this is something that can affect your

kidneys, it may not be a good idea to put off getting it checked. With

everything going on, this really stinks. I don't know how you cope with all of

this, especially when you feel so bad. I hope you can get in to see your

doctor soon and get this taken care of.

I'll be keeping all of you in my prayers.

hugs,

a

----- Original Message -----

From: 12341234@...

Sent: Wednesday, April 04, 2001 12:46 PM

Subject: Re: [ ]

,

i got some news. my md had no clue what was wrong but he sent me to a surgeon

and he said that he thought that my endormitriois has attached itself to my

appendix and maybe my kidney and because of the pain there it has made me

compensate on that side which has strained the muscle in my back and my

stress is causing me to have muscle spasms. He gave me a prescription for

muscle relaxants that wouldn't mess with me to much and still be able to have

somewhat of a normal life. he wants me to see my gyn which iam wanting for

his nurse to return my call. My gyn may have to go back in and check out my

appendix and kidney with the scope but if thats the case i will wait until

after surgery maybe even till school lets out, which is may 18th.

I went to court today about the 2 counts of CDM charges. The judge asked me a

few questions and asked me if i was doing the best i could with the kids

illnesses and i said yes and he told me i could leave and he didn't want to

see me again unless the school charged me with something else and when he

said that he gave the woman from the school board a challenging look as if to

say i dare you to mess with this woman again. It was pretty cool. The woman

from the last time i went to court was not there it was a new woman and she

didn't argue at all. It seems the court has researched the stuff my lawyer

gave them and found out the school has be harrassing me. It was a great

victory and i wanted to share it with you all.

shelly

[Guest guest]

June,

beams when i give him messages and hugs from all of you. To him its

like having his own little harem so to speak. I tell him how much you all

think of him and care about him and he just loves it. He again said the other

day that he might become a dr so he could take care of all of you and find a

cure. he still amazes me.

Not sure when we will see results but i do know that he is on them for at

least 6 months. I have to tell you this. I called the night before last to

order the hormones. The company said they would have here the next day(which

would be yesterday) by FEDX or their own driver since they are only in

fairhope. Well this woman comes to my door and she has jesse hormones and

intros herself and said i live here in the park too. she said when ever jesse

needs his supplies just give her a call. She also has a chronicly ill child.

Get this, his teacher is the one jesse had last yr. she has gone round and

round with him. He said that he has had kids sicker then her son which come

to find out was jesse and that man caused jesse more stress then teaching him

anything. Anyway, i have found someone who also deals with the school and she

said she wishes she met me before the kids started school here, that she

could have helped me cut through the red tape. She also told me i can add

jesse to our insurance and keep medicaid as a seconday insurance. there is a

new law here that says my insurance can't deny jesse and get this, there is a

program through the state or government that if a medicaid pt gets on an

insurance that this program helps pay the premium for the insurance. she is

gonna bring the paper work by today after 6. she is a really nice person. our

kids hit it off real well. i invited her son to come over this weekend to

play video games. you should have seen his face when i told him about all the

games we had and his jaw dropped when i told him we also had a PS2 on the big

screen TV. I could feel my heart swell watching his said face start to smile.

ok iam done sorry it was so long but i thought you would all like to know

about my new friend and a friend for jesse that understands. Yesterday turned

out to be a great day.

shelly

[Guest guest]

a,

I guess the pain is tolerable. Its not as bad as last yr before my surgery

but it is getting in my way of life. The only reason iam waiting until next

week for my appt is that PT is coming today to evaluate jesse for his IEP

tomorrow at 11am. If i change that, then they may stop his teacher from

coming until i do have the meeting. They lost yesterday so they are gonna be

on my case about everything else. I was wondering why the were being so

bitchy(sorry for the cussing) lately. They have been calling me every other

day for 2 weeks. guess they knew i was gonna win yesterday.

also has his first appt with the GI dr tomorrow afternoon. The way i

see it i can stand the pain until next week cause this appts for jesse are so

important. My drs office said that they understood but if it got worse to

call them and they would fit me in even if the dr had to stay late. He is a

great gyn.

I don't know if this could cause problems with my kidney. if i didn't do

anything then maybe it would. Its the appendix that is the may concern. It

could cause it to rupture. That would explain the up and down white blood

count. It may have to come out just in case. I will see what the dr says

about waiting until school gets out but if he thinks i should do it before

then i will. i trust him and he does know best.

the muscle relaxants are helping for the most part but it doesn't take away

all the pain. But like i said the pain is tolerable at this point.

thanks for the prayers, we have needed them and they think they are helping

alot.

shelly

[Guest guest]

or a,

I forgot to mention this earlier. The woman i met yesterday said that some of

the kids that come in for the Remicaid infusions are also getting the Enbrel

injections. Some thing about a study going and they are finding out that the

people that find no help with either of the drugs are finding improvement

when using both. I was wondering if you had heard anything on this or maybe

you can find out. I figured if thats what is going on then some of the people

that have tried each drug may benifit if they are doing a study like this.

shelly

[Guest guest]

More good news, ! Who would have thought that the growth hormones

would have had such good side-effects - a friend for you and the kids. This

woman will help you a lot, I'm sure.

----- Original Message -----

From: <12341234@...>

< >

Sent: Thursday, April 05, 2001 8:39 AM

Subject: Re: [ ]

> June,

>

> beams when i give him messages and hugs from all of you. To him its

> like having his own little harem so to speak. I tell him how much you all

> think of him and care about him and he just loves it. He again said the

other

> day that he might become a dr so he could take care of all of you and find

a

> cure. he still amazes me.

>

> Not sure when we will see results but i do know that he is on them for at

> least 6 months. I have to tell you this. I called the night before last to

> order the hormones. The company said they would have here the next

day(which

> would be yesterday) by FEDX or their own driver since they are only in

> fairhope. Well this woman comes to my door and she has jesse hormones and

> intros herself and said i live here in the park too. she said when ever

jesse

> needs his supplies just give her a call. She also has a chronicly ill

child.

> Get this, his teacher is the one jesse had last yr. she has gone round and

> round with him. He said that he has had kids sicker then her son which

come

> to find out was jesse and that man caused jesse more stress then teaching

him

> anything. Anyway, i have found someone who also deals with the school and

she

> said she wishes she met me before the kids started school here, that she

> could have helped me cut through the red tape. She also told me i can add

> jesse to our insurance and keep medicaid as a seconday insurance. there is

a

> new law here that says my insurance can't deny jesse and get this, there

is a

> program through the state or government that if a medicaid pt gets on an

> insurance that this program helps pay the premium for the insurance. she

is

> gonna bring the paper work by today after 6. she is a really nice person.

our

> kids hit it off real well. i invited her son to come over this weekend to

> play video games. you should have seen his face when i told him about all

the

> games we had and his jaw dropped when i told him we also had a PS2 on the

big

> screen TV. I could feel my heart swell watching his said face start to

smile.

>

> ok iam done sorry it was so long but i thought you would all like to know

> about my new friend and a friend for jesse that understands. Yesterday

turned

> out to be a great day.

>

> shelly

[Guest guest]

Carol,

No jesse had a PT evaluation as well as OT. PT is going to check on him off

and on but OT will come to the house once a week for 30 mins to monitor his

ability. They found that his hands and wrist tire easily when writing as well

as the first joints to hurt and swell which affect is progress in school.

Thats very cool about the video tape. Maybe i could get jesse to do his hand

exercises that way. I will have to try that out. don't if it would do anygood

but anything is a help.

i also wanted to let everyone know that my gyn confirmed my medical problem.

STRESS, STRESS AND MORE STRESS. Iam having a flare of my endormitiroisis

(sp). He said stress is a key factor in a flare for me. He did give me a

prescription for the stress. It's Ativan 1mg once or twice a day as needed.

He said if i don't feel really stressed out don't take but if i feel over

stressed or before i deal with the school to take one and i should be able to

cope better. He told me if i needed him before my 3 month check just to call.

He does know everything that i deal with with the school. My primary made

sure my gyn had all my records before i got there. I got some pretty cool

drs. I also got my 3 month shot of Lupron a couple weeks late so i got that

today and boy does that hurt. got a big bunch on my butt. lol. I saw how much

my Lupron injection cost for 3 months. I almost fainted. $1,500.00 my whole

visit today cost $1,548.00 thank god for insurance. covers all but my co pay.

ok i think iam all caught up with ya'll. iam gonna go lay down while i got

the chance. take care.

shelly

[Guest guest]

shelly, if anyone deserves to rest, you certainly do!!!

kathy

[Guest guest]

I tell my kids all the time, that they can be anything they want to be , if

they just put their mind to the task.

[Guest guest]

Good Morning,

Time is not on my side this morning, but do need to

reply to other later.

over a year ago I went through the same thing

and didn't enjoy the cramps either but was fine in a

day. Wasn't telling you that before hand. Also they

got it all and I have been fine since. Prayers are

there for the same for you.

Just quickly, years ago I joined a group for those

affected or effected by others in their lives that

have drinking problems. It helped so much and still

do it today.

I only had time to check one group for those that want

to quit smoking and I did join. The e-mail address is

below. I am going to try it and my goal is to quit on

Valentines Day giving that gift to my child.

Just a thought you may want to try, heaven knows I

have tried a lot of other things.

Love and prayers always, Sheri

address:

http://clubs./clubs/unofficialnicanon

--- 12341234@... wrote:

> Thank you Sheri and everyone

>

> my test went ok. i had cramps for the rest of the

> day and night but not to

> bad. I have ear infections in both ears and sinus

> infection and lung

> infection so I am not feeling to great. I went to

the

> dr again today and he

> has me on 6 breathing treatments a day and a real

> strong cough med as well as

> the AB's.

>

> Good news. I have quit smoking. my gyn wrote me a

> prescription for the

> Nicotrol Inhaler. I think this will work better for

> me then the patches and

> the wellbutrin. My insurance pays for it. I only had

> to pay $15.00 co-pay. I

> will be on it for 6 months or less. the kids are so

> happy. dr also said that

> smoking will only increase the chance of caner if i

> have precanerous cells.

> He also knows how much i want to quit.. the kids

> are allergic to smoke. i

> cut way down to maybe 7 a day but i couldn''t get

> over that last hump. I feel

> good about this so i hope i will be able to quit.

>

> Any way i get the results of my test on monday or

> tuesday. I will let you all

> know. thanks again for the love and prayers. you are

> all in my thoughts.

>

> shelly

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Sheri,

Thank you for your prayers. I agree with you this is a waste of my time which

is very presious. To answer your question, is disabled physical. The

federal gov. reconizes him as disabled. He gets SSI for his disability. The

school refuses to identify him as disabled. They only give him special needs

services(which I might add isn't much). They have him in some LD classes not

because of a learning disability but because he isn't on grade level(in their

minds) due to excessive absences. He actually has a very high IQ. He

sometimes helps his older brother who is in 9th grade with Lang. arts and

spelling words.

Because he is disabled he is entitled to the 504 plan which is a Federal Act

for disabled students. It means that they give him shorter assignments and

tests. If necessary he can take the test verbally due to the JRA affects his

fingers and wrist so much. The school now also grades on attendence with the

504 Plan they wouldn't be able to to that. He is also entiled to have an aide

with him daily all day to carry books and sometimes write for him. He has

never had an aide. The teachers will assign students to write for him. He

also has gotten lower grades because i have written assignments for him. The

school has had other students spy on him. You know how RA is. In the morning

he is stiff and in lots of pain but by the afternoon he is feeling much

better so I let him out to play to get those joints moving. DR's and PT and

OT all agree that is the best for him instead of going to PT which causes

more pain for him. One other thing, if he is stiff in the morning and in pain

I could always bring him to school later. Not here. If he goes and signs into

school after 10:30 am the will still mark him as absent. I have gone 3 yrs

with this stuff. has been to a school in Vermont and we never had a

problem. In Florida he went to 2 different count schools and again never had

a problem. Mobile County School District has had more complaints in the last

3 yrs. Just since school started in Aug of 2001 my lawyer has had 10 new

clients and all kids come from 's middle school. That doesn't include

his own secretary. She makes 11 and then add to it it makes 12. When I

fisrt met with him in March of 2000 he showed me a pile of folders of which

were all new clients from Jan. 2000 to March 2000. There was about 100

folders. He said it all has to do with money. He use to be a teacher and

princibal in a Florida school. He decided to go back to college to get his

law degree. He is the only special education lawyer in the state of Alabama.

There is also something else to makes a difference. If you are not a family

with lots of money and donate money to the school every year, your child will

not get special treatment.The lawyer told me they see me as 1. a single

mother of 5 kids. 2 out of 5 have different last names as the other 3.(I

figure thats my business). They seem as a welfare mother who keeps having

kids to get free money. I do not get any assistance. I have in the past. 2. I

had really bad front top teeth due to weak teeth. Family history of rapid

decay. He said in their opinion I was a coke head or a crack head. I don't

even drink much less do drugs.3. Me and my boyfriend aren't married and we

live together. Again thats my business. We don't feel that we need a piece of

paper to say we are committed to each other. Besides that the state of

Alabama considers us common law husband and wife. Not that doesn't want

to get married. It's me. I have done it once and got burned so I am gun shy.

So basicly I am not their ideal person to be a mother.

One thing I don't understand is that when a child is out sick, why do they

have to have a dr.'s note every time? 1.sometimes they are sick but not sick

enough to take them to the dr. 2. Who has the money to take their child to

the dr every time they are sick? Most people don' t have insurance because it

cost to much and they make to much money to get Medicaid. Not to mention

Medicaid doesn't like it when you take your child in for a common cold.

I believe that I am going to win this fight one way or another. 1.I am very

passionate about fight for my children and other children's rights by law.

2. It also seems like discrimination as well.

again thanks for your prayers

shelly

[Guest guest]

Hi ,

Thanks for the warm welcome. I just hate to see anyone suffer, and as everyone

on this group can understand, my friend is suffering. I just hope she still

has something left inside to keep fighting Take care...

I am part of this group not for myself but for my son. You have come to the

right place. Everyone here will do their best to help you. The list

Moderators a and are amazing. If they can't find it online then it

doesn't exsist. They are wonderful. Everyone here is caring and

understanding. This is also the place to express your worries, so don't worry

about going on and on or venting. We all understand.

hope to get to know you and better.

and age 13 Systmatic JRA

[Guest guest]

,

You are welcome for the prayers and I mean it. I know

what you are telling me is true but I can't believe

it.

And I am sorry but the whole thing with the damn

school systems just gets to me.

And I know there is a difference with SSI and SSD.

Both Mandy and I obtain SSD, not much but something.

I also know this won't help you much right now but I

do want to check the laws. I hope to be able to do so

in a few days. If I had a question I can place it to

my ex (in regard to our daughter) and see what answers

he has or tells me to look. He just had an awful day

and is leaving for Orlando Friday, so I do want to

leave him alone.

Just a point of interest here, the judge agreed with

the joint custody of our child and each parent getting

3.5 days. Therefore one parent doesn't make decisions

and than say " guess what " . The school system went

nuts and said we need to pick one person to be the

primary parent. Of course we knew that was wrong and

both agreed Mandy could go to a different school. Gee

did they stop that one.

I am sorry and it is me but I think my best thing is

to just try to relax for a few. I think back now to

how they they school system was about to screw us, 5

years ago and I want to scream. But I knew the things

Mandy needed the 2 schools in the county that offered

them and told them she would go to school A or B.

I vote we all just rest this evening and even when the

worst is here, be thankful for the things we

have---like this group.

Love and prayers, Sheri

--- 12341234@... wrote:

> Sheri,

>

> Thank you for your prayers. I agree with you this is

> a waste of my time which

> is very presious. To answer your question, is

> disabled physical. The

> federal gov. reconizes him as disabled. He gets SSI

> for his disability. The

> school refuses to identify him as disabled. They

> only give him special needs

> services(which I might add isn't much). They have

> him in some LD classes not

> because of a learning disability but because he

> isn't on grade level(in their

> minds) due to excessive absences. He actually has a

> very high IQ. He

> sometimes helps his older brother who is in 9th

> grade with Lang. arts and

> spelling words.

>

> Because he is disabled he is entitled to the 504

> plan which is a Federal Act

> for disabled students. It means that they give him

> shorter assignments and

> tests. If necessary he can take the test verbally

> due to the JRA affects his

> fingers and wrist so much. The school now also

> grades on attendence with the

> 504 Plan they wouldn't be able to to that. He is

> also entiled to have an aide

> with him daily all day to carry books and sometimes

> write for him. He has

> never had an aide. The teachers will assign students

> to write for him. He

> also has gotten lower grades because i have written

> assignments for him. The

> school has had other students spy on him. You know

> how RA is. In the morning

> he is stiff and in lots of pain but by the afternoon

> he is feeling much

> better so I let him out to play to get those joints

> moving. DR's and PT and

> OT all agree that is the best for him instead of

> going to PT which causes

> more pain for him. One other thing, if he is stiff

> in the morning and in pain

> I could always bring him to school later. Not here.

> If he goes and signs into

> school after 10:30 am the will still mark him as

> absent. I have gone 3 yrs

> with this stuff. has been to a school in

> Vermont and we never had a

> problem. In Florida he went to 2 different count

> schools and again never had

> a problem. Mobile County School District has had

> more complaints in the last

> 3 yrs. Just since school started in Aug of 2001 my

> lawyer has had 10 new

> clients and all kids come from 's middle

> school. That doesn't include

> his own secretary. She makes 11 and then add

> to it it makes 12. When I

> fisrt met with him in March of 2000 he showed me a

> pile of folders of which

> were all new clients from Jan. 2000 to March 2000.

> There was about 100

> folders. He said it all has to do with money. He use

> to be a teacher and

> princibal in a Florida school. He decided to go back

> to college to get his

> law degree. He is the only special education lawyer

> in the state of Alabama.

>

> There is also something else to makes a difference.

> If you are not a family

> with lots of money and donate money to the school

> every year, your child will

> not get special treatment.The lawyer told me they

> see me as 1. a single

> mother of 5 kids. 2 out of 5 have different last

> names as the other 3.(I

> figure thats my business). They seem as a welfare

> mother who keeps having

> kids to get free money. I do not get any assistance.

> I have in the past. 2. I

> had really bad front top teeth due to weak teeth.

> Family history of rapid

> decay. He said in their opinion I was a coke head or

> a crack head. I don't

> even drink much less do drugs.3. Me and my boyfriend

> aren't married and we

> live together. Again thats my business. We don't

> feel that we need a piece of

> paper to say we are committed to each other. Besides

> that the state of

> Alabama considers us common law husband and wife.

> Not that doesn't want

> to get married. It's me. I have done it once and got

> burned so I am gun shy.

> So basicly I am not their ideal person to be a

> mother.

>

> One thing I don't understand is that when a child is

> out sick, why do they

> have to have a dr.'s note every time? 1.sometimes

> they are sick but not sick

> enough to take them to the dr. 2. Who has the money

> to take their child to

> the dr every time they are sick? Most people don' t

> have insurance because it

> cost to much and they make to much money to get

> Medicaid. Not to mention

> Medicaid doesn't like it when you take your child in

> for a common cold.

>

> I believe that I am going to win this fight one way

> or another. 1.I am very

> passionate about fight for my children and other

> children's rights by law.

> 2. It also seems like discrimination as well.

>

> again thanks for your prayers

> shelly

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Happy Birthday !

M

Tampa Fl

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.859 / Virus Database: 585 - Release Date: 2/14/2005