Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Hi, I'm Sharon Wertz from Phoenix AZ. I am 62 and have just been diagnosed with RA. My husband had West Nile virus and almost died, and the stress apparently triggered the RA. I literally woke up one morning with every joint in my body hurting. Over five days it got worse so I finally went to the Dr. He gave me some samples of mobic, and told me to use wrist splints, since my wrists and hands are the worse. I also have tendonitis in both wrists ans one shoulder. Can anyone recommend a good splint? I borrowed some from a friend who had cts surgery. But they are a little big on me and I want to buy my own. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi There, I use one called ' thermoskin' it's good for me. You can get them with or without the metal bits in. Mine is great at keeping the wrist warm and easing the pain. hope this helps...Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 > Hi Sharon my name is Sherrie and I have had hand splints before I > went to the doctor and they made mine maybe they can do something for > you I wish you the best I have an appointment with a rheumatologist. I think I will stick with these until after I see him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 > Hi There, > I use one called ' thermoskin' it's good for me. You can get them with or without the metal bits in. Mine is great at keeping the wrist warm and easing the pain. > > hope this helps...Lynne What I really need them for is to keep me from curling my wrists up under my chin when I sleep. I do it every time! Then I wake up unable to move them. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Sharon, I just got a new one from the VA, Restorative Care of America (RCAI) - Dorsal Carpal Tunnel. It is an above the wrist with 3 straps and a removable (washable) liner. It is so nice and very comfortable. I'm sorry you got stuck with this stupid disease, but glad you found us. Have a better day, Lynette-----Original Message----- From: Sharon Wertz Sent: Aug 13, 2004 12:46 PM Rheumatoid Arthritis Subject: newly diagnosed Hi, I'm Sharon Wertz from Phoenix AZ. I am 62 and have just been diagnosed with RA. My husband had West Nile virus and almost died, and the stress apparently triggered the RA. I literally woke up one morning with every joint in my body hurting. Over five days it got worse so I finally went to the Dr. He gave me some samples of mobic, and told me to use wrist splints, since my wrists and hands are the worse. I also have tendonitis in both wrists ans one shoulder.Can anyone recommend a good splint? I borrowed some from a friend who had cts surgery. But they are a little big on me and I want to buy my own. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hi Lynette I'm a vetran too, but the VA won't cover me. We saved for years to build up an IRA for when we retired, and now with my husband diabetic, and me with RA, the VA says we have too much money. I have to pay 400 dollars a month for health insurance with a 2500 dollar a year deductable. Jack is on medicare, but I have three more years before I qualify. Makes for a very tight budget when you are having to pay for your own meds. And BOY are RA meds expensive. I've been pricing them. WOW. Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2004 Report Share Posted August 17, 2004 Hi , Re splints...I live in the UK so can't say where you might get them in the US. I got the usual carpal tunnel one from my GP ( family doctor). I bought the Thermoskin one from a company on the internet, I thought it was worth giving them a try as they made a difference to a friend of mine, then again , it's best to go where you ca try one on I think. Hope you manage to find something suitable. Re faith, I think it does help a lot of people to have a belief system, whatever it is. If it works for them and helps them through tough times it can only be a good thing. Take Care, Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 , where do you live in the Bay Area? I would love to talk with you if you want to give me a call any time. I live in San . Sue (408) 723-0804 susan.hersom@... From: on behalf of StanoffSent: Sun 7/24/2005 6:44 AM Subject: [ ] newly diagnosed Hi, I was diagnosed about a month ago and would love to hear how any of you guys have dealt with the emotional side of celiac. I am thrilled to be feeling better, but am still adjusting to this huge lifestyle change, especially when I think of how this change is for forever. Or, how frustrated I get when I trip up and accidentally eat something that makes me sick again... Thanks -- it's good to know you guys are out there. S. Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 Thanks, Pam, for a really wonderful message -- I really appreciate it!! > Hi , > > Gluten-free is a process, not an absolute state. I know it's hard to make > mistakes and get sick, but try to think of it as a learning experience; you > will get better as you continue to learn about and practice the gluten-free > diet. No one learns to play the piano in one month; the more you practice > the fewer mistakes you will make. > > Changing to a gluten-free diet is huge. I would encourage you to find an > outlet for your feelings (a friend, a diary, support group meetings, this > list) and express them. The goal is to mourn what you have lost and move on > to figuring out a new celiac lifestyle that suits your needs and desires. > > I recommend reading one or more of the many books out there on CD. Here are > a few I would suggest. " A Personal Touch on Celiac Disease " is a collection > of personal stories by people with celiac disease. It is very helpful to > hear stories of what others have gone through and how they learned and > coped. " The Gluten-Free Bible " by Jax s Lowell is an excellent and > comprehensive book on all aspects of CD. She writes extensively and > humorously on how to handle social situations and the emotional aspects of > CD as well as the basics. If you don't have time or the desire for a longer > book, " What? No Wheat? A lighthearted Primer to Living the Gluten- Free > Wheat-Free Life " by LynnRae Ries is a short book with lots of drawings that > give an overview of the gluten-free life. This is a good book to give to > friends and relations to help them understand what you are dealing with. > Also good is Dana Korn's " Wheat Free, Worry Free. " Many of these are > available at local bookstores and on line (celiac.com or amazon.com). > > I would also highly recommend attending the Stanford Celiac Conference > coming up on October 8 (more information will be on this list about > registration soon). Also attend as many support group events as you can. > Above all, be gentle with yourself and keep in mind that it will get easier > as you go. > > I and others on this list are always willing to answer any questions, so > don't hesitate to ask. > > Pam Newbury > Santa Cruz Celiac Support Group > 831-423-6904 > pknewbury@e... > > > > > > > > > -----Original Message----- > From: [mailto: ]On > Behalf Of Stanoff > Sent: Sunday, July 24, 2005 6:44 AM > > Subject: [ ] newly diagnosed > > > Hi, > > I was diagnosed about a month ago and would love to hear how any of you guys > have dealt with the emotional side of celiac. I am thrilled to be feeling > better, but am still adjusting to this huge lifestyle change, especially > when I think of how this change is for forever. Or, how frustrated I get > when I trip up and accidentally eat something that makes me sick again... > > Thanks -- it's good to know you guys are out there. > > S. > > > -------------------------------------------------------------------- -------- > ---- > Start your day with - make it your home page > > Quote Link to comment Share on other sites More sharing options...
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