Re: Question re: non-surgical correction of clubfoot

[Guest guest]

Maureen,

I know little to nothing about Arthrogryposis, so I can't help much with

that. For the clubfoot issues, I would suggest having the family

contact Dr. Ponseti by phone at (319)356-3469 . I am sure he would be

more than willing to talk to them and discuss the possibility of a

non-surgical treatment.

Sorry this isn't much help.

CaseyWaid@... wrote:

> Hi, I'm sending this to all three lists.

>

> I was contacted today by a family with a newborn with what appears to

> be

> amyoplasic Arthrogryposis. He has one dislocated hip, flexion

> contracture of

> one knee and bilateral clubfoot and flexion contractures of the wrist

> and

> some digit involvement.

>

> The parents are very interested in non-surgical intervention for the

> clubfeet. They are not on the Internet. They have already had him

> casted,

> the leg with the knee contracture is to the thigh, the other leg has a

>

> short-legged cast.

>

> {Our son has distal Arthrogryposis and has bilateral clubfeet which

> were

> surgically corrected (posterior medial releases at 6 mos of age, he

> wears

> AFOs and the DBB & . We were not aware of the Ponsetti method prior

> to

> surgery....}

>

> I told the mother that while I was aware of the method I am not an

> expert,

> and would download and fax her the FAQ stuff and list of doctors

> utilizing

> the method and share it with her.

>

> My question: Does anyone know if Ponsetti or his associates have

> utilized

> this procedure on children with arthrogryposis? A quick review of the

>

> bibliography seems to indicate idiopathic clubfoot. As most of you

> know,

> arthrogrypotic clubfoot has a much higher incidence of recurrence and

> is more

> resistant to treatment.

>

> The mother is very interested in avoiding surgery if possible and

> should have

> the opportunity to thoroughly explore all options.

>

> TIA.

>

> ~Maureen

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