Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 I am seeking information on some symptoms I have. My legs have been giving me a lot of trouble for sometime now especially my left foot. There is numbness in both my legs from the knees down. But I have excruciating pain in my left foot especially when I am laying down. When I move my foot a pain runs through it like I have hit my funny bone. It is also difficult to walk when I first wake up. Tonight my left ankle is hurting. Has anyone else had or have symptoms like this with RA? Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Hi Joyce, I get and odd feeling in my legs from the knee down, its like having tight support stockings on. I also get tingling in my arms from my neck down, the tingling is usually in my whole legs and makes them jump when it's really bad, usually when I lie down at night and want to sleep! My ankles are usually pretty sore and stiff when I wake, lately they have been more so than my other bits. Hope this helps, Lynne "What lies behind us and what lies before us are tiny matters, Compared to what lies within us." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 Thanks , Fortunately this only happens now and again I am keeping my fingers crossed that it doesn't get any worse. Thanks again, Lynne "What lies behind us and what lies before us are tiny matters, Compared to what lies within us." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2004 Report Share Posted September 10, 2004 Hi, Joyce! yes, that is exactly how I started out ... I hope you can get your doctor to take hip xrays ... the one I hate the most is called "frogs" ... you lay on your back and put your feet so the toes point at each other and your knees are open and flat ( you make a diamond shape) ... then the xray tech pushes down on each knee, so it is almost touching the table ... ouch! ...gentle hugs! Marcia Joyce McCrary <j.mccrary@...> wrote: Marcia, I have often wondered if I might need surgery in my right hip.I have pain in it most of the time. Also I have pain that starts from thelower back which radiates around to the right thigh. That's when I canhardly walk.........Joyce----- Original Message ----- From: "Marcia Stoyle" <marciastoyle@...><Rheumatoid Arthritis >Sent: Wednesday, September 08, 2004 10:14 AMSubject: Re: Legshey, Joyce! my left foot and knee are killing me today....could not sleepat all last nite....but I need a new hip; surgery scheduled forOctober.....my foot and knee hurt because I am not walkingcorrectly....maybe you could have your hips checked......gentle hugs, MarciaJoyce McCrary <j.mccrary@...> wrote:I am seeking information on somesymptoms I have. My legs have beengiving me a lot of trouble for sometime now especially my left foot.There is numbness in both my legs from the knees down. But I haveexcruciating pain in my left foot especially when I am laying down.When I move my foot a pain runs through it like I have hit my funnybone. It is also difficult to walk when I first wake up. Tonight myleft ankle is hurting. Has anyone else had or have symptoms likethis with RA?Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2010 Report Share Posted April 12, 2010 Hi Matt, I get like that often, especially if I've spent too long sitting at the computer. I could be wrong but I suspect it's a combination of water retention and blood pooling in the lower extremities (due to the immobility). When it happens to me, I try to increase my fluids (to make me pee more) and exercise to get the blood moving. Tracey > > > I am on Sprycel, but I seem to have trouble > with my legs these last few days. The kids > had vacation and we drove to Asheville, NC > (about 8 hours from our home) and when we > arrived and upon the return, my legs felt " heavy " > and would not respond very well. > > Have any of you ever experienced that? > > Matt > Florida > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2010 Report Share Posted April 13, 2010 Hi, I have very bad circulation in the legs, have had a stent put in and angioplasty done twice. My grandson is getting married in kansas, 840 miles and a 12 hr. drive from me and the kids want me to drive there. I am assuming that is too long a ride, so booked a flight, will enjoy the wedding, and save myself 2 days driving. I am now on Trental to help with the circulation, anyone on it?  Bobby a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club From: A <suzzienovember@...> Subject: [ ] Re: Legs Date: Tuesday, April 13, 2010, 3:51 PM  Hi Matt: I can relate to what happened to you. Everytime we have taken a trip for more than 4 hours, I have gotten terrible ankle swelling and such a heavy feeling in the legs that I could barely walk. We even stop and walk around, and I always need the restroom because of a overactive bladder so I guess its just something I have to deal with. As soon as I can sit and elevate my legs I feel so much better, and my ankles go back down to normal size again. I am on Gleevec. > > > I am on Sprycel, but I seem to have trouble > with my legs these last few days. The kids > had vacation and we drove to Asheville, NC > (about 8 hours from our home) and when we > arrived and upon the return, my legs felt " heavy " > and would not respond very well. > > Have any of you ever experienced that? > > Matt > Florida > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2010 Report Share Posted April 13, 2010 In five years I have not experienced this before. I will try elevating my legs this evening. Thanks for the idea. Matt Florida Sent from my iPhone On Apr 13, 2010, at 3:51 PM, " A " <suzzienovember@...> wrote: > Hi Matt: I can relate to what happened to you. Everytime we have > taken a trip for more than 4 hours, I have gotten terrible ankle > swelling and such a heavy feeling in the legs that I could barely > walk. We even stop and walk around, and I always need the restroom > because of a overactive bladder so I guess its just something I have > to deal with. As soon as I can sit and elevate my legs I feel so > much better, and my ankles go back down to normal size again. I am > on Gleevec. > > > > > > > > I am on Sprycel, but I seem to have trouble > > with my legs these last few days. The kids > > had vacation and we drove to Asheville, NC > > (about 8 hours from our home) and when we > > arrived and upon the return, my legs felt " heavy " > > and would not respond very well. > > > > Have any of you ever experienced that? > > > > Matt > > Florida > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2010 Report Share Posted April 13, 2010 trental: pentoxifilline: changes the shape of blood cells so they can pass through arteries and prevent leg cramps etc. that is what google had to say about the drug. also it may take 8 weeks to see the results. It is acceptable to take with Ariad. I have been on it about 3 weeks, do not see any results as yet, will let you know if I do. a ( Bobby ) Doyle, dob 12/17/29 Brecksville, Ohio, USA DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.017 11/2009 PCR 0.034 #840 Zavie's Zero Club > > From: A <suzzienovember> > Subject: [ ] Re: Legs > groups (DOT) com > Date: Tuesday, April 13, 2010, 3:51 PM > > > > Hi Matt: I can relate to what happened to you. Everytime we have > taken a trip for more than 4 hours, I have gotten terrible ankle > swelling and such a heavy feeling in the legs that I could barely > walk. We even stop and walk around, and I always need the restroom > because of a overactive bladder so I guess its just something I have > to deal with. As soon as I can sit and elevate my legs I feel so > much better, and my ankles go back down to normal size again. I am > on Gleevec. > > > > > > > > > > > I am on Sprycel, but I seem to have trouble > > > with my legs these last few days. The kids > > > had vacation and we drove to Asheville, NC > > > (about 8 hours from our home) and when we > > > arrived and upon the return, my legs felt " heavy " > > > and would not respond very well. > > > > > > Have any of you ever experienced that? > > > > > > Matt > > > Florida > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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