meds

[Guest guest]

Kim and Tom,

How long has Tom been on Tracleer, and how

long has he been waiting for a lung? I hope you

get the call soon!

I don't have PH, but Tracleer is one med

my doctor is considering having me start (if I

agree to it). Another is a cancer drug called

Gleevec. ugh.

Has anyone out there taken Gleevec? Were the

side effects horrible?

Peggy,

Thanks for the kind words. Some days are a bigger

struggle than others, and the sob is a constant and

nagging reminder of the disease. But I don't have

chest or leg pain. I do have a transport wheelchair

which, so far, I've used only when going to the

hospital to the transplant clinic. It's lightweight

and has to pushed by someone else.

My son is coming tomorrow through Sunday, so don't

worry about me if I disappear temporarily. :-)

,

I do hope you find a way to get to San . It

would sure make everyone happy to see you, and I

know it would do your heart good to meet them too.

I'd love to give you a big hug myself. Your husband

sounds terrific.

,

I hope your cold is getting better in a hurry - those

nasty things can really drag you down, especially

when you're already sick.

Mama Sher,

I hope Lola's meds start working and will clear up

her vasculitis soon. Misha seems to feel fine, but

she's still on 2 meds and will need to be rechecked

in a few weeks. She's being a good sport about the

fact that we had to stop giving her Greenies, her

favorite ( & only) treat. They make her vomit now,

and we don't need that!

Tina,

Please keep us posted on how things go with

the Tracleer. I'll bet you did see some nightmare

stories working for the attorney. We have to be

SOOO vigilant and assertive in managing our own

care. I've seen several doctors in my life who

probably deserved to lose their licenses. And it's

absolutely horrible how the elderly are treated

by the medical community overall... makes me sick.

Babs,

Fortunately in our part of Texas we really never

see scorpions. When I lived in Austin I saw them

frequently - eeek - but I grew up in Fort Worth and

have never seen a single one here, thank goodness.

At my house, I have lots of wildlife - racoons and

such, and lots of trees - but my old home was near a

rocky riverbed and we used to find about one

Copperhead per year. That was terrifying. Be careful

where you step!

Bruce,

Has all the chest pain stopped now? I hope so.

,

I keep thinking about your new house and hoping

that you REALLY won't go near as long as there are

still fumes and dust from the all the work. Okay??

Hope you get lots of help. I'll bet you're really

getting excited about the new baby's arrival.

Hugs and blessings,

Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas