Re: Digest Number 857

[Guest guest]

In a message dated 6/14/00 2:30:28 AM Central Daylight Time,

rheumaticegroups writes:

> And besides, if you and I got to feeling too terribly

> good, I think our egos would make us unbearable to be around. A little

> humbleness probably doesn't hurt either of us....LOL Seriously, be well

> soon. Love,

..

I think there is somthing to that theory you have about egos abounding if you

get to feeling too well. I have noticed that in the past when I would go

into remission I would begin to feel like the world (and everyone in it)

deserved a butt-whippin' because of the trouble I had and what little they

did to help me. I even felt that some of my " friends " actually enjoyed my

misery and have since tried to discuss that with them to achieve some kind of

closure. The mind plays some awful tricks on you at times of great stress

and then can trick you again when you are relieved of it. I now try to be

humble but my wife reports to me that I am not succeeding..:>) Oh

well....just another day in paradise.

Steve

[Guest guest]

but at least it is paradise. Thought I was doing really well following this

surgery and then I suddenly hit the wall emotionally this morning. Something

here at home triggered the onset but it was probably forthcoming. Cried all day

over nothing at all. Went to the grocery store just now feeling sorry for

myself

and hurting a bit. - truthfully, not a lot. Passed a woman alone purchasing her

groceries by hanging a plastic bag over a shortened walker and holding on to the

walker. the woman was so crippled than she is bent in two and cannot look up at

all. She barely came to my waist. I needed to see this for a good kick in the

butt. Won't complain or cry any more today, I assure you. Glad you are doing

well, Steve. Love,

N51SK@... wrote:

> In a message dated 6/14/00 2:30:28 AM Central Daylight Time,

> rheumaticegroups writes:

>

> > And besides, if you and I got to feeling too terribly

> > good, I think our egos would make us unbearable to be around. A little

> > humbleness probably doesn't hurt either of us....LOL Seriously, be well

> > soon. Love,

>

> ..

> I think there is somthing to that theory you have about egos abounding if you

> get to feeling too well. I have noticed that in the past when I would go

> into remission I would begin to feel like the world (and everyone in it)

> deserved a butt-whippin' because of the trouble I had and what little they

> did to help me. I even felt that some of my " friends " actually enjoyed my

> misery and have since tried to discuss that with them to achieve some kind of

> closure. The mind plays some awful tricks on you at times of great stress

> and then can trick you again when you are relieved of it. I now try to be

> humble but my wife reports to me that I am not succeeding..:>) Oh

> well....just another day in paradise.

> Steve

[Guest guest]

Carol and ,

Proving that an injury is the cause of PA is like trying to prove that a

heart attack is work related. While it may be a precipitating factor to a

condition, there has to be certain preexisting factors present .. sort of

like the problem is already there and waiting for the right circumstance to

make itself evident. In order to have a heart attack, one must have coronary

artery disease first.... With us, it's having the P.......

[Guest guest]

I believe that the Arava does help the P and PsA for me

The Psoriatic Arthritis mailing list informational support group has grown to over 500 members globally.  Members assist each other sharing information, feelings, caring and concern.  To join us go to: www. and subscribe to: .  I recommend the digest version so that you do not receive over 30+ individual postings a day from the list!  Hope to see you there.

A. Stack

List founder-owner

[Guest guest]

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 1

I mean I understand that anyone and everyone is entitled to express their

thoughts but I doon't understand why it is always the same ole'

people???????

>

> Tammy

> because there are days that when other people comment on something, we get

our BP legs shot out from under us

the bigger they are, the harder they fall?

whims

[Guest guest]

On 20 Jun 2001, at 8:45, Ruth Reul wrote:

> Ann, I do have a solution to candida,( I have candida too)My siter

> -in- law sent me a sample bottle of Hydroxygen Plus I'll send you a

> sample also.

Thanks for the offer, Ruth, but I don't actually have candida any

more. I killed mine off with grapefruit seed extract and a year on the

diet - now I've just (just!!) got the leaky gut to heal and the immune

system to rebuild and I should be back on my feet!

Ann

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

http://www.willow-web.net Quality Web Design

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

At 08:45 AM 6/20/01 +0000, you wrote:

>Subject: Re: Anyone following Eat Right for Your Type?

>

>Good find, I paid full price and I haven't used it yet :-)

>

>I was intrigued by a comment in the book about Candidiasis and type

>AB (that's me). It said that avoiding yeast foods would not help me

>overcome this and that was more effective for some of the other

>types, such as Type O and I believe A, which are both much more

>common than my AB. I am really wondering if this is true and if I

>will do better following Eat Right, but I don't know who to ask for

>an expert opinion!

Hi, I am following Eat Right For Your Type, and I am Type O. I have been

battling candida for several months.. it comes and goes... you know.. but

the Eat Right plan is REALLY working for me. I have not gone to a doctor to

get nystatin, which I want, but I have been mega supplementing with

Essential Fatty Acids, Pau d'Arco, and Caprycilic (sp?) acid and of course

lactobaccillus acidophilus. I can say only VERY good results from following

Dr. Adamo's plan, he is right on the money about all kinds of stuff.

Just my.o2 cents!

Jocelyn

[Guest guest]

Jocelyn,

Thanks for the testimonial!

One word or warning the Nystatin (just my experience, so weigh it

with everying else you hear!)

My doctor put me on Nystatin and it made me sooo very miserable. I

am allergic to very few things, but Nystatin seems to be one of

them. I borke out in a full body rash after using it for a week. I

stopped using it and it took over a week to go away again. You might

want to ask around for other's experience with Nystatin.

I have had better luck with Diflucan, Grapefruit Seed Extract, Pau

d'Arco, and acidophilius

> >Subject: Re: Anyone following Eat Right for Your Type?

> >

> >Good find, I paid full price and I haven't used it yet :-)

> >

> >I was intrigued by a comment in the book about Candidiasis and type

> >AB (that's me). It said that avoiding yeast foods would not help

me

> >overcome this and that was more effective for some of the other

> >types, such as Type O and I believe A, which are both much more

> >common than my AB. I am really wondering if this is true and if I

> >will do better following Eat Right, but I don't know who to ask for

> >an expert opinion!

>

> Hi, I am following Eat Right For Your Type, and I am Type O. I have

been

> battling candida for several months.. it comes and goes... you

know.. but

> the Eat Right plan is REALLY working for me. I have not gone to a

doctor to

> get nystatin, which I want, but I have been mega supplementing with

> Essential Fatty Acids, Pau d'Arco, and Caprycilic (sp?) acid and of

course

> lactobaccillus acidophilus. I can say only VERY good results from

following

> Dr. Adamo's plan, he is right on the money about all kinds of stuff.

> Just my.o2 cents!

> Jocelyn

[Guest guest]

Hi Eileen, I am so glad that my information was helpful to

you and your doctor. I just wanted to add that my son also

had another test, I cant remember the name of it but it

x-rayed his palate to see if removing his tonsils would

effect his speech. We also only had his tonsils removed,

they were so large that they touched when he opened his

mouth, but the doctor opted to leave his adenoids as they

appeared normal in size. The results were phenomenal! Again,

you and your family will be in our prayers, let me know how

you do!

, mom to 3 great kids! 15, Micheal 14 non

progressive muscle disorder & Apraxia, 9 Apraxia (now

a nonstop talker!!)

[Guest guest]

Hi Christy - I'VE ANSWERED IN CAPS BELOW . . I'M NOT YELLING . . REALLY I'M

NOT.

> From: " Christy <cdavis0627@...> " <cdavis0627@...>

> Subject: ~Intro, ?s, & Need Endo Recommendation in Columbus, OH~

>

>

> BTW, my TSH (not sure which particular test was given) was .002 (with

> range of .5 - 4.5 or something like that) and my Thyroxine (again,

> not sure which exact test) was 14.9 (range of 5 - 12 or something

> like that.) I left my copy of the results with my new GP, but

> anyway... THESE DON'T LOOK LIKE SEVERE HYPERt - YOU STILL

> HAVE A READABLE AMOUNT OF TSH AND ARE ONLY A HOP SKIP AND JUMP AWAY FROM A

> GOOD T4 READING. --->WHAT ARE YOUR T3s LIKE?

>

> 1. IF I decide to cooperate and have the uptake scan (which I

> understand is only useful for determining how much poison they must

> give you to kill your thyroid)... what are the chances that my

> symptoms will be much worse afterward... or that I will make a trip

> to the hospital with Storm?? MOST LIKELY NOT A STORM BUT THE

> IODINE MAY AGGREVATE YOUR CONDITION AND CHANGE YOUR READINGS INTO MORE

> SEVERE . . .MY HAIR HAS BEEN THINNING EVER SINCE THE UPTAKE. IT'S STILL

> RADIOACTIVE STUFF AND REMEMBER- THE 1/2 LIFE THEY QUOTE IS 1/10TH THE LIFE

> THE STUFF STAYS WITH YOU.

>

> 2. If the answer to the above is bad news, is it at all likely that I

> can find an endo that does not push the Uptake Scan, and/or is not an

> overall 'Radiation Nazi' as their first (and only?) advice for

> dealing with hyperT? FIND A HOMEOPATH OR NATUROPATHY TO START WITH. SEE IF

> THEY CAN HELP AND IF NOT- TO RECOMMEND SOMEONE THEY CAN WORK WITH WHO USES

> MEDS IN ADDITION TO NATURAL CURES.

>

> 3. Would you recommend that I call every Endo in my PPO network to

> ask about their usual treatment advice and/or make an appointment to

> learn firsthand? YEAP.

>

>

NOTE- MY READINGS WERE NOT bad to begin with (stopped the caps). When I first

went in to find out if I was hyperT - TSH was .03, T4 a little high and t3

very high. I tried the tapazole but the dirtbag doctor over dosed me and it's

been 6 weeks getting over the rashes, hives, chicken pox and boils. According

to the dirtbag doc- they said any hyperT is serious. Presently, while just

using propranolol - my TSH is <.01, T4s still high ----> T3 NORMAL! So until

my liver is back to normal - I'm not in any hurry to go to any other doctor

than my natureopathic practitioner.

Recovering from tap-

Sherry

Diagnosed in late August. On tap 20 mg pr day - 2 weeks, 30 mgs for 3rd week,

40 started the 4th and crashed Nov 7th. Felt great at 20 mg a day but

readings were still off so they kept increasing the dose- Note- if you are

starting on tap- get liver function readings each blood test since this stuff

can really mess up the liver.

[Guest guest]

In a message dated 11/3/03 2:28:37 AM Mountain Standard Time,

SSRI medications writes:

> These shots cost $12 a day and are supposed to go on for 2 years. They

> will not tell me anything, she still looks stoned when i see her. Does anyone

> know anything about this type of clinic? Please help me understand!!

>

Help ME understand. What ARE these shots? What kind of clinic is it?

Where's she score the Oxy, from the same doc who got her hooked on Lex????

<A HREF= " http://anxiety-panic.com/griffon " >Blind Reason</A>

a novel of espionage and pharmaceutical intrigue

Think your antidepressant is safe? Think again.

[Guest guest]

Hi Alice,

I'm so sorry to hear about your CI problems. That is not fun, but I do agree

with people on the forum--you are amazing. While you are seeking opinions and

changes. Have you thought about finding out who are the top surgeons? I mean, a

lot of surgeons are good but you would want only the best, especially the ones

who instruct others how to do a CI operation. Give them a call and see what they

can tell you.

Here's a good story: I was the first operation scheduled but the second

operation involved a baby from Venezuela with an infected implant. She was

implanted there. Her mother and grandmother brought her to Miami to see Dr.

Balkany and to see if he could fix. It must have gotten very bad because we got

switched around. Dr. Balkany has operated on patients outside the US when he is

not in Miami. We waited until 2:30pm for my operation. Long wait, but my mom was

relieved that " problems of the day " already occured and that nothing would

happen to me during my operation. Dr. Balkany removed the infected device and

implanted a new one in her other ear to give the infected ear a chance to heal.

The baby was then put in recovery while everyone moved on to my operation. We

were both placed in the same room overnight on observation. I was very healthy

but it was 5:30pm. I decided to spend the night in the hospital instead of

directing my Mom thru the Dolphin Expressway home. So our mothers and

the grandmother ended up talking all night while not sleeping. They took turns

watching both of us. I did go through the operation with flying colors. The only

slight problem was when I came to, I threw up! The nurses told me it was a

normal but not frequent reaction to the anesthesia post-op. This is probably why

THEY don't let you eat for hours before the surgery. When I threw up, it was

like spilling a drink into a pan.

Dr. Balkany told me at my follow up that the baby is doing very well in

Venezuela. He has done over 600 operations and I would trust him to fix anything

in my ears.

If you are in the mood for a Florida trip, give this guy a call if not satisfied

with any other surgeons fixing what you have.

/IslandBreeze

[Guest guest]

le, I believe that site is owned by a surgical products company, and the

surgeons listed there may be ones who use certain implants they produce. So it

should probably not be taken as endorsement of the surgeons' skill. But if a

particular name interests you, you can " Google " it, and ask around online. The

general scoliosis forums are likely to be of more help than this one, since this

is primarily for people whose fused spines later caused them problems.

When I sent you that link I didn't check to see if the videos of a young girl

going through the minimally invasive fusion are still there. If they are, they

are really worth viewing. Be prepared for a strong emotional reaction, though.

Even with the newer techniques, it's still very major surgery.

I'm not so sure you should be blaming yourself for your pain. If you have a

Harrington rod you may very well have flatback syndrome, and as far as I know

skinny people get it too. Of course it's always good to keep in shape and watch

your weight. I know you have a lot on your plate right now, with caring for

your children. But I think you are due for a consultation of your own with

someone who specializes in problems related to surgically treated scoliosis.

You have an advantage being so close to NYC, where Drs. Boachie, Farcy, and

Errico practice. I'm sure I'm omitting someone. There's a list of possible

revision surgeons on the Feisty site. At least you want to look into getting

the pain under control, so you can start a gentle exercise program.

I myself have flatback from my 1971 fusion, T5 - L4, and have not had surgery

for it. My pain is still manageable, with Elavil, Celebrex, massage, swimming,

bike-riding, and careful weight-training. Everyone is different, though, and

you'll want to get expert advice on what kind of exercise is best for you.

Sharon

Re: Question for the group - Scolio in child

Hi, le.

I'm from a family with a lot of idiopathic scoliosis, so I was raised with a

strong scoli-awareness. Since your own case was serious enough to require

surgery, you should definitely get your 8-year-old examined by a specialist,

and have someone keep an eye on the 9-yr.-old. It may well be that the

specialist will only want to " follow " your daughter, as I guess PT isn't

used as much these days as it was when I was a kid. I would inquire about

it, though, because well-balanced exercises for the torso muscles can only

help her general wellness, if not the curvature. As you may know, the pre-

and early-puberty years are critical, as growth tends to spurt and

curvatures can increase dramatically. A brace may be considered to help

slow progression during this period.

I feel for you, as I can only imagine how it would feel to have passed the

gene along to your child. (I sure heard enough about it from my dad!)

I hope things work out for your girls, and that they don't end up needing

surgery. Of my dad's 7 kids, 5 of us have scoliosis, but only 2 of us

needed surgery, and one only needed a brace.

I have seen online that there is a new minimally invasive fusion available

for kids whose deformities meet certain criteria. (I guess the curvature

can't be too severe, for one thing.) Here's a link to the site that covers

it. It actually has a pretty good explanation of flatback syndrome (HARMS),

as well.

BTW, how are YOU?

http://www.iscoliosis.com/

Sharon

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

[Guest guest]

I won't say that you have made me angry but since I've been living with

multiple spinal cord injuries now for about eight years, I do know that

mental attitude frequently is the key to recovery. If your mental

attitude is as negative as it comes across here, I'm not surprised that

you are in pain. You seem to be a very angry person.

Ginger Corley

Rain Mountain Chinooks

www.rainmountain.net

Digest Number 857

But doctors are not helpful. I've found doctors to be deceitful

liars.

Typical.

Doctors Suck!

k.

Figures!

All these doctors LIE.

They tell you you'll be better, then they make you WORSE!

k.

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.300 / Virus Database: 265.7.2 - Release Date: 1/21/2005

[Guest guest]

I won't say that you have made me angry but since I've been living with

multiple spinal cord injuries now for about eight years, I do know that

mental attitude frequently is the key to recovery. If your mental

attitude is as negative as it comes across here, I'm not surprised that

you are in pain. You seem to be a very angry person.

Ginger Corley

Rain Mountain Chinooks

www.rainmountain.net

Digest Number 857

But doctors are not helpful. I've found doctors to be deceitful

liars.

Typical.

Doctors Suck!

k.

Figures!

All these doctors LIE.

They tell you you'll be better, then they make you WORSE!

k.

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.300 / Virus Database: 265.7.2 - Release Date: 1/21/2005