RE: Re: Raising Prostate Cancer Awareness on Facebook

[Guest guest]

If you go to the FaceBook home page at http://www.facebook.com/ and enter prostate

cancer in the search engine you’ll find the (few) sites; enter prostate cancer

awareness and you’ll find more; enter support prostate cancer awareness

and you’ll find the one with the most members. I guess there may be other

groups with variations on the prostate cancer theme

Terry

Herbert

Moderator: Prostate Cancer Support List

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of sammy_bates

Sent: Monday, 25 January 2010 9:42

AM

To: ProstateCancerSupport

Subject:

Re: Raising Prostate Cancer Awareness on Facebook

Maybe you could write down a brief guide to getting to the places on facebook

where prostate cancer is discussed ? Sam [ from a different computer ]

> >

> > Daryl-

> > Help others, like me, who don't know their way around facebook. Where

is " status " ??

> > Phil

> >

>

[Guest guest]

Rich,

I can’t say that I have been to all

the FaceBook sites, but the ones I have visited tend to be what FaceBook is –

social sites where some information [usually low in technical aspects] is

exchanged. The “New” " New "

Prostate Cancer InfoLink Social Network at http://prostatecancerinfolink.ning.com/

tries to combine some limited social aspects with more technical focused

discussions, but it does not seem to be very active and I must confess that I find

it difficult to navigate. A ‘sister’ site is THE " NEW " PROSTATE CANCER INFOLINK at

http://prostatecancerinfolink.net

which posts news items with what I think is excellent commentary. As my

oncologist told me donkey’s years ago – you learn something new

about PCa every day, and that is a good site to learn, I think.

There are some lists which are more

technical although many of them often develop a focus on a specific treatment.

For example, this List was regarded by many about 18 months ago as a PBT

(Proton Beam Therapy) list because there were many vocal supporters for that

therapy. It is not so PBT focused now because a specific PBT list was formed. There

are other focused Lists for EBRT, Cry, HIFU, ADT etc where most of the

discussions are pretty general. Steve J and Alan Myers contribute to another

general list, I know – sorry boys I don’t have the URL handy –

and there are others if you search around. I like the PPML List, despite the

bias of some of the old timers there. The addresses and descriptions of some of

the Lists and Forums are on my site at http://www.yananow.net/mailinglist.htm

and I suggest you have a look around at those until you find any that are

useful for you.

All the best

Terry Herbert

I have no medical

qualifications but I was diagnosed in ‘96: and have learned a bit since

then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of

the decisions we make with regard to prostate cancer are made with inadequate

data "

From:

ProstateCancerSupport

[mailto:ProstateCancerSupport ] On Behalf Of Rich

Sent: Tuesday, 26 January 2010

9:16 AM

To:

ProstateCancerSupport

Subject:

Re: Raising Prostate Cancer Awareness on Facebook

Terry,

Do you have a recommendation of which group is the more effective in sharing

real data/info versus the social networking stuff you normally see? What I saw

in the larger group was more light hearted chatter and some misinformation

regarding home remedies/fads.

Rich L

Green Bay, WI

> > >

> > > Daryl-

> > > Help others, like me, who don't know their way around facebook.

Where is

> " status " ??

> > > Phil

> > >

> >

>