Re: Re:Burcie, Brucie, Brucie... CHANGE TO CONSTITUTION

[Guest guest]

Bruce, It would be refreshing to have the

people running our country to be as smart as many of us on this board.

We know the answers to many questions, or we find the correct answers

before opening our mouths and saying

stupid stuff like the guy in office now!

Not that you can tell my bias or anything!!! And we don't lie!!!!!! We

can be painfully honest which is good!

Z fibriotic NSIP/05

Z

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

Potter,

reader,carousel lover and MomMom to

Darah

“I’m gonna

be iron like a lion in Zion” Bob Marley

Bruce Moreland wrote:

Just trying to correct the millions who thought I actually had the

power to change the requirements to become a pulmonologist. Next, I'm

going to change the constitution....in fact right now, I think.

I propose a change to the US Constitution (sorry Zena, , May)

giving total authority for running the country to the current active

members of this board. This is effective immediately.

I find it

> > > > interesting to get a picture of our group and

various

> > > > > issues we've faced. The polls or surveys show

as we all

know

> that

> > > > > there are no right answers and no absolutes or

consistencies.

> > > > >

> > > > > Sleep Apnea

> > > > >

> > > > > Leanne ran a poll asking if we'd been tested

for sleep

> apnea. 52%

> > > > > said yes and 48% no. Right down the middle.

Does that mean

> the

> > > > other

> > > > > 48% have no problems or just they haven't been

tested. Of

> those

> > > > > tested, how many are on CPAPS or just taking

oxygen for

> sleep.

> > > > >

> > > > > Advil

> > > > >

> > > > > There was a poll as to what percent had used

Advil for

> > coughing or

> > > > > shortness of breath. The results were odd as

all four who

> said

> > they

> > > > > had tried it said it had been successful in

helping. No one

> said

> > > > they

> > > > > had tried it unsuccessfully. The vast majority

(15) hadn't

> > tried it

> > > > > for those symptoms.

> > > > >

> > > > > Coke/Pepsi

> > > > >

> > > > > Ok, we knew going in this wouldn't be

close....lol

> > > > >

> > > > > Prednisone

> > > > >

> > > > > 37% said they were on it and had seen a

benefit. 11% on it

> > with no

> > > > > benefit. 28% have come off it or were coming

off at the

> time. 20%

> > > > > chose to not try it. Very mixed as we would

have expected.

> I

> > think

> > > > it

> > > > > shows why people need to learn and make their

own decisions

> as it

> > > > > clearly shows whats right for one isn't for

others. Still

> with

> > all

> > > > > the negatives (and I'm among the haven't and

won't group),

> 37%

> > are

> > > > on

> > > > > it and feel its benefitting them.

> > > > >

> > > > > Diagnosis

> > > > >

> > > > > 52% here feel totally confident in their

diagnosis as to

> > > > specifically

> > > > > which form of ILD they have. 31% have some

confidence but

> not so

> > > > > sure. 17% are completely in the land of

confusion and

> > frustration.

> > > > > Tell me any other disease in which only half

would feel

> confident

> > > > of

> > > > > their diagnosis. And this doesn't even account

for what the

> > > > confident

> > > > > 52% had to go through to get there. Most

diseases, you

have a

> > > > simple

> > > > > test or two and have your answer. Here's the

disease,

here's

> the

> > > > > treatment. Come back in a year. A good

percentage of those

> of us

> > > > > totally confident had to go through a very

invasive

surgery.

> > > > >

> > > > > When its easier to get a concensus on Coke

versus Pepsi

than

> > > > anything

> > > > > related to our disease, that tells you

something. It just

> shows

> > > > that

> > > > > for everything we know about this disease

there are

hundreds

> of

> > > > > things we don't know. All the more reason we

need each

other.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ---------------------------------

> > > > > Looking for last minute shopping deals? Find

them fast with

> > Yahoo!

> > > > Search.

> > > > >

> > > >

> > >

> >

>

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