Guest guest Posted February 27, 2001 Report Share Posted February 27, 2001 Hi all, Ed, do you have the pes caves feet? I believe HPNN & CMT1A are one & the same. I had DNA testing & am positive for CMT1, but also have pressure palsies. I have wasting in my calves, but my sis, e,69, flatly denies she has anything wrong w/ her, but has pes caves feet, w/ very large calves. She hasn't worked since she was 49, & aways did secretarial work. She never had to use physical strength in her jobs. So this is in same family! The job I had before retiring w/ disability required strenuous use of my arms & hands, w/ total loss of strength one day while working, weakness & pain. I was sent to company docs, who were not actual doctors, (figure that out!), I was tested for Carpal Tunnel, but they said it wasn't CTS. I was already tested positive for CMT. They just let it go at that! Thats pretty much when I retired at 56. Anyway, OMP, but I think these different types of CMT are the same, including HNPP. Someday I believe they will discover just that! My brother had a largnx removedbecause he was having respiratory problems. He is an alcoholic also, dringing since teen years! He worked in steel mill for 45 years. Most of his older years, after say age 45, before retiring at 62, (he is now 71) because of seniority was just pushing buttons! Needless to say, because of my job, I am only sibling w/ osteoarthritis really bad in hands. Last blood test for sed rare for Rheumatoid Arthritis was high. (Jan. this year). Best Wishes, Patsy P>S> This will probably open another can of worms! LOL, but this is JUST MY OPINION> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2002 Report Share Posted February 3, 2002 Cheri, I thought they did not stop you peg unless you absolute neutril get to below 1.5. My wbc not on peg is sometimes only 2.9 due to the hep c. Did you say he was giving you lithium to raise yur wbc. If you did be very careful with the lithium it can screw up your electrolytes and make you toxic. You should have the levels check very often . Even though lithium is a trace mineral found sometimes in our system, it is a nasty little pill to take if you're not bipolar with lots of sides. PS Lots of docs won't give neupogen or procrit. I don't know about the dangers but the prices are outlandish something like $2,000 a month. Uless you have lots of liver damage I wouldn't get desperate about the peg, you can always wait until something else comes along, that's what I'm doing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2002 Report Share Posted February 6, 2002 Hey all, May I suggest a time saver and an easier way to read this board? When you reply to people 1) hit reply 2) go to edit and select all [or hit the control and A keys at the same time] and erase all messages and then write your message. This avoids repeating messages over and over. When I want to respond to a message I highlight what I want to reply to, copy that 'bit, perform 1 & 2 above, then paste the copied part , then write my text and hit send. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Re; Luca I believe that the wait for the CT scan is normal due to the fact that the bone where they place the internal portion of the implant is not fully developed until 9-12 months of age. The best thing to do is just what you are doing, get him the aids and talk, talk, talk to him. Think about auditory-verbal therapy. It is great. My daughter is 8 years old and has had her implant for 6 years. She is doing great!! Best of luck! mom of Sydney N24 1997 ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 > I believe that the wait for the CT scan is normal due to the fact that > the bone where they place the internal portion of the implant is not > fully developed until 9-12 months of age. Actually, the cochlea is fully developed at birth. Just thought I would mention that! Misty Hauf Mom to Cierra, 9 (N24 12/99) and Kelcie, 5 (N24 6/00) To read about the girls, go to http://www./jmhauf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 I have heard of the CI being done at as young as 6 months of age...but it is not FDA approve yet for that young. Ruth Re: Digest Number 790 > I believe that the wait for the CT scan is normal due to the fact that > the bone where they place the internal portion of the implant is not > fully developed until 9-12 months of age. Actually, the cochlea is fully developed at birth. Just thought I would mention that! Misty Hauf Mom to Cierra, 9 (N24 12/99) and Kelcie, 5 (N24 6/00) To read about the girls, go to http://www./jmhauf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Age 49 Diagnosed in my early 30s. with RA. Had lots of pain all over....hands were the worst. Took Motrin to start then started on the hard stuff. At age 32 I decided to change my diet....get off the prescription drugs and start with targeted supplements. At age 49 I have a SMALL disfigurement in my fingers and I am not on any prescription drugs. I cut out sugar, caffeine, white flour and I drink 1 gallon of water a day and take supplements....that really help......if I do not take my supplements.............in three days......I will start hurting....so I know they work. I hope all of you can find the same relief I have. Trish trish@... PS since the supplements worked, I became a representative to get them cheaper as I have been on them for YEARS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 In a message dated 8/1/2005 10:47:37 A.M. Eastern Daylight Time, writes: /files/Supplement%20Savvy2.doc Just a comment, as requested re: Supplement handout. Overall, very good, however in the four rules section it is suggested that patients take supplements with sparkling mineral water if they have difficulty swallowing pills with plain water. We advise our post-surgical bariatric patients to avoid carbonated beverages. Quote Link to comment Share on other sites More sharing options...
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