Re: Incontinence while walking

[Guest guest]

Hi Rick

I am sorry to hear that you are having these problems. If you have not already done so I suggest you bring this to the attention of your Urologist. I had some incontinence post surgery but it is pretty much under control now I am 1 year post surgery.

My guess is that you are having problems with your uninary sphincter. As I understand it there were three of them prior to surgery but only one left post surgery. There is a procedure to put in an artifical one. Your Doctor can evaluate you for that.

i am not a Doctor but it is a thought that comes to me.

Good luck with this.

Harry

Subject: Incontinence while walkingTo: ProstateCancerSupport Date: Wednesday, April 14, 2010, 7:49 AM

I am 5 weeks post catheter removal after robotic surgery and am now having no control over leakage when standing or walking. With sitting and sleeping there is reasonable control. I am looking for advice as to how long some have had to wait until control was obtained especially when walking. I am doing my Kegels plus a number of other exercises recommended by a physical therapist who specializes in incontinence issues. Rick --

[Guest guest]

It sounds like you had your surgery about

the same time as me, Feb 22. I too am still having the same problems. It

sort of happens as a spasm doesn’t it? I last visit the other day

my urologist said that is normal and that I was progressing just fine at a “moderate”

rate of recovery. You need to train your body to have a slight

tension of the kegel when you stand or walk. He also encouraged me to do plenty

of walking which he has done since the recovery room. I feel real good, I just

had my first day of having a dry pad at the end of the day. I did a lot of

waking yesterday and I did have a couple of spasms but I have learned to react

to them. I understand that it could be as much as 6 months for full control to return.

Since the radiation oncologist is waiting they are hoping that it doesn’t

take that long for me.

There are things they can do to give you your

control back too. An artificial sphincter can be installed that stays

closed until you press a valve to open it. I talked with a person that had one

and he said that he can stand at a urinal and operate the valve without the

person next to him know it.

Keep up the good work. It sounds like you

are progressing just fine.

From:

ProstateCancerSupport

[mailto:ProstateCancerSupport ] On Behalf Of Tkachuck

Sent: Wednesday, April 14, 2010

7:49 AM

To:

ProstateCancerSupport

Subject:

Incontinence while walking

I am 5 weeks post catheter removal after robotic

surgery and am now having no control over leakage when standing or walking.

With sitting and sleeping there is reasonable control. I am looking for advice

as to how long some have had to wait until control was obtained especially when

walking. I am doing my Kegels plus a number of other exercises recommended by a

physical therapist who specializes in incontinence issues.

Rick

[Guest guest]

Larry,I am almost 19 months post-op and still have issues (some because of the surgery and some not). My urologist said that if I am comfortable with it, he won't push it. Some may take up to 2 years. I have good and bad days. Some I get through with 1 pad (I have a slight leakage). We are discussing the male sling and possible implant now. I may have damaged the nerve when I was stuck in the middle of nowhere and had a blowout. Stretched everything where I should NOT have and pulled some loose. Am just now getting spontaneous erections (softies) and working with the VEP to get blood flow. Patience MUST be exercised.Steve S in ArkansasTo: ProstateCancerSupport Sent: Wed, April 14, 2010 9:04:35 AMSubject: RE: Incontinence while walking

It sounds like you had your surgery about

the same time as me, Feb 22. I too am still having the same problems. It

sort of happens as a spasm doesn’t it? I last visit the other day

my urologist said that is normal and that I was progressing just fine at a “moderateâ€

rate of recovery. You need to train your body to have a slight

tension of the kegel when you stand or walk. He also encouraged me to do plenty

of walking which he has done since the recovery room. I feel real good, I just

had my first day of having a dry pad at the end of the day. I did a lot of

waking yesterday and I did have a couple of spasms but I have learned to react

to them. I understand that it could be as much as 6 months for full control to return.

Since the radiation oncologist is waiting they are hoping that it doesn’t

take that long for me. There are things they can do to give you your

control back too. An artificial sphincter can be installed that stays

closed until you press a valve to open it. I talked with a person that had one

and he said that he can stand at a urinal and operate the valve without the

person next to him know it. Keep up the good work. It sounds like you

are progressing just fine.

From:

ProstateCancerSuppo rtyahoogroups (DOT) com

[mailto:ProstateCan cerSupport@ yahoogroups. com] On Behalf Of Tkachuck

Sent: Wednesday, April 14, 2010

7:49 AM

To:

ProstateCancerSuppo rtyahoogroups (DOT) com

Subject: [ProstateCancerSupp ort]

Incontinence while walking

I am 5 weeks post catheter removal after robotic

surgery and am now having no control over leakage when standing or walking.

With sitting and sleeping there is reasonable control. I am looking for advice

as to how long some have had to wait until control was obtained especially when

walking. I am doing my Kegels plus a number of other exercises recommended by a

physical therapist who specializes in incontinence issues.

Rick

[Guest guest]

Tkachuck wrote:

> I am 5 weeks post catheter removal after robotic surgery and

> am now having no control over leakage when standing or walking.

> With sitting and sleeping there is reasonable control. I am

> looking for advice as to how long some have had to wait until

> control was obtained especially when walking. I am doing my

> Kegels plus a number of other exercises recommended by a

> physical therapist who specializes in incontinence issues.

Rick,

You may be able to get some useful information by browsing

through the yananow website. Here is a link to a web page on

Terry Herbert's site where men have written about their

experience with robotic surgery:

http://www.yananow.net/ExperiencesRALP.htm

Good luck with the incontinence and with the rest of your

treatment and recovery.

Alan

[Guest guest]

This sounds like stress incontinence.

I wore an external catheter for 6 months of so after the op, then the bag only contained a few millilitres of urine so I moved to one pad a day.

I can give you hope, it just takes time, see how you are in a couple of months, try an external catheter for cleanliness

Incontinence while walking

I am 5 weeks post catheter removal after robotic surgery and am now having no control over leakage when standing or walking. With sitting and sleeping there is reasonable control. I am looking for advice as to how long some have had to wait until control was obtained especially when walking. I am doing my Kegels plus a number of other exercises recommended by a physical therapist who specializes in incontinence issues. Rick --

[Guest guest]

:

By "external catheter," do you mean the so-called "Texas catheter"? A small condom-like device over the head of the penis instead of the device inserted IN the penis? I looked a those and can't understand why they don't connect to an overnight collection bag. At least I was told they don't; instead, they just connect to a "leg bag."

What's been people's experience with those? I'm tired of waking up swimming in a puddle but am reluctant to insert a standard catheter.

Tom

Incontinence while walking

I am 5 weeks post catheter removal after robotic surgery and am now having no control over leakage when standing or walking. With sitting and sleeping there is reasonable control. I am looking for advice as to how long some have had to wait until control was obtained especially when walking. I am doing my Kegels plus a number of other exercises recommended by a physical therapist who specializes in incontinence issues. Rick --

[Guest guest]

Tom --

I used a condom catheter a fair bit during recovery from prostatectomy. And

occasionally, if I have to stay dry for more than two hours or so, I still

revert to it.

I don't think there's any difference between a " leg bag connection " and an

" overnight bag connection " . And if there is, you can buy a foot of latex tubing

and " universal-fit " connectors to make any adapter you might need. They should

be available at any pharmacy that has a good selection of incontinence gear.

When you're standing up or sitting, the condom catheter drains nicely, downward,

toward the bag. When you're lying down -- asleep -- you might have the head of

your penis sitting in a puddle of urine, inside the catheter. Not such a good

idea.

This is not rocket science, and not very costly to try. Get a few condom

catheters (they're about $1 each) and an overnight bag, and the necessary

tubing. Use 3M " Coban " tape at the top of the condom catheter, around it and

your penis, to hold it in place. [Most condom catheters have adhesive; I hate

those, quite painful to remove!]

It will either work for you, or it won't. Please report back.

>

> :

>

> By " external catheter, " do you mean the so-called " Texas catheter " ? A small

condom-like device over the head of the penis instead of the device inserted IN

the penis? I looked a those and can't understand why they don't connect to an

overnight collection bag. At least I was told they don't; instead, they just

connect to a " leg bag. "

>

> What's been people's experience with those? I'm tired of waking up swimming in

a puddle but am reluctant to insert a standard catheter.

>

> Tom

>

>

> --

>

[Guest guest]

Tom --

I used a condom catheter a fair bit during recovery from prostatectomy. And

occasionally, if I have to stay dry for more than two hours or so, I still

revert to it.

I don't think there's any difference between a " leg bag connection " and an

" overnight bag connection " . And if there is, you can buy a foot of latex tubing

and " universal-fit " connectors to make any adapter you might need. They should

be available at any pharmacy that has a good selection of incontinence gear.

When you're standing up or sitting, the condom catheter drains nicely, downward,

toward the bag. When you're lying down -- asleep -- you might have the head of

your penis sitting in a puddle of urine, inside the catheter. Not such a good

idea.

This is not rocket science, and not very costly to try. Get a few condom

catheters (they're about $1 each) and an overnight bag, and the necessary

tubing. Use 3M " Coban " tape at the top of the condom catheter, around it and

your penis, to hold it in place. [Most condom catheters have adhesive; I hate

those, quite painful to remove!]

It will either work for you, or it won't. Please report back.

>

> :

>

> By " external catheter, " do you mean the so-called " Texas catheter " ? A small

condom-like device over the head of the penis instead of the device inserted IN

the penis? I looked a those and can't understand why they don't connect to an

overnight collection bag. At least I was told they don't; instead, they just

connect to a " leg bag. "

>

> What's been people's experience with those? I'm tired of waking up swimming in

a puddle but am reluctant to insert a standard catheter.

>

> Tom

>

>

> --

>

[Guest guest]

Thanks, . I have special ordered a couple overnight bags that are compatible with the condom catheters. Don't know why the store doesn't stock them. I was told initially there was no way to use the condom catheter with an overnight bag. I'll have to find the 3M Coban tape.

BTW, the only difference, as far as I know, between leg bag and overnight bag is volume capacity. A leg bag holds 32 ounces or less, an overnight bag 50 ounces or more. But there's probably no hard and fast dichotomy.

I'll report back after I've tried the new rig.

Tom

Re: Incontinence while walking

Tom --I used a condom catheter a fair bit during recovery from prostatectomy. And occasionally, if I have to stay dry for more than two hours or so, I still revert to it.I don't think there's any difference between a "leg bag connection" and an "overnight bag connection". And if there is, you can buy a foot of latex tubing and "universal-fit" connectors to make any adapter you might need. They should be available at any pharmacy that has a good selection of incontinence gear.When you're standing up or sitting, the condom catheter drains nicely, downward, toward the bag. When you're lying down -- asleep -- you might have the head of your penis sitting in a puddle of urine, inside the catheter. Not such a good idea.This is not rocket science, and not very costly to try. Get a few condom catheters (they're about $1 each) and an overnight bag, and the necessary tubing. Use 3M "Coban" tape at the top of the condom catheter, around it and your penis, to hold it in place. [Most condom catheters have adhesive; I hate those, quite painful to remove!]It will either work for you, or it won't. Please report back.>> :> > By "external catheter," do you mean the so-called "Texas catheter"? A small condom-like device over the head of the penis instead of the device inserted IN the penis? I looked a those and can't understand why they don't connect to an overnight collection bag. At least I was told they don't; instead, they just connect to a "leg bag."> > What's been people's experience with those? I'm tired of waking up swimming in a puddle but am reluctant to insert a standard catheter.> > Tom> > > -->