Guest guest Posted September 1, 2000 Report Share Posted September 1, 2000 Terry: Often times if you have one autoimmune disease, you can and will have more. Although you do not get one from the other, it just seems to work that way. Some people have many autoimmune diseases. There is testing by touching specific tender points in the body to see if you have FMS. There are also other things connected to FMS such as depression, IBS, extreme fatigue to mention a few. I would talk to your dr about this. Good luck. Jeannette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 Hi Tery, I have both RA and Fibro. What fun!!!! ---------- > From: tperrella@... > egroups > Subject: [ ] Another Question > Date: Friday, September 01, 2000 7:27 PM > > > Can you have RA and Fibromyalgia at the same time? Jenette mentioned > Fibro I went and read about it. Bingo! That is how I felt today. Is > there any tests for it? This is really great! All I need now is to > collect auto immune diseases. Think I'll call my rheumy tuesday and > say, " Girl, have I got a surprise for you " . > > Ohio-Terry > > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 I too have Fibro, RA, and undifferentiated connective tissue disease. I have gone from being an active mother of 2 ( used to do all kinds of things, including work),to thank God kids are older and more independent .........I used to be able to clean whole house (3 bdrm, 2 bath) in a couple hours.......and it had stairs!! and now I live in a 2 bdrm , 2 bath apt ....takes me a couple hours to get my own bdrm started. I take things a lot easier now, and break " my to do lists " down into smaller tasks ..that way when you do some you feel like you accomplished more......I take about 30 pills a day.....I can honestly say I feel better than I did a couple years ago.......most days.I live in AZ and I thank God it's not humid here much nor do we have much rain.....I feel so good since discovering this group..........I have mouth sores from Methotextrate, I hurt some days in my hips and butt ..feels like bones are coming straight out my skin.........I dont take predisone anymore unless it's a really bad time......my blood pressure has risen , I have diabetes(Type 2 NID) , Had my rt knee replaced 18 mon ago, and I will survive......I do still have good days ......not as many as the bad......but hey I will survive.........at least I know I'm not going crazy any more...Thanks for letting me talk..........Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 a, Yes I do take folic acid for the mouth sores ........and yes it helps..but since having strept a few weeks ago ..seems mouth has been really sore.Yes , I agree cleaning is not that important...believe me I used to be a fanatic.........now I just try to go day by day, hour by hour sometimes .......some days I really miss the old me......oh well thank God meds work well for me..........I really like this site ..never knew so many people are going through all this ..........Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 Judy, Many of us can relate to your story. Difficulties cleaning is one of my sources of aggravation. After awhile, we learn to pick our battles, and cleaning is not one of mine. It gets me down from time to time. I am lucky to have 2 teens at home that I can tell what to do. But I would rather do it myself, and no one cleans like I used to. Do you take Folic acid for the mouth sores? It normally is prescribed with mtx to help with them. Forgive me if you already told me. My memory has been like a sieve lately. I went to Arizona a few years ago and loved it, but the heat was hard to deal with. It is a beautiful place. a ----- Original Message ----- From: <JHend65291@...> < egroups> Sent: Saturday, September 02, 2000 10:33 AM Subject: Re: [ ] Another Question > > I too have Fibro, RA, and undifferentiated connective tissue disease. I have > gone from being an active mother of 2 ( used to do all kinds of things, > including work),to thank God kids are older and more independent ..........I > used to be able to clean whole house (3 bdrm, 2 bath) in a couple > hours.......and it had stairs!! and now I live in a 2 bdrm , 2 bath apt > ...takes me a couple hours to get my own bdrm started. I take things a lot > easier now, and break " my to do lists " down into smaller tasks ..that way > when you do some you feel like you accomplished more......I take about 30 > pills a day.....I can honestly say I feel better than I did a couple years > ago.......most days.I live in AZ and I thank God it's not humid here much > nor do we have much rain.....I feel so good since discovering this > group..........I have mouth sores from Methotextrate, I hurt some days in my > hips and butt ..feels like bones are coming straight out my skin.........I > dont take predisone anymore unless it's a really bad time......my blood > pressure has risen , I have diabetes(Type 2 NID) , Had my rt knee replaced 18 > mon ago, and I will survive......I do still have good days ......not as many > as the bad......but hey I will survive.........at least I know I'm not going > crazy any more...Thanks for letting me talk..........Judy > > Our websites: http://rheumatoid.arthritis.freehosting.net/ > http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 Just a little something to cheer everyone. I have never been a fanatic about my house cleaning. I do, however, like a clean house. I never did like the term " HOUSEWIFE " . I am not married to my house, I'm married to a wonderful man. I'd prefer to be called the " Domestic Goddess " and getting plenty of practice lately. Those of you that stay home can consider yourself Goddesses or Gods (to be politically correct). Sylvia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2000 Report Share Posted September 2, 2000 never thought of myself as a goddess just a mom that stays home for her kids. lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 I have read in many articles and research papers that the answer to your quiestion is quite correct. There are the so-called weak ones of us, me included, that make us more prone to SBS. However, I believe that it does not stop at SBS but goes straight to Bruilding Related Illness (BRI). If you have asthma before entering a sick building, then I truly believe that it increases your chances of coming down with real problems. Lin my case, I have always had a low level depression and possibly ADD. However, it was never badd enough that I was not able to work my way through life with much success, until I sat in the Nassif Building in Washington, DC. In two and one half years, I went from a low level depression to full blown Major Depressive Disorder (Recurrent - Moderate to Severe) without psychotic features. Yes, pre-morbid conditions that people have are exsaserbated by the affects of sick buildings. This is much the reason why we are ignored by doctors and others in the scientific and business communities. We supposedly represent only an expendable few. However, I believe what we might call the " so-called strong, " are just waiting their turn. That is, it is taking the mold and filth a little longer to get them. When it does, the world is likely to see a castrophic event worse than the Black Plague of many, many years ago. Hang in there and lets see if through this group we can get the word out on this problem. Sincerely Larry N. McQuarie, Sr. >From: dmco362@... >Reply- > >Subject: [] Another question >Date: Wed, 25 Sep 2002 04:15:35 EDT > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com For someone who already has asthma or chronic pain living in a sick building aggravates it worse correct? Donna FAIR USE NOTICE: This site contains copyrighted material the use of which has not always been specifically authorized by the copyright owner. We are making such material available in our efforts to advance understanding of environmental, political, human rights, economic, democracy, scientific, and social justice issues, etc. We believe this constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the US Copyright Law. In accordance with Title 17 U.S.C. Section 107, the material on this site is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www.law.cornell.edu/uscode/17/107.shtml. If you wish to use copyrighted material from this site for purposes of your own that go beyond 'fair use', you must obtain permission from the copyright owner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 Thank you. I am going to dr today. I am also scared for my sister who lives in Salem, Ma. My neice has been in and out of hospitals in Boston and they are coming up with nothing. My sister told me last year that in her bathroom the sewerage backs up into her tub and it smells really bad. My neice has bad stomach pain also asthmatic and other ailments. I'm going to take some copies of some of the stuff I've been finding here on the web. I had no idea until I looked up black mold this week after I found it in my bathroom. It makes sense to me. I am just praying that my dr doesn't look at me like we're crazy today when we all go in to talk to him. Donna In a message dated 9/25/2002 3:48:46 AM US Mountain Standard Time, triggerpom@... writes: I have read in many articles and research papers that the answer to your quiestion is quite correct. There are the so-called weak ones of us, me included, that make us more prone to SBS. However, I believe that it does not stop at SBS but goes straight to Bruilding Related Illness (BRI). If you have asthma before entering a sick building, then I truly believe that it increases your chances of coming down with real problems. Lin my case, I have always had a low level depression and possibly ADD. However, it was never badd enough that I was not able to work my way through life with much success, until I sat in the Nassif Building in Washington, DC. In two and one half years, I went from a low level depression to full blown Major Depressive Disorder (Recurrent - Moderate to Severe) without psychotic features. Yes, pre-morbid conditions that people have are exsaserbated by the affects of sick buildings. This is much the reason why we are ignored by doctors and others in the scientific and business communities. We supposedly represent only an expendable few. However, I believe what we might call the "so-called strong," are just waiting their turn. That is, it is taking the mold and filth a little longer to get them. When it does, the world is likely to see a castrophic event worse than the Black Plague of many, many years ago. Hang in there and lets see if through this group we can get the word out on this problem. Sincerely Larry N. McQuarie, Sr. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Hi There, I think you better change you handle (feeltherathe)-grin. Dr is just like any other good doc...FIRST: Call and make a phone appt...2ND: He will expect you to fill out an application (Medical history stuff) you do not need to fwd medical records. This is all done by mail or fax, if u r lucky to have one...3RD: You will call Dr. on your appt time(don't forget time diff) 4TH: Dr. will fax your script to the Prescription Center(You must call the P.C. to give them your Cr. card #) (as well as the Dr), and they will ship your meds to you. That's it in a nutshell. Dr. usually starts you out on 3mg for a month and then 4.5mg the second month. (he gives you 2 months the first appt.) Then you call him before 2nd month is over, so u don't run out of ldn, and he will see how you're doing, and what doseage u feel comfortable with, and then give you 6 month script. My 1st charge was 85.00 and 2nd appt was 50.00. He was very reasonable as is the Presc. Center. Dr is a nice guy I think you will like him. He doesnt quite give you the attention and time of Dr Bahari, and of course, not as knowledgeable, but who is??? I hope all your questions have been answered and I wish you all the best in moving fwd with LDN....God Bless you. Hugs, Sally > so every month you have to call this doctor?so every month is it 85 > dollars on top of the 20 bucks?Not sure how it works.Or does he give > you a certain amount of refills?I hope at least 2 refills but if not > 85 bucks a month plus the other 20 isnt that bad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 In a message dated 8/3/2004 9:23:27 PM Central Standard Time, aquaholicsgal@... writes: Thanks for all the replies and welcomes. Also forgot to mention dr. also thinks I have carpal tunnel but wants to hold off on the tests and have me on celebrex and wrists splints for a little while. Have any of you had the carpal tunnel also? I have terrible pains in the wrists up forearms and hands (different pain than the joint achey pains) Also another question - a little more personal do any of you women find the pain gets worse during your menstrual cycle? Thanks again for the replies. Hi, I had an EMG test and it said I have carpal tunnel in right wrist, which is funny, because my left hand is the one that bothers me the most with RA and is stiff all of the time. Since I started treatment for RA, I have had NO carpal tunnel symptoms, and I don't want to mention surgery for it to my RA doctor yet since the RA is only being controlled with Prednisone and Naproxen. So far the methotrexate is not working, as I have noticed no change at all. I really don't want to have surgery at all. I am phobic of hospitals and needles and anything that will leave a scar. Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Thanks for all the replies and welcomes. Also forgot to mention dr. also thinks I have carpal tunnel but wants to hold off on the tests and have me on celebrex and wrists splints for a little while. Have any of you had the carpal tunnel also? I have terrible pains in the wrists up forearms and hands (different pain than the joint achey pains) Also another question - a little more personal do any of you women find the pain gets worse during your menstrual cycle? Thanks again for the replies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Re : Carpal Tunnel.... I get bouts and find the wrist splints for a few days usually do the trick. The ease the strain and the support takes my pain away. Re : menstrual cycle, I haven't really noticed anydifference to be honest, just more irregular, but that's probably down to my age ...lol Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 I developed carpal tunnel in both wrists in the year before I was diagnosed with RA. I got as far as a consultation with a surgeon just before my first appt. with the rheumatologist. My doctor said the CTS was related to RA, and I have only rarely had symptoms of CTS since the inflammation associated with RA was addressed, and those symptoms were fairly mild compared to before. Deborah ----- Original Message ----- From: aquaholicsgal Rheumatoid Arthritis Sent: Tuesday, August 03, 2004 9:10 PM Subject: Another question Thanks for all the replies and welcomes. Also forgot to mention dr. also thinks I have carpal tunnel but wants to hold off on the tests and have me on celebrex and wrists splints for a little while. Have any of you had the carpal tunnel also? I have terrible pains in the wrists up forearms and hands (different pain than the joint achey pains) Also another question - a little more personal do any of you women find the pain gets worse during your menstrual cycle?Thanks again for the replies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 I have had carpal tunnel for 20 plus years and avoided the surgery all that time. When it would flare, I would ease up on things and use my splints. About 2 years it was getting worse and worse and almost constant...oh, did I mention about the same time my RA started acting up? The CTS was so bad in my right hand that holding a pen to sign my name made my hand numb and painful, and, yes, the pain can radiate up the arms to the shoulders. Sometimes my elbow would be so painful from it that all I could do was hold it and cry until the meds kicked in. I had the surgery last year (the incision in the wrist, not the palm) and have not had any numbness since. Now just the RA problems with trigger fingers. I believe I have read that hormones can affect RA so a change with your cycle sounds likely. Hugs, Jacy ~Money talks, but chocolate sings. jacymail@...IM: jacygal - ICQ: 96949087www.geocities.com/mtn_rose Signature powered by Plaxo Want a signature like this? -----Original Message-----From: aquaholicsgal [mailto:aquaholicsgal@...]Sent: Tuesday, August 03, 2004 20:10Rheumatoid Arthritis Subject: Another questionThanks for all the replies and welcomes. Also forgot to mention dr. also thinks I have carpal tunnel but wants to hold off on the tests and have me on celebrex and wrists splints for a little while. Have any of you had the carpal tunnel also? I have terrible pains in the wrists up forearms and hands (different pain than the joint achey pains) Also another question - a little more personal do any of you women find the pain gets worse during your menstrual cycle?Thanks again for the replies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 You might try Nasacort - you can get six bottles for about $100 from Canada. ----- Original Message ----- From: royalashtonvp Sent: Sunday, October 19, 2008 4:30 PM Subject: [ ] Another question When I get an asthma attack that just won't stop, my asthma seems to be aggravated by constant post nasal drip. What will stop this? Dr.'s office suggested Mucinex which doesn't help at all! I use a lot of Beconase and that helps very little. Quote Link to comment Share on other sites More sharing options...
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