Re: radiology

[Guest guest]

Gwynne - thanks I know I must get past it but it just amazes me at

doctors. Like yesterday I had notified my clinic by email that I had

an allergic reaction to the Avelox and needed somehting else. Some

nurse calls me and says I need to go into the clinic today to be

seen. So they schedule me at 4PM I get there the nurse says you

didnt have to come in Dr. F called in Zithromax for you. I said oh

well hmm, the nurse said well your here now so she will see you. Dr.

F comes in(she isnt my regular doctor and she hasnt seen me in a long

time at the other clinic so they dont have my whole chart) the

majority of it but missing some. Anyways she comes in and says I

called in Zithromax for you. I said hmm that usually doesnt work, I

said I was just on Augmentin and about 10 days later it returns. Then

I tell her about my hosptial stay twice this year and the Mayo clinic

etc. My husband pipes up and says right now she is having severe

shortness of breath and left arm pain. She checked my throat and

listened to my breathing and said I am putting you back on

Augmentin. Zithro is a pea shooter compared to Augmentin and Avelox

and if this doesnt work then your going to have to go to IV

antibiotics. Have you seen ENT, had a recent CT scan, anything?

Nope I said, she said she would talk to my Dr adn I have a follow up

next week. No one did anything about the breathing or arm pain or

anything.

What are all those tests for that your going to have done? What do

they tell?

I lived in a little town outside of Fort Worth called ville! I

loved that place I have so many fond memories of there when I had to

move back to MN I ran away and hitched hiked all the way from MN to

texas back to that little town.

Good Luck on the tests!

Sandie

>

> Deon, I'm glad you made your way here. So many of

> us, like me, lucked upon it by accident and now

> would never leave it. You're so young to be carrying

> such a huge burden, and with 2 kids still at home -

> my heart goes out to you. But stick with us and you'll

> probably learn a lot about how to live with your

> disease, in addition to making friends with people who

> really care. It's so great to know that, with this bunch,

> you're never alone. And you won't be judged no matter

> what your mood, so let her rip! This group offers

> support and encouragement when quite often it can't

> be found anywhere else, even from our own families.

> You'll be listened to, laughed with, worried about,

> prayed for, and valued for your opinions and

> experiences. Welcome.

>

> Joyce,

> How'd the sleeping go last night in the new throne (by

> the time you get this it'll be Tuesday)?

> What a challenge, to get so many different tops on

> the thing just to keep your fanny from going numb!

> Wish I could come over and paint a faux finish on it

> or something.

> I'm sorry you had to hurry out of church just to avoid

> the sob when talking. Last night I went to hear a speaker

> at my church, and had the most difficult time yet in

> simply getting dressed (except it isn't so simple). Almost

> kept me from going. bah. But didn't. :-)

>

> Gang, I'm going to the doc in Dallas on Friday. I won't

> bore you with the reasons why, but it turns out they've

> got me scheduled for a HRCT, VQ scan, and fluoroscopy

> (all of which I've had before) in one day. This all needs

> to happen before I go to San for an appointment

> Feb. 1st. Other than being tired, is there reason for me

> not to agree to it? I don't want to assume that just

> because my nurse ordered it, it's okay. I'll probably call

> my PCP tomorrow and run it past her.

>

> Sandie, I'm praying that your burdens will be lessened.

> I think we tend to want all the answers and we want

> them NOW. Unfortunately, we're dealing with a disease

> that doesn't offer concrete answers, and mostly

> depressing facts. I absolutely relate to the feeling that

> sometimes it all seems totally overwhelming. Just

> today I could have strangled my nurse coordinator (for

> the hundredth time) for some stuff she neglected to

> do. Sometimes we have to step back and percolate,

> vent or rage, calm down, recharge, then move ahead

> one step at a time to demand and insist on what we

> deserve. It's exhausting, and I wish I had a magic wand

> that would make it all easier for you, for all of us.

>

> Babs, You're living in a veritable kennel! How wonderful.

> I'd have just as many furry babies as you if it were possible.

> I love your sense of humor and your honesty. Both

> are absolutely vital in my book. I'm so glad you're one

> of the gang. How far is Driftwood from Austin (that's

> where my kids live, not that I can travel right now)?

>

> Hugs and blessings,

> Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas

>

[Guest guest]

I am proud of you Joyce! Good Luck! Your in my thoughts and prayers!

Sandie

> >

> > Deon, I'm glad you made your way here. So many of

> > us, like me, lucked upon it by accident and now

> > would never leave it. You're so young to be carrying

> > such a huge burden, and with 2 kids still at home -

> > my heart goes out to you. But stick with us and you'll

> > probably learn a lot about how to live with your

> > disease, in addition to making friends with people who

> > really care. It's so great to know that, with this bunch,

> > you're never alone. And you won't be judged no matter

> > what your mood, so let her rip! This group offers

> > support and encouragement when quite often it can't

> > be found anywhere else, even from our own families.

> > You'll be listened to, laughed with, worried about,

> > prayed for, and valued for your opinions and

> > experiences. Welcome.

> >

> > Joyce,

> > How'd the sleeping go last night in the new throne (by

> > the time you get this it'll be Tuesday)?

> > What a challenge, to get so many different tops on

> > the thing just to keep your fanny from going numb!

> > Wish I could come over and paint a faux finish on it

> > or something.

> > I'm sorry you had to hurry out of church just to avoid

> > the sob when talking. Last night I went to hear a speaker

> > at my church, and had the most difficult time yet in

> > simply getting dressed (except it isn't so simple). Almost

> > kept me from going. bah. But didn't. :-)

> >

> > Gang, I'm going to the doc in Dallas on Friday. I won't

> > bore you with the reasons why, but it turns out they've

> > got me scheduled for a HRCT, VQ scan, and fluoroscopy

> > (all of which I've had before) in one day. This all needs

> > to happen before I go to San for an appointment

> > Feb. 1st. Other than being tired, is there reason for me

> > not to agree to it? I don't want to assume that just

> > because my nurse ordered it, it's okay. I'll probably call

> > my PCP tomorrow and run it past her.

> >

> > Sandie, I'm praying that your burdens will be lessened.

> > I think we tend to want all the answers and we want

> > them NOW. Unfortunately, we're dealing with a disease

> > that doesn't offer concrete answers, and mostly

> > depressing facts. I absolutely relate to the feeling that

> > sometimes it all seems totally overwhelming. Just

> > today I could have strangled my nurse coordinator (for

> > the hundredth time) for some stuff she neglected to

> > do. Sometimes we have to step back and percolate,

> > vent or rage, calm down, recharge, then move ahead

> > one step at a time to demand and insist on what we

> > deserve. It's exhausting, and I wish I had a magic wand

> > that would make it all easier for you, for all of us.

> >

> > Babs, You're living in a veritable kennel! How wonderful.

> > I'd have just as many furry babies as you if it were possible.

> > I love your sense of humor and your honesty. Both

> > are absolutely vital in my book. I'm so glad you're one

> > of the gang. How far is Driftwood from Austin (that's

> > where my kids live, not that I can travel right now)?

> >

> > Hugs and blessings,

> > Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas

> >

>