Guest guest Posted August 31, 1999 Report Share Posted August 31, 1999 In a message dated 8/31/99 7:32:34 AM Pacific Daylight Time, Idigflower@... writes: << m: Idigflower@... Please tell me for those of you that have been on Prednisone long term: (Please Help Me). Eunice here, I am so sorry, your in my prayers. 1) Anyone on our group been on Prednisone for over a year, without going off? And if so, how long? , I have been on 5 mg. for at least 8-9 years and then up at times. This time with my new Rhumy, she wants me OFF. She put me on Plaquenil to help. (400mg). Still at 2400 IB and 3 mg. of pred. I thought I couldn't get off pred. and was told by a former Rhumy that was fine to take 5 mg and not to worry. 2) What were your doses during that time? I was up to 60 mg. several times, for a while during those fares, I would do the same thing, ears would hurt like crazy and would have to go back up on the pred. Very frustrating. 10mg for a long time, then 7.50mg and finally to 5mg. and it seemed to be my holding pattern 3) What was the lowest you were able to get on the Prednisone without flairing up? 3 mg. 4) Has Imuran helped any of you get " OFF " the Prednisone? Haven't tried Imuran, but either the Plaquenil has kicked in early, or my body is able to handle dropping 1 mg. at a time. I started Plaquenil 7/20 so I don;t know. if so did you flair back up? How long did it take to flair back up? 5) If you are a long time Prednisone user what has happened to your body? (changes) I'm not for sure. For a while I showed in xrays 15% osteoporosis, but with all the calcuim (LU) and Vit.D and especially Didronil (helps relace ) I am fine there. I have very little jaw bone left though. I had an augmentation in 1984 that keeps my jaws fuller than they really are that helps, and I am losing my chin some. When my face was so moon shaped (full moon) it stretched out my waddle under my chin and it sags really bad. That picture I sent was 3 yrs.old. It is much worse now. Oh ! well, that I can live with, as long as I feel good. I hope I have helped. Love You P --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 1999 Report Share Posted September 4, 1999 In a message dated 9/4/99 6:25:06 PM Central Daylight Time, AngieCATW1@... writes: << have an air mattrerss on my bed that constantly moves the air around. it is always plugged into the pump and it helps but if this thing wasn't so expensive I would have it next week. I just now checked the site out and it sounds terrific and my friends swear by it but the price Angie >> Hey send me the site.... LU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 1999 Report Share Posted September 4, 1999 In a message dated 09/05/1999 12:36:08 AM Eastern Daylight Time, Lu1953@... writes: > I can't vacuum > because of the noise, not that I really would >> > LOL I don't think that would be my pick of things to do either. lol and > talking on the microphone would wake my hubby up its too close to our > bedroom. I need to figure out something about that....????? lol > we can always find a chat roon and type away the night Angie Quote Link to comment Share on other sites More sharing options...
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