Re: Re: high flow family / Joyce

[Guest guest]

Peggy,

I stayed on 4L for about five months, then WHAM, my sats really went low and had to go to 6L. Stayed on 6L for about 5 months and then steadily had to increase. I am now on 10L. Only have liquid now and since it goes into my neck instead of my nose, there is no noise or feelings of air. Sometimes I unscrew the connection just to make sure the air is still flowing. If I do anything, my sats drop like crazy. I try to keep my sats to 90, which is as high as I can get them, but if I talk or walk to the kitchen or even just comb my hair, they drop to 65. I just sit still, try not to panic and slowly they come up. And then I do the next thing on my list. Things get done very slowly and methodically around here. If I have to go into another room, I make sure I take everything needed so I dont have to return and get something. Takes some getting used to.....did I ever say I hate this disease?

L

Re: Re: high flow family / Joyce

LOL the trash didn't have hardly anything in it. BUT it did have a package that had chicken in it and let me tell you I would have crawled to get that out of my house. My trash cans sit right outside the back door. I just step out and toss it over the porch.. was in Tampa..

That is what is so puzzling. I put this new LOUD machine on 6 and cleaned in the kitchen a little and dropped to 90 again. I just feel like my legs turn to led at 92 or 93. I sometimes go to 86 or 87 when I turn it down for the night.

I just HATE this. I feel like throwing this whole mess in the trash.. NOW thats off my chest.

I do hope you are feeling better. Did you get the bed situation straightened out.

Oh we put this new machine outside. If the alarm goes off my neighbors will probably call the cops.. LOL

pay back for loud radios..LOL

God Bless you my friend. I am going to miss you so badly in San . I just try so hard not to think about it.

Love and Prayers, Peggy

ipf 6/04

Worry looks around.

Sorry looks back,

Faith looks up.

[Guest guest]

, you and Joyce and Gwynne, Just keep going and the fact that I am coming down that same road is made so much easier because I have strong courageous women as examples of how to live this life we have been given. I tell that when I get to heaven I sure will have a bunch of questions. You have shared so much with us I am forever grateful. I hope and pray I can help someone along the way.Do you have a wheel chair? I am going to bring mine. Ya never know. Love and Prayers, Peggyipf 6/04Worry looks around.Sorry looks back,Faith looks up.