Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 When the paramedics got to my home, they checked his sugar and it was 62. He is taking 8R,8N in the morning and 10H,8N in the evening. He has been diabetic for 3 1/2 years now. This is his 3rd seizure since he was diagnosed with diabetes. I am not familiar with any websites, but if you could help, I would be more than greatful. I need all of the guidance that I can get. Thank you, April whimsy2 wrote: Hello, April...being the mother of a diabetic child has got to be one of the hardest jobs in the world and you have my complete sympathy. Did you check your son's blood sugar after the seizure? What kind of insulin is he taking? How long has he been diabetic? There are websites for parents of diabetic children...are you familiar with any of them? Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 I would like to have the join up information whenever you get a chance. My son stays with his father during the week, and his father does not include me in his doctor's visits, but I will gladly pass this information on to his father in hopes that he will take this into consideration. Right now, he is supposed to have 45 grams of carbs at each meal and 15 grams of carbs for each snack. But, he stays hungry. I try to compensate him without going too much over the limitations that his doctor has set for him, but he is a big boy. Also, my mother is against giving him any thing made with white flour, do you agree with this? Thanks/April *** whimsy2 wrote: I belong to another list whose moderator is an insulin dosing expert. If you'd like the joinup information, I'll be happy to give it to you. There are some people on this list who are there, too. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 April Elkins wrote: >When the paramedics got to my home, they checked his sugar and it was 62. > I'm not a doctor, but let me say that while 62 is a bit low, it's not dangerously low. Lots of people on this list have gotten down to that level many times with no seizures or other serious ill effects. Good luck with your boy. Edd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Here is the sign-up info for Ron Sebol's LC-Diabetes list: You may join by emailing the command address: LISTSERV@... with the following in the body of the message: SUBSCRIBE LC-DIABETES yourFirstName yourLastName You will get a email asking you to reply to it to verify that you really want to subscribe to the list (and verifying your email address). This is a relatively low volume list, so don't be alarmed if you don't see many messages every day. > I would like to have the join up information whenever you get a chance. Maurer --------------------------------------- " Your new computer's not gonna be a Mac? Dude, you're getting a Dull! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Edd wrote: >I'm not a doctor, but let me say that while 62 is a bit low, it's >not dangerously low. Lots of people on this list have gotten down to >that level many times with no seizures or other serious ill effects. in response to: > >When the paramedics got to my home, they checked his sugar and it was 62. 62 is not " dangerously " low for an adult but diabetes (and its interactions) and hypoglycemia can be very different in children (whose organs, systems, hormones, etc. are still developing and changing). Also, a bg reading is a test result at a single moment in time that does not reflect interaction or past/future direction, speed or intensity. It would take more info to even begin to interpret the significance of that bg reading, e.g., was it taken after some glucose had been introduced in order to halt the seizure. (No, I am not requesting any such info, just noting that there's a much bigger picture to be considered when evaluating " a bg of 62 " - it cannot be properly interpreted as a standalone statistic.) Sandy T1 - 1979 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Hi Deon! I was just checking the posts and I saw your reply. I received an email from Dr. 's nurse because I have an appointment on Feb 8th and also PFTs. I have heard of your doctor. Dr. 's nurse is his wife, Tamra! How cool is that! I think the meeting is on the 5th floor of the A Building at Emory Clinic. I have emailed Tamra and will probably hear from her again on Monday so I will let you know. Hey I can't wait to meet you. I will write more later! (Tamra & Mauri conduct the meetings) Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> >> > Hello everyone,> > I sent an email a few days ago 37yr old wife and mother of a 16yr old daughter and 12 yr old son. Diagnosed with mixed connective tissue disease, vasculitis and raynauds in 2005, and pulmonary fibrosis in 2006. This has been a major rollercoaster for me (which I'm sure you all can relate).> > > > My question is: how do you all deal with the nose soreness from the oxygen tubing? this may sound minor, but it drives me crazy.> > > > Currently I'm on 3.5 to 4 liters of oxygen, I nebulize twice daily, 50mg of prednisone, and I use combivent twice daily. > > > > Question: I've had issues with finding a Rhumetologist who can handle the multitude of issues I have. Prednisone seems to be the answer to everything. What's an alternative to steroids?> > > > Question: have any of you found cough syrup containing codeine effective ? my chest is killing me from the coughing> > > > Any advise will be appreciated,> > Deon> > Lithonia, Ga> > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.> >> > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 I suggest you take a tape recorder with you because you might not remember everything the doctors say. Regards, T Hi Everyone, I am so nervous today,,, because today we have the multi appointment with three different doctor's at Mass.General all at the say time to discuss which treatment is best for Mike, my husband who has reocurring prostate cancer,,, I had a list of questions,,but do you think I can find it???...We are meeting with Dr. Zietman the radiation oncologist in charge for Proton Beam Radiation for prostate cancer,,,Dr. medical oncologist who specializes in prostate cancer and Dr. Dahl a urologist/surgeon who specializes in prostate cancer. I am so pleased to get this appointment...they want us to act quickly also so the cancer doesn't spread,,,it only took us 3 days to set up this appointment and wouldn't you know we have an hour and a half ride into Boston in this snow storm,,,we are hoping the weather gets a little better by noon,,that's when we are leaving for our 4 o'clock appointment...We decided with the snow and all we have to go out of our way a bit to pick up all the test disc's of the scans he had and if we get there early it will be okay because we can get a bite to eat first.To get to the point,,,,if anyone can think of any questions I would really appreciate some help,,,I just feel brain dead at the moment.We also found out this week that our beloved dog of 12 years has cancer,,,they told me three months, but we found out yesterday it's in the liver and now it's maybe 2 months,,as long as she is comfortable and happy as she is right now she will die at home with us,,,so sad,,,everything with my husband and now my dog,,,I feel like my heart is being torn out of my chest,,,,What's next???If anyone has can think of the questions I have forgotten,,I would really appreciate it..May God Bless you all,,,,I pray for members of this group everyday,,,you all have been so helpful.Best Wishes to All,Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2012 Report Share Posted April 19, 2012 > >To: ProstateCancerSupport ; n Mollereau/PC >Sent: Thursday, April 19, 2012 9:19 PM >Subject: RE: questions > >n, for your consideration: http://tinyurl.com/6n8swuy Chuck, I searched Pubmed for some of the novel therapies listed in that paper: > 2-deoxyglucose* > 3-bromopyruvate* > DCA (dichloroacetate)* > Digitalis & other cardiac glycosides* > Flufenamic acid* > Flurbiprofen* > GcMAF > Honokiol > HIV protease inhibitors > ActivAmune (DIM) > Noscapine > Phenylbutyrate > Salinomycin > Ursolic Acid* I looked at a number of these agents (the one's I marked with an asterisk*), viewing perhaps 30 or more of the citations. With one possible but ambiguous exception (I couldn't tell from the abstract) every article I saw was either about studies in a mouse or on cells in a test tube. With the one possible exception, none of them talked about treating a live patient. I don't know where a patient could find a doctor that would prescribe any of these for prostate cancer, or whether it would be legal for a doctor to do so. I never know what to say to a probably terminal patient or to a family member of such a patient. Is it a good deed to keep the hope of treating the disease alive for such a patient? Will it encourage him to fight his disease and prolong his life? Or will it encourage him to waste some of his last precious hours, energy, and financial resources in what may be a hopeless search for more doctors and more treatments? There's no simple answer. I have more than once told someone that I thought a family member was about to die only to find that he lived far longer than I expected. I have more than once encouraged someone to keep fighting the disease when they would probably have been better off spending that time with their families and saving the money they spent for the use of their wife and children. I don't think the advice you gave to n is absolutely wrong or that the advice I gave was absolutely right. It's probably a good thing that we each put out different ideas so that n's father could hear two sides of the issue. However I am certain that, at least sometimes, the best help we can give to a family is to help them calmly and intelligently prepare for a coming death. I think that, at least sometimes, the best help we can give to the spouse or the child of a terminal cancer patient is to accept that there is nothing they can do to cure their husband or father, and that it is okay to let the search for doctors and treatments slip away and devote their efforts to making their family member feel as loved, as prepared, and as comfortable as they can. I know that I can't get this right every time. I know that I'll sometimes encourage a patient to fight when he shouldn't, or vice versa. But all I can do is try to think out each patient's actual situation and try to do the best that I can for that patient. Please don't take this as a criticism. I think that the prostate cancer community is vastly better off because of your efforts and that you have done magnificent work. I just wanted to explain why my advice was so different from yours. Best regards, Alan Quote Link to comment Share on other sites More sharing options...
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