Guest guest Posted March 2, 2010 Report Share Posted March 2, 2010 As some of you will know, I have written (and recently updated) a booklet primarily aimed at helping newcomers understand the details of their diagnosis and their options. It is called A Strange Place and is at http://www.yananow.net/StrangePlace/index.html From the feedback I have had it is well regarded by those who have read it. I wrote the original, very much shorter, version because I was touched by the problem faced by a daughter whose father had been diagnosed and who had no cyber-skills. She wanted something to give him and at this stage (about 10 years ago) there was nothing. Since then I have distributed about 500 copies of the booklet, free of charge, depending on donations to pay the cost, which I have kept down to the minimum by having a ‘no frills’ approach and using local photocopier/printers – the booklet costs me about $1.50 a copy. It can also be downloaded from the site for people who don’t want to wait for me to send a hard copy. BUT…….some of the people (men and their loved ones) who have the greatest need for information are not cyber-skilled – they don’t know how to use the internet. How can I reach them to tell them that there is some useful information which I’d be happy to send them. I have been toying with the idea of going for what is termed POD – Publishing On Demand – but that in itself does not solve the problem of delivery because although some POD publishers are linked to sites like Amazon, it still requires internet skills to order them from Amazon. It also pushes up the cost of each copy to about $12.00 with no real gain, apart form the cosmetic look of a paperback v my simple booklet. Has anybody got any bright ideas as to how I can get the word out that this useful booklet is available to all at no cost? I asked ’s permission (which he gave me) before I posted this but also put it on some other forums in the meantime. A number of people have suggested I contact support groups – especially US-Too in the US and I will do that although my experience with Australian Support Groups has not been positive. Of course, as the men who have made this suggestion accept, most men who go to support groups seem to go after they have had therapy and the ‘target audience is the men who have been newly diagnosed to allow them a greater understanding of all their options. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data " Quote Link to comment Share on other sites More sharing options...
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