Yana Updates January 2010 #1

[Guest guest]

I have been running a non-commercial website - You

Are Not Alone Now www.yananow.net

for a number of years now. The first section is aimed at newly diagnosed men

and their supporters. It gives some basic information in plain language with

links to more complex and technical sites and is accessed by using the link www.yananow.net and hitting

the Don’t Panic button.

The second section of the site of the site was set up

in the belief that there is tremendous value in reading of other people's

experiences with prostate cancer and also recognition that it might be helpful

men diagnosed with PCa (and their families or partners) find someone to 'talk'

to; someone who had dealt with the same issues and problems.

Contributors are encouraged to update their stories

at least once a year. The current week’s list of new contributors and

updates is below

NEW POSTS:

http://www.yananow.net/Mentors/AlanE.htm

 ALAN EVANS has decided on Brachytherapy with neo-adjuvant ADT (Androgen

Deprivation Therapy) but has had urinary problems

http://www.yananow.net/Mentors/BobbyW.htm 

BOBBY WINN  chose RALP (Robotic Assisted

Laparoscopic Prostatectomy) and is leaking badly two weeks after procedure

http://www.yananow.net/Mentors/RickC2.htm 

RICK CALLAHAN    newly diagnosed and undecided

http://www.yananow.net/Mentors/PC.htm

 P C newly diagnosed and looking for input on

his decision to go for EBRT (External Beam Radiation Therapy)

http://www.yananow.net/Mentors/AlY.htm 

AL YOUSTEN chose PBT (Proton Beam Therapy)  At MD – very

satisfied with the results no continence or ED problems

http://www.yananow.net/Mentors/AlanG.htm 

ALAN GENVA  newly diagnosed and considering HIFU (High Intensity Focused

Ultrasound) trial but not certain

http://www.yananow.net/Mentors/StanM.htm

 STAN M decided on RALP (Robotic Assisted

Laparoscopic Prostatectomy)

http://www.yananow.net/Mentors/nyA.htm

 JOHNNY APPLESEED  decided on RALP (Robotic Assisted Laparoscopic

Prostatectomy) and is very happy with the results – needs Cialis every

other day

http://www.yananow.net/Mentors/M3.htm

 DAVID MUNOZ newly diagnosed and has chosen Brachytherapy

UPDATES

http://www.yananow.net/Mentors/L.htm

 MICHAEL L  four months after his RALP (Robotic Assisted Laparoscopic

Prostatectomy) he has some slight leakage and is working on ED

http://www.yananow.net/Mentors/WolfU.htm 

WOLF U  six weeks after RALP (Robotic Assisted Laparoscopic

Prostatectomy) no incontinence and daily Cialis gets the ED sorted out

http://www.yananow.net/Mentors/TomR.htm

 TOM RANDALL  three years after RALP (Robotic Assisted Laparoscopic

Prostatectomy) PSA is undetectable, no incontinence and Ed issues are helped by

weekly Levitra

http://www.yananow.net/Mentors/E2.htm 

ROBERT E  chose Active

Surveillance and  demonstrates the value of getting an expert pathologist

opinion; Epstein report is ‘no cancer’

http://www.yananow.net/Mentors/PradeepR.htm

 PRADEEP RAJ is feeling very low and believes

that he won’t last another six months after Docetaxel therapy fails and

his mets spread

http://www.yananow.net/Mentors/A2.htm  

PAUL A  his radiation bump from EBRT (External Beam Radiation Therapy) after

failed RALP (Robotic Assisted Laparoscopic Prostatectomy) seems to have

stopped, but still has major ED problem

http://www.yananow.net/Mentors/RobP.htm 

ROB PARSONS  Silver member eight years out from a GS 9 diagnosis who chose

radiation and intermittent ADT (Androgen Deprivation Therapy) – using DES

(diethylstilbestrol) intermittently at present

http://www.yananow.net/Mentors/IanY.htm 

IAN YEARWOOD  diagnosed in 2007 and choosing Watchful Waiting his current PSA

is 5.5

http://www.yananow.net/Mentors/H.htm 

TIMOTHY HOTUJEC Silver member

diagnosed in 2002 is always cheerful, but he hasn’t been

able to stop his ADT (Androgen Deprivation Therapy) following his failed RP

(Radical Prostatectomy) and is having more bone scans

http://www.yananow.net/Mentors/BarrieS.htm 

BARRIE SPARK  PSA was down satisfactorily after EBRT (External Beam Radiation

Therapy)/HDR Brachytherapy  but he will be on ADT (Androgen Deprivation

Therapy) for two years

http://www.yananow.net/Mentors/FredW.htm 

FRED WEINBERG four years after RP (Radical Prostatectomy) undetectable PSA, no

leakage no ED

http://www.yananow.net/Mentors/DonG2.htm 

DON GRAYDON  a full description of his experience with IGRT (Image Guided

Radiation Therapy) completed this month

http://www.yananow.net/Mentors/L2.htm 

JOHN LEMLEY chose Active Surveillance PSA stable next biopsy in six months

http://www.yananow.net/Mentors/RonG.htm 

RON GERARD  still Watching and Waiting despite no biopsy

http://www.yananow.net/Mentors/ReinhartP.htm 

REINHART POLLER  2 ½ years after his PBT (Proton Beam Therapy) at Loma

and he has no side effects.

http://www.yananow.net/Mentors/ColinW.htm 

COLIN WOOD Silver member and going for Gold, nine years out from his RP

(Radical Prostatectomy) all’s well

http://www.yananow.net/Mentors/Twa00.htm

 T Wa00  new Silver Member, has no problems five years after Brachytherapy –

interesting ‘bounce’ some years back

http://www.yananow.net/Mentors/MikeH.htm

 MIKE HORRIDGE  coming up for three years after RALP (Robotic Assisted

Laparoscopic Prostatectomy) and he has severe ED problems

http://www.yananow.net/Mentors/RichieR.htm

 RICHIE RICH chose ProstRcision® at Radiotherapy Clinics Of Georgia three years

ago and is happy with the outcome

http://www.yananow.net/Mentors/DennisL.htm

 DENNIS LEHMAN  eight months out from RALP (Robotic Assisted Laparoscopic

Prostatectomy) and he has small leakage and some ED issues to deal with

http://www.yananow.net/Mentors/RayL.htm

 RAY LOVELACE  has a slowly increasing PSA after RALP (Robotic Assisted

Laparoscopic Prostatectomy) – and had some ED last time he mentioned it

http://www.yananow.net/Mentors/D.htm

 GARY D  twelve months after RALP (Robotic Assisted Laparoscopic Prostatectomy)

his PSA is undetectable but has 100% ED

http://www.yananow.net/Mentors/A.htm

 REED A diagnosed in March 2009 with a GS 8 T3 he had neo-adjuvant ADT

(Androgen Deprivation Therapy) and RALP (Robotic Assisted Laparoscopic

Prostatectomy) has no libido and no erectile function

http://www.yananow.net/Mentors/PatB.htm

 PAT B still undecided – and perhaps a little more confused as he learns

more

All the best

Terry Herbert

I have no medical qualifications but I was diagnosed

in ‘96: and have learned a bit since then.

My sites are at www.yananow.net  and www.prostatecancerwatchfulwaiting.co.za 

Dr

“Snuffy” Myers : " As a

physician, I am painfully aware that most of the decisions we make with regard

to prostate cancer are made with inadequate data "