Re: To all from Mama

[Guest guest]

Yes, Sher, I seen that! I have never heard of "old burnt out interstitial lung disease"!!!!!! I wish mine would "burn out" ......

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > >> > > I'm sure you will remember the Dr. I'm leaving....on my way to OHSU> > in Feb. Well, I requested my records from him and I'm a bit surprised> > at what I read.> > > I'll be brief..."The disease is primarily peripheral with strand> > densities and mild honeycombing consistent with idiopathic pulmonary> > fibrosis".>>> "scattered areas of fibrosis and honeycombing:">>>> > "areas of ground-glass opacification are also noted".>>> "There are a> > few areas of traction bronchiectasis" !!!> > > (This is the doc who told me in Dec. that he didn't think I had IPF> > and I'm not sick enough to die...remember?)> > > Well, he never mentioned to me any honeycombing OR: "Scattered> > arteriosclerotic calcifications are noted within the aorta". OR: > > "Heart size is mildly enlarged". OR: "Abnormalities involve all five> > lobes but there is relative sparing of the right middle lobe".> > > This "bronchiectasis" thing was never mentioned! I'll have to look> > it up on the net, I don't even know what this is...other than some of> > you having it too.> > > I'm sooooo surprised at this information he never mentioned. I> > wonder why he would elect not to do so. > > > Thanks for listening, it's my turn today. I feel annoyed, sad and> > confused.> > > Of course I'm not going to die in the next few months anyway but him> > telling me he didn't think I have IPF tied into I'm not sick> > enough....and yet these are HIS NOTES!> > > > > > Hear me talk! > > > on him!> > > > > > > > > Mama-Sher, 69; IPF, 3-06, OR.> > > Don't fret about tomorrow, God is already there!> > >> >>

[Guest guest]

Sher I am so sorry to hear this and it just agravates my frustration

on doctors not communicating with the patient and not listening to

the patient. What a sad thing we must face! I can only say I am GLAD

your leaving him and going some where else! Sad that we must do

these things but if no one is watching out for us then we must as

Bruce often says. I am keeping my fingers crossed about the new doc

and keeping you in my thoughts and prayers!

Chin up and rememeber just keep keeping on, isnt that what you tell

me my friend!

Sandie

>

> I'm sure you will remember the Dr. I'm leaving....on my way to OHSU

in Feb. Well, I requested my records from him and I'm a bit surprised

at what I read.

> I'll be brief... " The disease is primarily peripheral with strand

densities and mild honeycombing consistent with idiopathic pulmonary

fibrosis " .>>> " scattered areas of fibrosis and

honeycombing: " >>> " areas of ground-glass opacification are also

noted " .>>> " There are a few areas of traction bronchiectasis " !!!

> (This is the doc who told me in Dec. that he didn't think I had IPF

and I'm not sick enough to die...remember?)

> Well, he never mentioned to me any honeycombing OR: " Scattered

arteriosclerotic calcifications are noted within the aorta " .

OR: " Heart size is mildly enlarged " . OR: " Abnormalities involve all

five lobes but there is relative sparing of the right middle lobe " .

> This " bronchiectasis " thing was never mentioned! I'll have to look

it up on the net, I don't even know what this is...other than some of

you having it too.

> I'm sooooo surprised at this information he never mentioned. I

wonder why he would elect not to do so.

> Thanks for listening, it's my turn today. I feel annoyed, sad and

confused.

> Of course I'm not going to die in the next few months anyway but

him telling me he didn't think I have IPF tied into I'm not sick

enough....and yet these are HIS NOTES!

>

> Hear me talk!

> on him!

>

>

> Mama-Sher, 69; IPF, 3-06, OR.

> Don't fret about tomorrow, God is already there!

>