Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 No, no thank you! I'm just a pawn in this game called life! Leannejames wallman wrote: Leanne......I'm still trying to get my head around your news.........the more I contemplate the whole process, your journey, the more I am impressed by your strength. Thanx for being such an inspiration. jimLeanne Storch wrote: Jim, Thank you for sharing this. I was thinking about this and didn't know where to find it. How true. Leannejames wallman <james_wallman> wrote: Joyce...... your note reminded me of something I came across years ago. I'd like to share it if it's alright..... We are standing on a shore....... somewhere A ship before us spreads her white sails and starts for the blue ocean. She is a beautiful and a strong ship. We watch her until she hangs like a speck of white cloud where the sea and the sky come together to mingle with each other. Then, someone at our side says, "there....well, well, she's gone". But, gone where? From our sight, that's all. She is just as large in mast and spar as when she left our shore, just as strong and able. Her diminished size is in us, not in her, and while someone at our side is saying "she's gone", there are other eyes watching her coming, ready to take up the glad shout, "Look, there she comes". jim Joyce <janne5303> wrote: Sunday, at church, our preacher said that he was watching people at the airport and he saw people leaving town, hugging and crying. Then he saw people coming into town and they were all happy with big smiles and tears of joy. He likened that with dying. The parting is so sad. On the other side, all of heaven is rejoicing as you arrive. A great analogy. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > It could be they do not want to face losing you. I know that my > family finds it hard to realize that i am dying. That option was > always there but no one wants a specific time frame. I know I have > trouble myself accepting IPF. I find no fault at them wanting me > forever but forever is sometimes shorter than we think. Love you all.> >> >> > ----- Original Message ----> > From: Judy Brown judybrown63@> > To: Breathe-Support > > Sent: Tuesday, January 8, 2008 6:40:06 PM> > Subject: Re: grief> >> > Gwynne,> > I have 5 adult kids. I'm very close with Debbie as I've said. I > have another daughter who I am close with, but she has a lot of > problems and she can be very difficult at times. One of my son's has > been to see me twice but has never once asked about IPF or even how I > am feeling. At first I was hurt because he'd come here and almost > ignore me. Now I'm starting to realize he just isn't someone who can > talk about such things. Hopefully in time he'll open up some.> > The real hurt though is that I have 2 kids who have never > contacted me after they were told I was sick. We weren't close to > begin with, but I did think my illness would at least get one comment > from them.> > Since getting this disease and the outcome, I find I am > appreciating the little things so much more. And family and friends > is really all there is. God Bless you and your family.> > Judybrown63, IPF 4/07, SC> >> > grief> >> >> > Judy B,> > My heart aches over the situation with your daughter. My> > daughter is 23 and isn't dealing well with my illness either.> > I can't expect her to be okay with the fact that her father> > committed suicide when she was 8, and her 56-year-old> > mother has a terminal illness. She will talk about it only> > in brief spurts. She and my son are definitely already> > grieving, even though on the surface Kate seems to be> > doing fine. The timing of all this is terrible, as she only> > turned her life around 3 years ago after being self-> > destructive and troubled. We were kind of making up> > for lost time, and then WHAM - this diagnosis. Unlike> > me, Kate's still not great at openly and honestly> > expressing her emotions. Both she and my son live> > 3 hours away, and I think they do feel guilt about not> > being physically closer to provide more support.> > Fortunately, my son will talk about any and everything> > with me, not that it's easy or pleasant. He's SO sweet> > and supportive. He's 28, and my daughter-in- law is> > very special and dear to my heart too.> >> > If you two have always been close, I believe that things> > will work themselves out somehow. You will find a way> > to lovingly say to her what you need to say, in a way that> > gives you peace and helps ease her mind and her pain later.> > You will ease the way for her to say what she needs to> > say, by being an approachable mother. Parenting's an> > incredibly hard job, even when you're baby's 44.> >> > None of us knows exactly how long we'll be here, but> > this disease gives us reason to begin grieving early. It> > also teaches us to cherish the sanctity of life, and to> > give to God what we cannot do for ourselves. You're in> > my prayers.> >> > Hugs and blessings,> > Gwynne IPF 7/04 listed for transplant 3/07 Texas> >> >> >> >> >> >> > Never miss a thing. Make Yahoo your homepage.> >> Never miss a thing. Make Yahoo your homepage. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 LOL does a fallen tree make a noise if it falls in the forest in Alaska ???? Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " moose don't snore........ Sher Bauman wrote: Peggy, when we travel my cpap is the first thing packed. It looks like hell but I do sleep better with it....and quieter. I snore like a moose. Isn't that awful for a woman to snore like that? lol Mama-Sher, 69; IPF, 3-06, OR. Don't fret about tomorrow, God is already there! Re: Re: Bruce has used a c-pap over 30 years and when he puts that thing on his face he's OUT.. It is scary when he doesn't use it. like forgetting it when he travels.. nightmare. I hope you get a great sleep with it. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Bruce, are you going to run your 02 into your c-pap ? Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " I've had sleep issues for over twenty years, but I can't imagine anyone here who wouldn't have some. We're all dealing with a lot. Our minds don't shut down that easily. Leanne starts thinking of everyone here and everyone she's talked to. Racing minds don't sleep. I take my sleep meds, they work better some nights than others. Tonight is my first night with CPAP and my Mattress Genie.....should be interesting to say the least. > I don't sleep well most nights... > > I know the prednisone plays havoc in our nervous systems and with our > sleep habits...But I did notice a lot of you were posting at around 2- > 3am.... > > I was asleep at 10pm or so but then at 2am i started tossing and > turning andfinally got out of bed to read emails... > > A good night's sleep for me is 6 hours (actually that is a great nights > sleep), my doc says I need to go for another sleep test...this will be > my 4th. > > Who else is having sleep issues and why do you think that is? > > Steve-NY > NSIP,RB,COPD (2000) > Sleep Apnea > > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > > --------------------------------- > No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.2/1224 - Release Date: 1/14/2008 5:39 PM > > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Yes, I have a Genie for a King Size Bed. No, i don't have a Genie for a King...lol Since the only part being raised is the upper part of the mattress I can't see weight having a great impact on it. Web site says it lifts up to 1000 pounds. > > > I don't sleep well most nights... > > > > > > I know the prednisone plays havoc in our nervous systems and with > > our > > > sleep habits...But I did notice a lot of you were posting at > around > > 2- > > > 3am.... > > > > > > I was asleep at 10pm or so but then at 2am i started tossing and > > > turning andfinally got out of bed to read emails... > > > > > > A good night's sleep for me is 6 hours (actually that is a great > > nights > > > sleep), my doc says I need to go for another sleep test...this > will > > be > > > my 4th. > > > > > > Who else is having sleep issues and why do you think that is? > > > > > > Steve-NY > > > NSIP,RB,COPD (2000) > > > Sleep Apnea > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Be a better friend, newshound, and know-it-all with Yahoo! > > Mobile. Try it now. > > > > > > > > > --------------------------------- > > > No virus found in this incoming message. Checked by AVG Free > > Edition. Version: 7.5.516 / Virus Database: 269.19.2/1224 - Release > > Date: 1/14/2008 5:39 PM > > > > > > > > > > > > > > > > > > --------------------------------- > > > Never miss a thing. Make Yahoo your homepage. > > > > > > > > > > > > > > > > > Looking for last minute shopping deals? Find them fast with Yahoo! > > Search. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 thanks that should do it.. Love and Prayers, Peggy ipf 6/04 Florida " Worry looks around, Sorry looks back, Faith looks up. " Yes, I have a Genie for a King Size Bed. No, i don't have a Genie for a King...lol Since the only part being raised is the upper part of the mattress I can't see weight having a great impact on it. Web site says it lifts up to 1000 pounds. > > > I don't sleep well most nights... > > > > > > I know the prednisone plays havoc in our nervous systems and with > > our > > > sleep habits...But I did notice a lot of you were posting at > around > > 2- > > > 3am.... > > > > > > I was asleep at 10pm or so but then at 2am i started tossing and > > > turning andfinally got out of bed to read emails... > > > > > > A good night's sleep for me is 6 hours (actually that is a great > > nights > > > sleep), my doc says I need to go for another sleep test...this > will > > be > > > my 4th. > > > > > > Who else is having sleep issues and why do you think that is? > > > > > > Steve-NY > > > NSIP,RB,COPD (2000) > > > Sleep Apnea > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Be a better friend, newshound, and know-it-all with Yahoo! > > Mobile. Try it now. > > > > > > > > > --------------------------------- > > > No virus found in this incoming message. Checked by AVG Free > > Edition. Version: 7.5.516 / Virus Database: 269.19.2/1224 - Release > > Date: 1/14/2008 5:39 PM > > > > > > > > > > > > > > > > > > --------------------------------- > > > Never miss a thing. Make Yahoo your homepage. > > > > > > > > > > > > > > > > > Looking for last minute shopping deals? Find them fast with Yahoo! > > Search. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Re: king size Genie. Genie fits best on a king, I'm told. Bed is wide enough not to pull the edges of mattress up on either side and with two in bed the weight is mostly to either side, leaving middle somewhat 'unused'. Weight is evenly distributed Peggy and I'm betting it works great for both and you. Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Re: Jim Yes, I have a Genie for a King Size Bed. No, i don't have a Genie for a King...lolSince the only part being raised is the upper part of the mattress I can't see weight having a great impact on it. Web site says it lifts up to 1000 pounds.> > > I don't sleep well most nights...> > >> > > I know the prednisone plays havoc in our nervous systems and with> > our> > > sleep habits...But I did notice a lot of you were posting at> around> > 2-> > > 3am....> > >> > > I was asleep at 10pm or so but then at 2am i started tossing and> > > turning andfinally got out of bed to read emails...> > >> > > A good night's sleep for me is 6 hours (actually that is a great> > nights> > > sleep), my doc says I need to go for another sleep test...this> will> > be> > > my 4th.> > >> > > Who else is having sleep issues and why do you think that is?> > >> > > Steve-NY> > > NSIP,RB,COPD (2000)> > > Sleep Apnea> > >> > >> > >> > >> > >> > >> > > ---------------------------------> > > Be a better friend, newshound, and know-it-all with Yahoo!> > Mobile. Try it now.> > >> > >> > > ---------------------------------> > > No virus found in this incoming message. Checked by AVG Free> > Edition. Version: 7.5.516 / Virus Database: 269.19.2/1224 - Release> > Date: 1/14/2008 5:39 PM> > >> > >> > >> > >> > >> > > ---------------------------------> > > Never miss a thing. Make Yahoo your homepage.> > >> >> >> >> >> >> >> > Looking for last minute shopping deals? Find them fast with Yahoo!> > Search.> >> Quote Link to comment Share on other sites More sharing options...
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