Re: I saw my rhuematologist today....

[Guest guest]

That is fantastic Zena, what wonderful news, hopefully things will

move along for you and you can get onto the transplant team. I am

keeping my fingers crossed and you in my thoughts and prayers!

Sandie

>

>

> And following consultation with my chest physician he's going to

push me

> forward for the lung transplant. I asked him about my thrombotic

> tendencies, (I have anti cardio lipin/anti phospho lipids which

causes

> my blood to clot) and he said that as it's already a 'known' about

me

> and that it's already being negated with warfarin it shouldn't be an

> issue.

>

> He is no longer enthusiastic about putting me on retuximab as he

feels

> it could cause me more problems than it helps, and as I'm reasonably

> stable on pred and imuran, he doesn't want to fix what isn't

broken.

> Since he was pro retuximab before christmas, I assume he's done some

> more research.

>

> I had a full immunology screen before christmas and it hasn't come

up

> with anything new.

>

> I'm back to see him in march, before which I will be dropping my

> steroids on the 1st feb and again on the 1st march.

>

> I don't know how long it'll take before I get to see the transplant

> team, and I know they're going to tell me to drop a couple of

stone, but

> hopefully with the lower pred, I'll have a chance to do that.

>

> So I'm feeling quite positive right now. A little overawed at

being a

> tiny step nearer a transplant, but quite positive. []

>

> Love Ze xx

>