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Re: Judy

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I know you say there is no chance she'll talk to someone and you know

her better than anyone. However, sometimes those you don't think will

do end up giving in and doing so. After two years she should be back

on her feet and she so needs some help there. However, all you can do

is the best you can. She's an adult and she's going to have to

ultimately be responsible for herself. You've got to try your hardest

not to let her bring you down. I know its far easier said than done.

> > > >

> > > > Hi Judy.

> > > > I can totally relate about the difficulty with baths and

> > > > showers. As we progress, more things that take upper

> > > > body strength sap our air. But I noticed you said

> > > > your 02 is " close by " . Sounds to me like you need to

> > > > be wearing it. You're sats are probably dropping.

> > > > You're smart to have a stool. Some people dry off

> > > > while they're still sitting in the shower. I have to sit

> > > > before, during, and after I dry off. Some just put on

> > > > a thick terrycloth robe instead. It takes some

> > > > experimenting to find out what's best for you, but

> > > > it will still probably be a challenge. The sob is cruel.

> > > >

> > > > When I wasn't up to a shower, sometimes I used to

> > > > wash my hair in the sink. Now that's a problem, as

> > > > is anything that involves bending over, even washing

> > > > my face. It's all royally inconvenient and frustrating.

> > > > I oxygenate at 98 or 99% on continuous air when I'm

> > > > sitting down, but it often falls into the 70's with any

> > > > activity, even on 15L. I'm sorry you're having to

> > > > experience the exhausting, scary, and sad feeling of

> > > > a decline. It's bad enough when it creeps up on you,

> > > > but it's especially scary when it hits you fast like a

> > > > brick in the head. You are absolutely right to

> > > > concentrate on what we CAN still do, though. Our

> > > > attitudes help us when all else fails, and I can tell

> > > > you have a great one. Hang in there!

> > > >

> > > > Hugs and blessings,

> > > > Gwynne IPF 7/04 listed for transplant 3/07 Texas

> > > >

> > >

> >

> >

> >

> >

> >

> >

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