Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Thanks for the note..and sorry to hear of the side effects that were not so good. Am happy thought to hear the radiation part went well. I got FITTED TODAY..so things LINED UP and ready to go. Dry run next Wed..then the daily starts the next Monday...Thanks again.. To: ProstateCancerSupport Sent: Wed, April 28, 2010 11:05:50 AMSubject: 4/28 Note from Jim Hoppe  Jim: I'm assuming you're doing protons, correct? I would have but couldn't afford it, so I went the photon route. As far as I know, none of my side effects are related to the radiation treatment but rather to my TUMT. That's why I'm so reticent about having the laser treatment. The uro suggested laser instead of a TURP since he felt the TURP might exacerbate any residual damage from my IGRT. The best of luck with your radiation treatment. If everything worked as well as my radiation treatment, I'd be a happy camper. Tom [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia Tom,retaining large amounts of urine in your bladder makes an ideal condition for bacteria to grow. Given time, it can track back up to your kidneys, giving you one hell of an infection, one that can threaten your kidney function, even your life.In addition, having your bladder constantly distended like that will make getting back any kind of bladder control down the line more difficult.If you're in doubt, get a second opinion.- DavePlease share your experiences with laser treatments.I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant sample out of 12. I've been through a TUMT, which rendered me incontinent and impotent, as well as 44 radiation treatments. I'm happy to say the PSAs have been under .1, but as of yesterday the uro wants to do a laser treatment to open up the urinary channel. Apparently most men have a capacity of 400-450 cc in their bladders, and, after urinating twice, I was still retaining 500 cc of urine. After having been hustled into the TUMT, I'm not about to be rushed again. I'm 65, btw.Can anyone tell me the downside of NOT having such a procedure? I can't be less continent than I already am. Is EVERY MD in this business a con man? I hate to assume that, but after going through four uro's, I don't know what to think.I'd appreciate your help. Thank you in advance.Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Where are you located?? I'm in Waukesha Wisconsin...and really apprciate the notes from several of the guys who have had the same procedure. To: ProstateCancerSupport Sent: Wed, April 28, 2010 11:05:50 AMSubject: 4/28 Note from Jim Hoppe  Jim: I'm assuming you're doing protons, correct? I would have but couldn't afford it, so I went the photon route. As far as I know, none of my side effects are related to the radiation treatment but rather to my TUMT. That's why I'm so reticent about having the laser treatment. The uro suggested laser instead of a TURP since he felt the TURP might exacerbate any residual damage from my IGRT. The best of luck with your radiation treatment. If everything worked as well as my radiation treatment, I'd be a happy camper. Tom [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia Tom,retaining large amounts of urine in your bladder makes an ideal condition for bacteria to grow. Given time, it can track back up to your kidneys, giving you one hell of an infection, one that can threaten your kidney function, even your life.In addition, having your bladder constantly distended like that will make getting back any kind of bladder control down the line more difficult.If you're in doubt, get a second opinion.- DavePlease share your experiences with laser treatments.I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant sample out of 12. I've been through a TUMT, which rendered me incontinent and impotent, as well as 44 radiation treatments. I'm happy to say the PSAs have been under .1, but as of yesterday the uro wants to do a laser treatment to open up the urinary channel. Apparently most men have a capacity of 400-450 cc in their bladders, and, after urinating twice, I was still retaining 500 cc of urine. After having been hustled into the TUMT, I'm not about to be rushed again. I'm 65, btw.Can anyone tell me the downside of NOT having such a procedure? I can't be less continent than I already am. Is EVERY MD in this business a con man? I hate to assume that, but after going through four uro's, I don't know what to think.I'd appreciate your help. Thank you in advance.Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010  Jim: Elgin, IL here. [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia Tom,retaining large amounts of urine in your bladder makes an ideal condition for bacteria to grow. Given time, it can track back up to your kidneys, giving you one hell of an infection, one that can threaten your kidney function, even your life.In addition, having your bladder constantly distended like that will make getting back any kind of bladder control down the line more difficult.If you're in doubt, get a second opinion.- DavePlease share your experiences with laser treatments.I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant sample out of 12. I've been through a TUMT, which rendered me incontinent and impotent, as well as 44 radiation treatments. I'm happy to say the PSAs have been under .1, but as of yesterday the uro wants to do a laser treatment to open up the urinary channel. Apparently most men have a capacity of 400-450 cc in their bladders, and, after urinating twice, I was still retaining 500 cc of urine. After having been hustled into the TUMT, I'm not about to be rushed again. I'm 65, btw.Can anyone tell me the downside of NOT having such a procedure? I can't be less continent than I already am. Is EVERY MD in this business a con man? I hate to assume that, but after going through four uro's, I don't know what to think.I'd appreciate your help. Thank you in advance.Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 Thanks..right down the street! lol To: ProstateCancerSupport Sent: Wed, April 28, 2010 4:31:52 PMSubject: Re: 4/28 Note from Jim Hoppe  Jim: Elgin, IL here. [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia Tom,retaining large amounts of urine in your bladder makes an ideal condition for bacteria to grow. Given time, it can track back up to your kidneys, giving you one hell of an infection, one that can threaten your kidney function, even your life.In addition, having your bladder constantly distended like that will make getting back any kind of bladder control down the line more difficult.If you're in doubt, get a second opinion.- DavePlease share your experiences with laser treatments.I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant sample out of 12. I've been through a TUMT, which rendered me incontinent and impotent, as well as 44 radiation treatments. I'm happy to say the PSAs have been under .1, but as of yesterday the uro wants to do a laser treatment to open up the urinary channel. Apparently most men have a capacity of 400-450 cc in their bladders, and, after urinating twice, I was still retaining 500 cc of urine. After having been hustled into the TUMT, I'm not about to be rushed again. I'm 65, btw.Can anyone tell me the downside of NOT having such a procedure? I can't be less continent than I already am. Is EVERY MD in this business a con man? I hate to assume that, but after going through four uro's, I don't know what to think.I'd appreciate your help. Thank you in advance.Tom Quote Link to comment Share on other sites More sharing options...
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