Re: American Cancer Society Gives in to Homophobia

[Guest guest]

Very interesing...! I am in a support group at the present time at Waukesha Pro Health Hospital, which i find very informative and a great help to hear experiences of the people that attend. I would

also attend a support group that would be comprised of those MEN WITH PROSTATE CANCER ...ALL MEN...as many in the Waukesha group bring their wives. I would PREFER an all male

group..where many of the sexual problems ..ED...can be discussed with just men...

To: ProstateCancerSupport Sent: Tue, April 27, 2010 5:31:06 PMSubject: American Cancer Society Gives in to Homophobia

In my dual role as director of Malecare and of The LGBT Cancer Project - Out With Cancer, over the years many well meaning people have emailed me, asking, "why do gay people need their own cancer survivor organization. " I got one such email this morning, just as I was composing the following. Just one of several similar "issues" I respond to every month. I hope you will find this enlightening. April 27, 2010 R. Seffrin, PhDChief Executive OfficerAmerican Cancer SocietyDear Dr. Seffrin:I write to you today with the hope of getting a greater understanding about why The American Cancer Society's Pinellas County branch canceled an LGBT-focused Relay For Life that was scheduled for March 21, 2010. As described by the event's organizer, Bobby Poth, American Cancer Society officials " were worried about how the general public would react to an LGBT-targeted event [and] allowed personal beliefs to play a role in that

fear, etc."Lesbian, Gay, Bisexual and Transgendered cancer survivors, their friends, family and care givers, deserve complete and unfettered support by all of us, including the American Cancer Society. Homophobia is vile and life threatening, particularly to those who are vulnerable because of ongoing health care treatment. Out With Cancer – The LGBT Cancer Project is our country's first and leading LGBT cancer survivor support and advocacy national nonprofit organization. We know that prejudice hurts LGBT cancer survivors, diminishing access to appropriate health care, elevating psycho-social stressors and reducing research into LGBT health care disparities. To see our country's largest cancer survivor nonprofit, the American Cancer Society give in to homophobia, is harmful to all of us.I look forward to your reply on this issue. Thank you for your consideration.Darryl Mitteldorf, LCSWExecutive DirectorOut With Cancer

– The LGBT Cancer Project

[Guest guest]



Please share your experiences with laser treatments.

I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant sample out of 12. I've been through a TUMT, which rendered me incontinent and impotent, as well as 44 radiation treatments. I'm happy to say the PSAs have been under .1, but as of yesterday the uro wants to do a laser treatment to open up the urinary channel. Apparently most men have a capacity of 400-450 cc in their bladders, and, after urinating twice, I was still retaining 500 cc of urine. After having been hustled into the TUMT, I'm not about to be rushed again. I'm 65, btw.

Can anyone tell me the downside of NOT having such a procedure? I can't be less continent than I already am. Is EVERY MD in this business a con man? I hate to assume that, but after going through four uro's, I don't know what to think.

I'd appreciate your help. Thank you in advance.

Tom

[Guest guest]

Tom,

retaining large amounts of urine in your bladder makes an ideal condition for

bacteria to grow. Given time, it can track back up to your kidneys, giving you

one hell of an infection, one that can threaten your kidney function, even your

life.

In addition, having your bladder constantly distended like that will make

getting back any kind of bladder control down the line more difficult.

If you're in doubt, get a second opinion.

- Dave

Please share your experiences with laser treatments.

I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant

sample out of 12. I've been through a TUMT, which rendered me incontinent and

impotent, as well as 44 radiation treatments. I'm happy to say the PSAs have

been under .1, but as of yesterday the uro wants to do a laser treatment to open

up the urinary channel. Apparently most men have a capacity of 400-450 cc in

their bladders, and, after urinating twice, I was still retaining 500 cc of

urine. After having been hustled into the TUMT, I'm not about to be rushed

again. I'm 65, btw.

Can anyone tell me the downside of NOT having such a procedure? I can't be less

continent than I already am. Is EVERY MD in this business a con man? I hate to

assume that, but after going through four uro's, I don't know what to think.

I'd appreciate your help. Thank you in advance.

Tom

[Guest guest]

Thanks, Dave. I've been on antibiotics off and on for the past several months, so I'm living proof of what you said. Good advice.

Tom

Re: American Cancer Society Gives in to Homophobia

Tom,retaining large amounts of urine in your bladder makes an ideal condition for bacteria to grow. Given time, it can track back up to your kidneys, giving you one hell of an infection, one that can threaten your kidney function, even your life.In addition, having your bladder constantly distended like that will make getting back any kind of bladder control down the line more difficult.If you're in doubt, get a second opinion.- DavePlease share your experiences with laser treatments.I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant sample out of 12. I've been through a TUMT, which rendered me incontinent and impotent, as well as 44 radiation treatments. I'm happy to say the PSAs have been under .1, but as of yesterday the uro wants to do a laser treatment to open up the urinary channel. Apparently most men have a capacity of 400-450 cc in their bladders, and, after urinating twice, I was still retaining 500 cc of urine. After having been hustled into the TUMT, I'm not about to be rushed again. I'm 65, btw.Can anyone tell me the downside of NOT having such a procedure? I can't be less continent than I already am. Is EVERY MD in this business a con man? I hate to assume that, but after going through four uro's, I don't know what to think.I'd appreciate your help. Thank you in advance.Tom

[Guest guest]

I'm just getting fitted today for the radiation treatments. So far the hormone shot has certainly decreased the libido...but I'm also 72...and the FLASHES are getting progressively worse. At this point, not having had any of the upcoming 30-35 radiation doses, I don't know what side affects will happen.

To: ProstateCancerSupport Sent: Wed, April 28, 2010 9:02:02 AMSubject: Re: Re: American Cancer Society Gives in to Homophobia

Thanks, Dave. I've been on antibiotics off and on for the past several months, so I'm living proof of what you said. Good advice.

Tom

[ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

Tom,retaining large amounts of urine in your bladder makes an ideal condition for bacteria to grow. Given time, it can track back up to your kidneys, giving you one hell of an infection, one that can threaten your kidney function, even your life.In addition, having your bladder constantly distended like that will make getting back any kind of bladder control down the line more difficult.If you're in doubt, get a second opinion.- DavePlease share your experiences with laser treatments.I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant sample out of 12. I've been through a TUMT, which rendered me incontinent and impotent, as well as 44 radiation treatments. I'm

happy to say the PSAs have been under .1, but as of yesterday the uro wants to do a laser treatment to open up the urinary channel. Apparently most men have a capacity of 400-450 cc in their bladders, and, after urinating twice, I was still retaining 500 cc of urine. After having been hustled into the TUMT, I'm not about to be rushed again. I'm 65, btw.Can anyone tell me the downside of NOT having such a procedure? I can't be less continent than I already am. Is EVERY MD in this business a con man? I hate to assume that, but after going through four uro's, I don't know what to think.I'd appreciate your help. Thank you in advance.Tom

[Guest guest]

Sorry to hear you've had so many problems. So far none of those have happened to me.!

To: ProstateCancerSupport Sent: Wed, April 28, 2010 7:50:55 AMSubject: Re: American Cancer Society Gives in to Homophobia

 Please share your experiences with laser treatments.

I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant sample out of 12. I've been through a TUMT, which rendered me incontinent and impotent, as well as 44 radiation treatments. I'm happy to say the PSAs have been under .1, but as of yesterday the uro wants to do a laser treatment to open up the urinary channel. Apparently most men have a capacity of 400-450 cc in their bladders, and, after urinating twice, I was still retaining 500 cc of urine. After having been hustled into the TUMT, I'm not about to be rushed again. I'm 65, btw.

Can anyone tell me the downside of NOT having such a procedure? I can't be less continent than I already am. Is EVERY MD in this business a con man? I hate to assume that, but after going through four uro's, I don't know what to think.

I'd appreciate your help. Thank you in advance.

Tom

[Guest guest]

Hi Guys/Jim,

I had radiation and it was least painful, least invasive, least side affects for me treatment I have had in my whole life. I did not do my homework like you are doing. I lost some hair on my body but it was soo slow and I really did not notice much until I started growing it back. Like Alan said just do not move-maybe meditate or try to sleep. Not much can go wrong with it. I would suggest you find a book recommended and change to vegetarian now. I am not sure it will not help if it comes back or not but if I had known then what I know now I would have tried it.

Best of Luck,

Tom W.

To: ProstateCancerSupport Sent: Wed, April 28, 2010 10:12:26 AMSubject: Re: Re: American Cancer Society Gives in to Homophobia

I'm just getting fitted today for the radiation treatments. So far the hormone shot has certainly decreased the libido...but I'm also 72...and the FLASHES are getting progressively worse. At this point, not having had any of the upcoming 30-35 radiation doses, I don't know what side affects will happen.

From: Tom Lauterback <tkl60123wowway (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Wed, April 28, 2010 9:02:02 AMSubject: Re: [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

Thanks, Dave. I've been on antibiotics off and on for the past several months, so I'm living proof of what you said. Good advice.

Tom

[ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

Tom,retaining large amounts of urine in your bladder makes an ideal condition for bacteria to grow. Given time, it can track back up to your kidneys, giving you one hell of an infection, one that can threaten your kidney function, even your life.In addition, having your bladder constantly distended like that will make getting back any kind of bladder control down the line more difficult.If you're in doubt, get a second opinion.- DavePlease share your experiences with laser treatments.I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant sample out of 12. I've been through a TUMT, which rendered me incontinent and impotent, as well as 44 radiation treatments. I'm

happy to say the PSAs have been under .1, but as of yesterday the uro wants to do a laser treatment to open up the urinary channel. Apparently most men have a capacity of 400-450 cc in their bladders, and, after urinating twice, I was still retaining 500 cc of urine. After having been hustled into the TUMT, I'm not about to be rushed again. I'm 65, btw.Can anyone tell me the downside of NOT having such a procedure? I can't be less continent than I already am. Is EVERY MD in this business a con man? I hate to assume that, but after going through four uro's, I don't know what to think.I'd appreciate your help. Thank you in advance.Tom

[Guest guest]

TOM: Thank you for the info! I was at meeting yesterday..and there is a farm starting in Wisconsin...ORGANIC and going to grow crops specifically those that will aid in fighting various cancers.

Apparetnly maple syrup..the pure stuff is the best for the prostate. And like you..wish I had known about this BEFORE this was discovered! BUT thanks...and sure I'll get thru this also. I'm 72

soon to be 73...and also have some heart issues..but all working out. PLAYING TENNIS this afternoon..and still working part time.! SO THAT IS GOOD! Right now having a SWEAT attach

again from the hormone shot..but I 'll survive those! lol Thanks for the advice to HOLD REAL STILL...I was trying to do that while getting fitted yesterday..and tattoo'd!

To: ProstateCancerSupport Sent: Wed, April 28, 2010 7:15:24 PMSubject: Re: Re: American Cancer Society Gives in to Homophobia

Hi Guys/Jim,

I had radiation and it was least painful, least invasive, least side affects for me treatment I have had in my whole life. I did not do my homework like you are doing. I lost some hair on my body but it was soo slow and I really did not notice much until I started growing it back. Like Alan said just do not move-maybe meditate or try to sleep. Not much can go wrong with it. I would suggest you find a book recommended and change to vegetarian now. I am not sure it will not help if it comes back or not but if I had known then what I know now I would have tried it.

Best of Luck,

Tom W.

From: Jim Hoppe <jimmydaduck@ att.net>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Wed, April 28, 2010 10:12:26 AMSubject: Re: [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

I'm just getting fitted today for the radiation treatments. So far the hormone shot has certainly decreased the libido...but I'm also 72...and the FLASHES are getting progressively worse. At this point, not having had any of the upcoming 30-35 radiation doses, I don't know what side affects will happen.

From: Tom Lauterback <tkl60123wowway (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Wed, April 28, 2010 9:02:02 AMSubject: Re: [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

Thanks, Dave. I've been on antibiotics off and on for the past several months, so I'm living proof of what you said. Good advice.

Tom

[ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

Tom,retaining large amounts of urine in your bladder makes an ideal condition for bacteria to grow. Given time, it can track back up to your kidneys, giving you one hell of an infection, one that can threaten your kidney function, even your life.In addition, having your bladder constantly distended like that will make getting back any kind of bladder control down the line more difficult.If you're in doubt, get a second opinion.- DavePlease share your experiences with laser treatments.I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant sample out of 12. I've been through a TUMT, which rendered me incontinent and impotent, as well as 44 radiation treatments. I'm

happy to say the PSAs have been under .1, but as of yesterday the uro wants to do a laser treatment to open up the urinary channel. Apparently most men have a capacity of 400-450 cc in their bladders, and, after urinating twice, I was still retaining 500 cc of urine. After having been hustled into the TUMT, I'm not about to be rushed again. I'm 65, btw.Can anyone tell me the downside of NOT having such a procedure? I can't be less continent than I already am. Is EVERY MD in this business a con man? I hate to assume that, but after going through four uro's, I don't know what to think.I'd appreciate your help. Thank you in advance.Tom

[Guest guest]

I tried to laugh about it. I never had a tatoo before and now they tattoed my ass and now I know how a women feels about........

Meant to be funny,

Tom W.

To: ProstateCancerSupport Sent: Thu, April 29, 2010 6:14:04 AMSubject: Re: Re: American Cancer Society Gives in to Homophobia

TOM: Thank you for the info! I was at meeting yesterday..and there is a farm starting in Wisconsin... ORGANIC and going to grow crops specifically those that will aid in fighting various cancers.

Apparetnly maple syrup..the pure stuff is the best for the prostate. And like you..wish I had known about this BEFORE this was discovered! BUT thanks...and sure I'll get thru this also. I'm 72

soon to be 73...and also have some heart issues..but all working out. PLAYING TENNIS this afternoon..and still working part time.! SO THAT IS GOOD! Right now having a SWEAT attach

again from the hormone shot..but I 'll survive those! lol Thanks for the advice to HOLD REAL STILL...I was trying to do that while getting fitted yesterday..and tattoo'd!

From: Tom <tomcw4aaayahoo (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Wed, April 28, 2010 7:15:24 PMSubject: Re: [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

Hi Guys/Jim,

I had radiation and it was least painful, least invasive, least side affects for me treatment I have had in my whole life. I did not do my homework like you are doing. I lost some hair on my body but it was soo slow and I really did not notice much until I started growing it back. Like Alan said just do not move-maybe meditate or try to sleep. Not much can go wrong with it. I would suggest you find a book recommended and change to vegetarian now. I am not sure it will not help if it comes back or not but if I had known then what I know now I would have tried it.

Best of Luck,

Tom W.

From: Jim Hoppe <jimmydaduck@ att.net>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Wed, April 28, 2010 10:12:26 AMSubject: Re: [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

I'm just getting fitted today for the radiation treatments. So far the hormone shot has certainly decreased the libido...but I'm also 72...and the FLASHES are getting progressively worse. At this point, not having had any of the upcoming 30-35 radiation doses, I don't know what side affects will happen.

From: Tom Lauterback <tkl60123wowway (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Wed, April 28, 2010 9:02:02 AMSubject: Re: [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

Thanks, Dave. I've been on antibiotics off and on for the past several months, so I'm living proof of what you said. Good advice.

Tom

[ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

Tom,retaining large amounts of urine in your bladder makes an ideal condition for bacteria to grow. Given time, it can track back up to your kidneys, giving you one hell of an infection, one that can threaten your kidney function, even your life.In addition, having your bladder constantly distended like that will make getting back any kind of bladder control down the line more difficult.If you're in doubt, get a second opinion.- DavePlease share your experiences with laser treatments.I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant sample out of 12. I've been through a TUMT, which rendered me incontinent and impotent, as well as 44 radiation treatments. I'm

happy to say the PSAs have been under .1, but as of yesterday the uro wants to do a laser treatment to open up the urinary channel. Apparently most men have a capacity of 400-450 cc in their bladders, and, after urinating twice, I was still retaining 500 cc of urine. After having been hustled into the TUMT, I'm not about to be rushed again. I'm 65, btw.Can anyone tell me the downside of NOT having such a procedure? I can't be less continent than I already am. Is EVERY MD in this business a con man? I hate to assume that, but after going through four uro's, I don't know what to think.I'd appreciate your help. Thank you in advance.Tom

[Guest guest]

It is funny...and my wife and WOMEN GIVE NO SYMPATHY for the hot or "SWEAT FLASHES" some call it. They are awful..and when I don't wake up at night..I sure get up WET!!! On top...not down there yet. AND..at 72...MY FIRST TATTOO also..lol. I show them off at the Y and asked that they at least do SMILEY FACES..down there! lol

To: ProstateCancerSupport Sent: Thu, April 29, 2010 9:11:42 PMSubject: Re: Re: American Cancer Society Gives in to Homophobia

I tried to laugh about it. I never had a tatoo before and now they tattoed my ass and now I know how a women feels about....... .

Meant to be funny,

Tom W.

From: Jim Hoppe <jimmydaduck@ att.net>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Thu, April 29, 2010 6:14:04 AMSubject: Re: [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

TOM: Thank you for the info! I was at meeting yesterday..and there is a farm starting in Wisconsin... ORGANIC and going to grow crops specifically those that will aid in fighting various cancers.

Apparetnly maple syrup..the pure stuff is the best for the prostate. And like you..wish I had known about this BEFORE this was discovered! BUT thanks...and sure I'll get thru this also. I'm 72

soon to be 73...and also have some heart issues..but all working out. PLAYING TENNIS this afternoon..and still working part time.! SO THAT IS GOOD! Right now having a SWEAT attach

again from the hormone shot..but I 'll survive those! lol Thanks for the advice to HOLD REAL STILL...I was trying to do that while getting fitted yesterday..and tattoo'd!

From: Tom <tomcw4aaayahoo (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Wed, April 28, 2010 7:15:24 PMSubject: Re: [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

Hi Guys/Jim,

I had radiation and it was least painful, least invasive, least side affects for me treatment I have had in my whole life. I did not do my homework like you are doing. I lost some hair on my body but it was soo slow and I really did not notice much until I started growing it back. Like Alan said just do not move-maybe meditate or try to sleep. Not much can go wrong with it. I would suggest you find a book recommended and change to vegetarian now. I am not sure it will not help if it comes back or not but if I had known then what I know now I would have tried it.

Best of Luck,

Tom W.

From: Jim Hoppe <jimmydaduck@ att.net>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Wed, April 28, 2010 10:12:26 AMSubject: Re: [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

I'm just getting fitted today for the radiation treatments. So far the hormone shot has certainly decreased the libido...but I'm also 72...and the FLASHES are getting progressively worse. At this point, not having had any of the upcoming 30-35 radiation doses, I don't know what side affects will happen.

From: Tom Lauterback <tkl60123wowway (DOT) com>To: ProstateCancerSuppo rtyahoogroups (DOT) comSent: Wed, April 28, 2010 9:02:02 AMSubject: Re: [ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

Thanks, Dave. I've been on antibiotics off and on for the past several months, so I'm living proof of what you said. Good advice.

Tom

[ProstateCancerSupp ort] Re: American Cancer Society Gives in to Homophobia

Tom,retaining large amounts of urine in your bladder makes an ideal condition for bacteria to grow. Given time, it can track back up to your kidneys, giving you one hell of an infection, one that can threaten your kidney function, even your life.In addition, having your bladder constantly distended like that will make getting back any kind of bladder control down the line more difficult.If you're in doubt, get a second opinion.- DavePlease share your experiences with laser treatments.I was diagnosed a year ago almost to the day. I was 3+3 T1 with one malignant sample out of 12. I've been through a TUMT, which rendered me incontinent and impotent, as well as 44 radiation treatments. I'm

happy to say the PSAs have been under .1, but as of yesterday the uro wants to do a laser treatment to open up the urinary channel. Apparently most men have a capacity of 400-450 cc in their bladders, and, after urinating twice, I was still retaining 500 cc of urine. After having been hustled into the TUMT, I'm not about to be rushed again. I'm 65, btw.Can anyone tell me the downside of NOT having such a procedure? I can't be less continent than I already am. Is EVERY MD in this business a con man? I hate to assume that, but after going through four uro's, I don't know what to think.I'd appreciate your help. Thank you in advance.Tom